Cystinuria and other results - opinions requested, Andy?

[Guest guest]

I recently had a number of tests done through genova Labs in the UK

(IWDL) and one of the tests was for Urine Amino Acids. (I also had

Plasma Amino Acids done.)

The urine test showed that I had high levels of Cysteine and Cystine

in the urine. This apparently is called Cystinuria. I have been

reading about it but would like to know if anyone here has experience

of this and it's relationship to Amalgam Illness. It does not appear

to have any mention in AI.

I have also listed some of the other values which were high or low in

both urine, red blood cell and plasma samples in the hope that someone

here may be able to comment on them. I have also mentioned a few other

results which I think may be relevant. Questions are at the bottom.

(I will be asking Andy to comment on my results also. I have

electronic copies of all my tests but I'm not sure if I can post them

to the group or not. Writing every result and range by hand would take

me a week!!! LOL so here are only the derranged ones.)

So first a few results which may be relevent and then some questions:

Results of out of range metabolic markers and Urine Amino Acids:

Lactic Acid 5.5 (6.3-36.4)Low

Alpha Ketoglutaric Acid 22.9 (0.5-16.0)High

Lysine 333 (45-286) High

Taurine 2,095 (68-538) High

Anserine 139 (7-126) High

Carnosine 13 (10-104) Low normal

1-Methylhistadine 1,710 (92-1,046) High

Beta- Alanine 69 (<=21) Very High

Dihydroxyphenylproprionic Acid (DHPPA) 5.9 (<=2.2) Very High

Cysteine 89 (21-78) High

Cystine 118 (26-78)High

Citrulline 89 (12-45)High

Sarcosine 58 (<=58) High

Results of out of range Plasma Amino's:

Arginine 6.9 ( 7.0-13.5) Low

Lysine and Isoleucine were at the bottom of the normal range

1-Methylhistidine was as top of normal range

Asparagine 4.0 (4.3-7.5) low

Cyst(e)ine 1.6 (4.6-8) Low

Glutamic Acid 7.0 (0.5-6.5) High

Glutamine 41 (47-70) Low

Glycine was bottom of normal range

Serine 8.2 (8.5-16.5) Low

Tyrosine was at the top of normal range

Phosphoethanolamine at the bottom of normal

Urea was low normal

3-Methylhistidine at the bottom end of normal

My Histamine was normal 43.0 (28-51)

Urine toxic elements:(during DMSA round 25mgs)

Lead 1.8 (<=1.4) High

Barium 6.6 (<=6.7)high

Cesium 13.1 (<=10.5) high

Gallium 0.052 (<=0.028) High

Platinum 0.039 (<=0.298)High

Thallium 0.339 (<=0.298) High

Copper 13.9 (4.0-11.4) very high

Manganese 1.89 (0.03-1.16) high

Sulfur in middle of range, molybdenum and selenium low normal.

Red Blood Cell analysis (NON PROVOKED but a few days after round)

Lead and arsenic in normal ranges.

Mercury 0.0087 (<=0.0039) High!!!!!!!!!!

Antimony was just into the red as was cadmium

Vanadium non existent!

Zinc 5.9 (7.8-13.1) Low

Detoxification profile:

Fast phase 1, slow 2! Yuk!

Glutathione, Sulfation and Glucuronidation all slow

Glycine conj. off scale (fast)

Other info:

Been chelating with DMSA for 16 months. Up to 25mgs. All recommended

supplements. Addisons and hypothyroidism. Hair test in March 2006

showed most definite mercury poisining. Sadly no improvements so far

other than being able to tolerate a slightly higher dose of DMSA.

According to Geneva labs It seems likely that I have protein

malabsorbtion and bacterial (But not fungal)) dysbiosis.It also said

that my need for methylation was low (don't know how accurate that

is)and detox impairment is high. (Well THAT one I worked out myself LOL!)

Have confirmed reactivation of Epstein Barre virus from over 13 years

ago.

So, my questions are:

1)Regarding the Cystinuria: Is this something which has been caused by

my mercury poisoning?

2) Is it a common problem in AI?

3) Can you have cystinuria with high or low plasma cysteine/cystine?

Knowing that plasma testing for Cystine is unreliable, could it be

that in this case my very low plasma Cyst(e)ine is accurate or could

it still really be high?

4) I read that one should eat a low animal protein diet with

Cystinuria. I suppose then that the low sulhur diet would also be a

good idea?

5) This question may be dumb but...If someone is wasting cystine in

their urine, why should they limit cysteine making foods? It would

seem to me that you need more cysteine to replace what you are losing

and not reclaiming in the kidneys?

6) With regards to the other tests, I realise these results are just

the ones out of range (mainly) but any comments or anything glaringly

obvious which I may have missed would be gratefully received!