Guest guest Posted December 1, 2005 Report Share Posted December 1, 2005 In a message dated 12/2/2005 6:43:11 AM Eastern Standard Time, flytodeb@... writes: Pat, thank you for the message. He is still having the side effects down there, but we are both so very happy chemo/radiation is finished. We plan on celebrating on Saturday. Just our kids and us, eating dinner together and cutting a cake. This is as exciting as it gets. ROTFL Take care. Prayers for all~ ~Deb from KS Hey Deb.... Little family get-togethers, enjoying each other, good food and a cake is what " its " all about!!! It will be a GRAND occasion...worthy of celebration photos honoring the " survivor hero " , too!!! Can I come?? LOL Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 In a message dated 12/2/2005 8:04:19 AM Eastern Standard Time, jehret@... writes: We don't worry about being whiny, here we are entitled to all our feelings be they whiny, angry or whatever. You just take the good with the bad. Bless you Jolene Re: Update for Deb's Sam Donelle, thank you for encouraging us. By my saying things are not great but ok, I guess I was referring to the checkups, exams, tests, and scans that will be constantly reminding us that something is not right. I was being whiny wasn't I? Forgive me? LOL Take care. Prayers coming your way today~ ~Deb from KS Jumping in here, Jolene... I didn't get Deb's post...probably get it tomorrow!!! Damn Yahoo!! LOL Deb... I didn't think you were whining, but if you were, like Jolene said, that is permissible amongst us!!! The checkups, exams, tests, scans and daily routine that reminds us that something is not right really, really, really gets to be annoying and time-consuming....worthy of whining, I might add...maybe even bitching!!! Just try to count your blessings and " be thankful " you are still able to do these things!!! Thanks for the prayers, as always!! Lots of hugs and prayers, Donelle Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 Donelle, thank you for encouraging us. By my saying things are not great but ok, I guess I was referring to the checkups, exams, tests, and scans that will be constantly reminding us that something is not right. I was being whiny wasn't I? Forgive me? LOL Take care. Prayers coming your way today~ ~Deb from KS > > > > In a message dated 12/1/2005 9:47:53 PM Eastern Standard Time, > flytodeb writes: > > Now that Sam's surgery, chemo and radiation are over, maybe things > will be ok. Not great, but ok. Thank you for your prayers. We are > praying for all of you. Take care. > > ~Deb from KS > wife and caregiver to Sam > > > > Deb....they will be great one day soon!!! Try to stay positive....sending > tons of positive thoughts your way and prayers every day for you and Sam~~ > > Lots of hugs and prayers, Donelle > Caregiver to Glenn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 2, 2005 Report Share Posted December 2, 2005 We don't worry about being whiny, here we are entitled to all our feelings be they whiny, angry or whatever. You just take the good with the bad. Bless you Jolene Re: Update for Deb's Sam Donelle, thank you for encouraging us. By my saying things are not great but ok, I guess I was referring to the checkups, exams, tests, and scans that will be constantly reminding us that something is not right. I was being whiny wasn't I? Forgive me? LOL Take care. Prayers coming your way today~ ~Deb from KS _____ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 I haven't posted much. Since my Sam's finished his chemo and radiation, we had our little family celebration. Dinner and cake. But the happiness lasted just a few hours. Sam gets so upset, angry very easily. He is still in a lot of pain. At the two weeks checkup the radiation oncologist said the effects could last for twenty days. So we are waiting again. haha Just recently he told me that cold water hurt his hands. I said why is it bothering you now? He said it always bothered him, he just never mentioned it! I did not mention side effects to him because I know how suggestive the mind is. I didn't want to give him any thoughts to worry about. So I guess he had all the side effects that everyone talks about, but he never mentioned some of them. The only thing is he did not lose very much of his hair. I wasn't worried about hair loss because he is bald on top. I teased him before his chemo and radiation began that he didn't have any hair to lose. He just laughed. The good old days when my husband used to laugh. ::sigh:: Please pray for us, everybody. Thanks. Hope you are all doing better. My prayers are for all of you. I know what you are going through. Not exactly, but pretty close. My heart aches especially for the new members and their families, because they are scared in all this. Don't worry, the process is painful, but you have to fight this disease. Don't give up. God bless. Take care, ~Deb from KS flytodeb wrote: Hi, everyone. Welcome new members; sorry you have this dreaded disease. Those who had good news recently, we share your joy. Those who are hurting, we share your pain. Phil and Glenn, God bless you and give you comfort. May God give your wife, children and families patience to endure this. To those who are suffering silently, we pray for you, too. We are all just taking it day by day. It seems a lot of our dreams have been dashed. But there's no time to feel sorry. We just have to go with what we have. Now that Sam's surgery, chemo and radiation are over, maybe things will be ok. Not great, but ok. Thank you for your prayers. We are praying for all of you. Take care. ~Deb from KS wife and caregiver to Sam colonoscopy 8-19-2005 tubular tumor was blocking the colon by 50 per cent CEA prior to surgery 3.9 lap surgery on 8-26-05 but opened up to get hand in there Rectosigmoid, low anterior colon resection (6 days in hospital) removed 22 x 8 cm. sigmoid and adjacent rectum (approx. 8 inches) adenocarcinoma size 6 x 5 x 2.5 cm 14 lymph nodes -- no evidence of metastatic tumor Woohoo! T3 N0 MX 6 weeks of rest after surgery portacath implanted 10-07-05 -- very sore chest for two days chemotherapy began 10-10-05 chemo pump for 5 weeks -- 5fu and fanny pack radiation began 10-12-05 drives himself to chemo refills and radiation treatments! after two weeks of chemo/radiation: tired, nausea, mouth sores skin darkening on hands, forehead and neck rectal bleeding begins after radiation #11 after third week, mouth sores hurt and he doesn't want to eat got gelclair -- mix with water to gargle, stops pain in mouth bloody nose, hair loss, restless legs, easily gets angry too sick, chemo stopped for one week break, but radiation continues using Aquaphor cream and suppository with Lidocaine in it radiation did not stop but skipped Wednesday for one day break started on Fentanyl 25 mcg pain patch that lasts for 3 days went to the 50 mcg patch for better pain management for breakthrough pain he takes Tylenol #3 learning to use Imodium so that he can go shopping chemo pump removed 11-21-05 Woohoo! beginning to feel better with the chemo finished! portacath remains for 1 year finished 32 sessions of radiation 11-30-05 Woohoo! feels happy this is over, thank God! radiation doctor said side effects will last two more weeks Next step: 2 week checkup 12-14-05 & 6 week checkup 1-11-06 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 16, 2005 Report Share Posted December 16, 2005 Deb, I am Praying for Sam and your family. It is understandable that Sam gets irritable. The stress of this and the treatments and being tired will do this. It will get better. he will start to feel better and his moods will improve. Love, Ingrid -- In colon_cancer_support , flytodeb <flytodeb@y...> wrote: > > I haven't posted much. Since my Sam's finished his chemo and radiation, we had our little family celebration. Dinner and cake. But the happiness lasted just a few hours. Sam gets so upset, angry very easily. He is still in a lot of pain. At the two weeks checkup the radiation oncologist said the effects could last for twenty days. So we are waiting again. haha > > Just recently he told me that cold water hurt his hands. I said why is it bothering you now? He said it always bothered him, he just never mentioned it! I did not mention side effects to him because I know how suggestive the mind is. I didn't want to give him any thoughts to worry about. So I guess he had all the side effects that everyone talks about, but he never mentioned some of them. The only thing is he did not lose very much of his hair. I wasn't worried about hair loss because he is bald on top. I teased him before his chemo and radiation began that he didn't have any hair to lose. He just laughed. The good old days when my husband used to laugh. ::sigh:: > > Please pray for us, everybody. Thanks. Hope you are all doing better. My prayers are for all of you. I know what you are going through. Not exactly, but pretty close. My heart aches especially for the new members and their families, because they are scared in all this. Don't worry, the process is painful, but you have to fight this disease. Don't give up. God bless. > Take care, > ~Deb from KS > > flytodeb <flytodeb@y...> wrote: > Hi, everyone. Welcome new members; sorry you have this dreaded > disease. Those who had good news recently, we share your joy. Those > who are hurting, we share your pain. Phil and Glenn, God bless you > and give you comfort. May God give your wife, children and families > patience to endure this. To those who are suffering silently, we > pray for you, too. > > We are all just taking it day by day. It seems a lot of our dreams > have been dashed. But there's no time to feel sorry. We just have to > go with what we have. > > Now that Sam's surgery, chemo and radiation are over, maybe things > will be ok. Not great, but ok. Thank you for your prayers. We are > praying for all of you. Take care. > > ~Deb from KS > wife and caregiver to Sam > > colonoscopy 8-19-2005 > tubular tumor was blocking the colon by 50 per cent > CEA prior to surgery 3.9 > lap surgery on 8-26-05 but opened up to get hand in there > Rectosigmoid, low anterior colon resection (6 days in hospital) > removed 22 x 8 cm. sigmoid and adjacent rectum (approx. 8 inches) > adenocarcinoma size 6 x 5 x 2.5 cm > 14 lymph nodes -- no evidence of metastatic tumor Woohoo! > T3 N0 MX > > 6 weeks of rest after surgery > portacath implanted 10-07-05 -- very sore chest for two days > chemotherapy began 10-10-05 > chemo pump for 5 weeks -- 5fu and fanny pack > radiation began 10-12-05 > drives himself to chemo refills and radiation treatments! > > after two weeks of chemo/radiation: tired, nausea, mouth sores > skin darkening on hands, forehead and neck > rectal bleeding begins after radiation #11 > > after third week, mouth sores hurt and he doesn't want to eat > got gelclair -- mix with water to gargle, stops pain in mouth > bloody nose, hair loss, restless legs, easily gets angry > too sick, chemo stopped for one week break, but radiation continues > using Aquaphor cream and suppository with Lidocaine in it > radiation did not stop but skipped Wednesday for one day break > started on Fentanyl 25 mcg pain patch that lasts for 3 days > went to the 50 mcg patch for better pain management > for breakthrough pain he takes Tylenol #3 > > learning to use Imodium so that he can go shopping > chemo pump removed 11-21-05 Woohoo! > beginning to feel better with the chemo finished! > portacath remains for 1 year > finished 32 sessions of radiation 11-30-05 Woohoo! > feels happy this is over, thank God! > radiation doctor said side effects will last two more weeks > Next step: 2 week checkup 12-14-05 & 6 week checkup 1-11-06 > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2005 Report Share Posted December 17, 2005 Ingrid, thank you for the message! I am praying he gets better. Hope you feel well. ~Deb from KS Ingrid Lowe wrote: Deb, I am Praying for Sam and your family. It is understandable that Sam gets irritable. The stress of this and the treatments and being tired will do this. It will get better. he will start to feel better and his moods will improve. Love, Ingrid __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2005 Report Share Posted December 17, 2005 Thank you, Lydia. You and your husband are always in my prayers! ~Deb from KS mily wrote: Hello Flytodeb, I am so happy to hear from you again. Really sad about Sam being upset, but this behaviour is only human. Sorry to hear that he is still in a lot of pain. I am going to keep him in my prayers for the pain to go away. love, lydia __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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