Re: Re: Lung Transplant Evaluation BMI Question

[Guest guest]

*Sharon*, I am so sorry for your loss.

Z 65, fibriotic NSIP/05/PA

And “mild” PH/10/07 and Reynaud’s too!!

No, NSIP was not self-inflicted…I never smoked!

Potter, reader,carousel lover and MomMom to Darah and Sara

“*I’m gonna be iron like a lion in Zion” Bob Marley*

*Vinca Minor-periwinkle is my flower*

sharon prendergast wrote:

>

> Hi Bruce and everyone, my uncle just passed away. his docs said it was

> from his pf but i do not understand that! he had a infection and went

> into the hospital and was transfered to u of c here in chicago. they

> could not figure it out. so then came another hospital and we were

> told he was coughinfgup brown stuff. he was only diagnosed a year ago

> and was just put on o2 in feb. sometimes i think when pf is involved

> the docs over look things. i could be wrong but i feel bitter. i

> thought u of c was a pf hospital.while waiting i found out a few

> things 1) do not get dehydrated. i could felt really tight breathing

> and a nurse said to drink some water because i had'nt all day. 2) we

> lose water as we sleep so drink before bed. 3) even skipping a couple

> of days of using my pflex made a difference. 4) dehydration even

> effects your spirometer reading. i'am sure you all probably know all

> this but i needed to talk to other pfers because i'am mad right now .

> he was 74 years young and full of life and its so unfair to go one

> month from traveling to death. sorry for this email

> sharon p asthma ph 2008

>

>

>

>

>

> Subject: Re: Lung Transplant Evaluation BMI Question

> To: Breathe-Support

> Date: Tuesday, July 28, 2009, 10:54 PM

>

> Yes and No

>

> There are guidelines and there is a scoring system that is nationwide.

> However, each hospital does do things differently. They have different

> practices on age and on other conditions. They ever vary as to how

> they

> match donors and recipients and the determination of acceptable

> matches

> and decisions of whether donor parts are usable. On top of that

> they all

> have different numbers of persons waiting and rates of turnover of

> their

> waiting lists, the characteristics of the donor population differs

> (for

> instance motorcycle helmet laws has some impact by state) and

> different

> demographics of donors and recipients. As an example, Shands would

> have

> an older group waiting than would UCLA.

>

> These are hospitals with different philosophies and doctors with

> different medical and human perspectives.

>

>

> >

> >

> > Thank you so much for your answer. Do all lung transplant

> hospitals go

> with the same criteria?

> >

>

>

>

[Guest guest]

thank you all for your support and replies! I'am sorry I was so bitter. The services were comforting and my uncle will be buried here at the Va cemetary.since he was in the army there were soldiers there. My beeper on my o2 kept going off so I stood in between the glass doors out in the foyer of the church. You could still hear what was going on. I guess I had to find some type of humor so the captain or whatever army is was standing next to me and said my uncle would be laid to rest in a military cemetary. I asked him if my husband could also go there next week because he was a vet. The man looked at me and said do you have his ashes and i said no you don't understand he's still alive! The man started laughing and when he had to speak he couldn't look at me.Sorry for the story but i have to talk or i'll cry again and i've done enough!

sharon p ph asthma 2008>>> > Subject: Re: Lung Transplant Evaluation BMI Question> To: Breathe-Support > Date: Tuesday, July 28, 2009, 10:54 PM>> Yes and No>> There are guidelines and there is a scoring system that is nationwide.> However, each hospital does do things differently. They have different> practices on age and on other conditions. They ever vary

as to how> they> match donors and recipients and the determination of acceptable> matches> and decisions of whether donor parts are usable. On top of that> they all> have different numbers of persons waiting and rates of turnover of> their> waiting lists, the characteristics of the donor population differs> (for> instance motorcycle helmet laws has some impact by state) and> different> demographics of donors and recipients. As an example, Shands would> have> an older group waiting than would UCLA.>>

These are hospitals with different philosophies and doctors with> different medical and human perspectives.>> > >> >> > Thank you so much for your answer. Do all lung transplant> hospitals go> with the same criteria?> >>>> ------------------------------------