Re: Len & CT scan question

[Guest guest]

Len,

So happy to hear you had the port put in!! Did not know you had it scheduled.

I know you will prefer it to the stick in the arm.

I just finished round 11 and this was the only time that it hurt, it was the

techs fault, she just wasn't paying attention!. I wish I had a baseball bat at

the time!

Happy to hear your hands and feet are feeling better. Mine are feeling worse

but I am sure it is due to the cold temps here. I can't remember how long

everyone says they suffer from this side effect after the chemo ends.

I am dreading going back for this last treatment but then, just can't wait to

get it over with.

I asked the onc when my CT scan would be as I will have my last chemo the 27th

and 28th and want the CT scheduled in Dec so I don't have to go thru another

deductable 1st of Jan. Anyhow, she said she wasn't going to do one but would

monitor me every 3 months with blood work. I insisted that I get a scan after

all this and she said whatever I wanted she would dol. Is having the scan

immediately after chemo wrong? Has anyone been monitored with blood work only?

Almost done but these last 2 sure have been draining!! hugs and prayers --

donna

Len Henell wrote:

Hi ,

My neropothy is much better right now. The reduction

in Xeloda may have helped or the fact that I bought a

big jar of " No Crack " from Restoration Hardware and

have used it liberally. Also I wear two pair of socks

to keep my feet warm and I thoroughly cover my feet

and ankles with Hand Lotion. I even wear one pair of

socks in bed at night so my feet never get chilled.

I had a port put in this morning and it feels fine.

Right now I'm doing great and will have another

infusion on Tuesday.

Good luck with yours and stop worrying about how you

look. How you feel is the important thing.

Good luck.

Len

--- brencolinmom@... wrote:

---------------------------------

Thanks Len. I will send you a new photo after next

week. We are going to

Lake Las Vegas with our boys to meet my mother in law

and sis in law. Just a

restful 5 days at a hotel and we will take the boys to

Cirque du Soleil at

the MGM Grand. I can't stay in the hotels on the

strip because of all the

cigarette smoke.

How are you doing? I am so sympathetic with regard to

your neuropathy.

Mine is getting worse and worse and I hate it.

Happy Holidays.

In a message dated 12/16/2005 5:30:53 P.M. Pacific

Standard Time,

hlen@... writes:

,

I understand your pain on the hair problem. My hair

has never recovered from the first chemotherapy. I

just had to change my attitude. You would be

suprised

at how many people could care less about your hair.

You have those classic good looks that will show

through any kind of hair. Send me a new picture so I

can be more critical and really get you upset! No,

seriously, do send me a new photo. I think you will

look great.

Len

--- brencolinmom@... wrote:

---------------------------------

Hi everyone:

I have tried to read the posts lately but I have been

so nauseated until

today that I couldn't post. Now, I am looking at my

ugly hair and wondering if

I can color it even though I am not finished with my

12 sessions of Folfox

plus Avastin. I just did number 10. My roots are

grown out and have a few

gray hairs and just an ugly brown color. Help?

Thanks ladies.

Love,

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/

[Guest guest]

Donna, My onc does also not want to do CT scans. He just checks blood

work every three months. Of course last June when my CEA went up they

did the Pet and CT scans. Had surgery and now am doig fine.

I went to see the Onc this morning. My CEA has dropped since last

month. Onc told me that if it was caused by another tumor the CEA

would of gone up not down. So that was my Christmas preasent!!!!

I too asked about another scan. He told me we will do one this

summer one year after last CT scan.

Also asked if I am to do a colonosciopy every year.(Just had one)

He said no. Wait and have another in three years. I wonder if they

need to keep me checked more often. Guess we all go through this.

Hope everyone is having good days and feeling the Christmas Spirit!

Love, Ingrid

>

>

> ---------------------------------

> Hi everyone:

> I have tried to read the posts lately but I have been

> so nauseated until

> today that I couldn't post. Now, I am looking at my

> ugly hair and wondering if

> I can color it even though I am not finished with my

> 12 sessions of Folfox

> plus Avastin. I just did number 10. My roots are

> grown out and have a few

> gray hairs and just an ugly brown color. Help?

> Thanks ladies.

> Love,

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

> For an an extensive collection of colon cancer

> related

> links go to

> http://groups.yahoo.com/group/colon_cancer_support/links

> or

> http://ourworld.compuserve.com/homepages/suthercon/

>

> yahoo.com/group/colon_cancer_support/links or

> http://ourworld.compuserve.com/homepages/suthercon/

>

>

>

>

>

>

[Guest guest]

Donna,

Yes I hope the port works as well for me as it has for

others. It hurts a bit right now.

As far as you not having a CT scan at the end; I was

monitored with blood work only after my first bout

with this cancer in 98 and when the recurrance was

found it was at least a year old and probably two or

three. The tumor had grown so big that it pressed on

nerves and passages to the point of closing the

passages and causing some pretty severe pain. If I

had been monitored with any kind of scan I may not be

fighting such a desperate battle. If I were you I

would have that scan if I had to pay for it myself.

I'll keep everything crossed for you on these last two

infusions. Good luck.

Len

--- Donna Wilkinson wrote:

---------------------------------

Len,

So happy to hear you had the port put in!! Did not

know you had it scheduled.

I know you will prefer it to the stick in the arm.

I just finished round 11 and this was the only time

that it hurt, it was the techs fault, she just wasn't

paying attention!. I wish I had a baseball bat at the

time!

Happy to hear your hands and feet are feeling

better. Mine are feeling worse but I am sure it is

due to the cold temps here. I can't remember how

long everyone says they suffer from this side effect

after the chemo ends.

I am dreading going back for this last treatment but

then, just can't wait to get it over with.

I asked the onc when my CT scan would be as I will

have my last chemo the 27th and 28th and want the CT

scheduled in Dec so I don't have to go thru another

deductable 1st of Jan. Anyhow, she said she wasn't

going to do one but would monitor me every 3 months

with blood work. I insisted that I get a scan after

all this and she said whatever I wanted she would dol.

Is having the scan immediately after chemo wrong?

Has anyone been monitored with blood work only?

Almost done but these last 2 sure have been

draining!! hugs and prayers -- donna

Len Henell wrote:

Hi ,

My neropothy is much better right now. The reduction

in Xeloda may have helped or the fact that I bought a

big jar of " No Crack " from Restoration Hardware and

have used it liberally. Also I wear two pair of socks

to keep my feet warm and I thoroughly cover my feet

and ankles with Hand Lotion. I even wear one pair of

socks in bed at night so my feet never get chilled.

I had a port put in this morning and it feels fine.

Right now I'm doing great and will have another

infusion on Tuesday.

Good luck with yours and stop worrying about how you

look. How you feel is the important thing.

Good luck.

Len

--- brencolinmom@... wrote:

---------------------------------

Thanks Len. I will send you a new photo after next

week. We are going to

Lake Las Vegas with our boys to meet my mother in law

and sis in law. Just a

restful 5 days at a hotel and we will take the boys to

Cirque du Soleil at

the MGM Grand. I can't stay in the hotels on the

strip because of all the

cigarette smoke.

How are you doing? I am so sympathetic with regard to

your neuropathy.

Mine is getting worse and worse and I hate it.

Happy Holidays.

In a message dated 12/16/2005 5:30:53 P.M. Pacific

Standard Time,

hlen@... writes:

,

I understand your pain on the hair problem. My hair

has never recovered from the first chemotherapy. I

just had to change my attitude. You would be

suprised

at how many people could care less about your hair.

You have those classic good looks that will show

through any kind of hair. Send me a new picture so I

can be more critical and really get you upset! No,

seriously, do send me a new photo. I think you will

look great.

Len

--- brencolinmom@... wrote:

---------------------------------

Hi everyone:

I have tried to read the posts lately but I have been

so nauseated until

today that I couldn't post. Now, I am looking at my

ugly hair and wondering if

I can color it even though I am not finished with my

12 sessions of Folfox

plus Avastin. I just did number 10. My roots are

grown out and have a few

gray hairs and just an ugly brown color. Help?

Thanks ladies.

Love,

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/

[Guest guest]

Hi Len

SO glad you got the port. Yes the stick always aggravated me so I got the

creme - but I noticed it wasn't bothersome for most people. It is called Emla

by name brand - the generic is lidocaine-prilocaine. I'm sure it will be

helpful with the initial treatments until your basic soreness from the surgery

goes away. I was a bit of a baby -but always used it - never one sensation from

the prick - just one little thing to make chemo day better...lol

You are so right about the CT Scans - just ask for them it isn't the doctor's

money - they will say yes. Had I had one sooner - I would have known the pouch

was leaking! Instead we waiting four months of me poisoning myself with leakage

to find that out!

Thanks so much for the encouraging email - yes it could be so much worse - I

will just have to have the reconstructive surgery (again!) and far as I know

they haven't seen any spots - unless there is something being withheld til my

appointment on Tuesday - I'm sure all else is fine. Will keep you up to date.

Pat

Len Henell wrote:

Donna,

Yes I hope the port works as well for me as it has for

others. It hurts a bit right now.

As far as you not having a CT scan at the end; I was

monitored with blood work only after my first bout

with this cancer in 98 and when the recurrance was

found it was at least a year old and probably two or

three. The tumor had grown so big that it pressed on

nerves and passages to the point of closing the

passages and causing some pretty severe pain. If I

had been monitored with any kind of scan I may not be

fighting such a desperate battle. If I were you I

would have that scan if I had to pay for it myself.

I'll keep everything crossed for you on these last two

infusions. Good luck.

Len

--- Donna Wilkinson wrote:

---------------------------------

Len,

So happy to hear you had the port put in!! Did not

know you had it scheduled.

I know you will prefer it to the stick in the arm.

I just finished round 11 and this was the only time

that it hurt, it was the techs fault, she just wasn't

paying attention!. I wish I had a baseball bat at the

time!

Happy to hear your hands and feet are feeling

better. Mine are feeling worse but I am sure it is

due to the cold temps here. I can't remember how

long everyone says they suffer from this side effect

after the chemo ends.

I am dreading going back for this last treatment but

then, just can't wait to get it over with.

I asked the onc when my CT scan would be as I will

have my last chemo the 27th and 28th and want the CT

scheduled in Dec so I don't have to go thru another

deductable 1st of Jan. Anyhow, she said she wasn't

going to do one but would monitor me every 3 months

with blood work. I insisted that I get a scan after

all this and she said whatever I wanted she would dol.

Is having the scan immediately after chemo wrong?

Has anyone been monitored with blood work only?

Almost done but these last 2 sure have been

draining!! hugs and prayers -- donna

Len Henell wrote:

Hi ,

My neropothy is much better right now. The reduction

in Xeloda may have helped or the fact that I bought a

big jar of " No Crack " from Restoration Hardware and

have used it liberally. Also I wear two pair of socks

to keep my feet warm and I thoroughly cover my feet

and ankles with Hand Lotion. I even wear one pair of

socks in bed at night so my feet never get chilled.

I had a port put in this morning and it feels fine.

Right now I'm doing great and will have another

infusion on Tuesday.

Good luck with yours and stop worrying about how you

look. How you feel is the important thing.

Good luck.

Len

--- brencolinmom@... wrote:

---------------------------------

Thanks Len. I will send you a new photo after next

week. We are going to

Lake Las Vegas with our boys to meet my mother in law

and sis in law. Just a

restful 5 days at a hotel and we will take the boys to

Cirque du Soleil at

the MGM Grand. I can't stay in the hotels on the

strip because of all the

cigarette smoke.

How are you doing? I am so sympathetic with regard to

your neuropathy.

Mine is getting worse and worse and I hate it.

Happy Holidays.

In a message dated 12/16/2005 5:30:53 P.M. Pacific

Standard Time,

hlen@... writes:

,

I understand your pain on the hair problem. My hair

has never recovered from the first chemotherapy. I

just had to change my attitude. You would be

suprised

at how many people could care less about your hair.

You have those classic good looks that will show

through any kind of hair. Send me a new picture so I

can be more critical and really get you upset! No,

seriously, do send me a new photo. I think you will

look great.

Len

--- brencolinmom@... wrote:

---------------------------------

Hi everyone:

I have tried to read the posts lately but I have been

so nauseated until

today that I couldn't post. Now, I am looking at my

ugly hair and wondering if

I can color it even though I am not finished with my

12 sessions of Folfox

plus Avastin. I just did number 10. My roots are

grown out and have a few

gray hairs and just an ugly brown color. Help?

Thanks ladies.

Love,

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/