Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 My wife Anne and I will be there. I just had my latest appt. at the Lung Transplant Clinic at Brigham and Women's Hospital in Boston, last Thursday. I am now at the point where they anticipate activating me on the transplant list after my next visit, in 4-6 weeks. That is contingent on my losing the remaining weight to get down to my upper weight limit. I am now on day 11 of a physician supervised liquid diet. In the first 11 days I have now lost 12 pounds and I have another 12 left to go. So, I probably won't be able to eat the lunch they provide at the symposium!!! lol They will have oxygen available for those that need it. I remember they had it last year also and it was a great help, being able to refill my Helios Marathon. Steve aka...Knip UIP/IPF 9/07 VATS 12/07 57 Plymouth, NH > > Hi Nan, > > I just got back home from my 48 week checkup with Dr. Zibrak this afternoon > and he said they are expecting about 150 for the symposium. My wife Barbara > and I will be attending (I'll be presenting) and my youngest son Greg and > his wife Patti will be attending too. I'm not sure who else in the Breathe > Support Group will be there. > > > > Ken Baker UIP/IPF 12/05 New Hampshire > > > > _____ > > From: Breathe-Support > [mailto:Breathe-Support ] On Behalf Of truromntc > Sent: Monday, August 31, 2009 1:42 PM > To: Breathe-Support > Subject: PF synposium > > > > > > I'm getting excited. The symposium is coming up soon. I just booked my > transportation to get there. It's in Boston on the 12th of Sept. > I mentioned it to my uncle. He's a RT in upstate N.Y. He said he's going to > try and switch shifts with someone and come down. I hope he can. It'll be > nice spending some time with him and going to the symposium together. > Will anyone else be coming?? I know there are a few people in N.H. I'd love > to meet some people. > Nan 49, MA > List started '82 > ILD '04 > PF '08 > Asthma '09 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2009 Report Share Posted August 31, 2009 Hi Ken, Yes, I saw that you were going to be presenting. I'll be sure to introduce myself. Unfortunately, my uncle can't make it. But, he wants me to get as much info as possible. Being in the pulmopnary field, he's very interested. Nan 49, MA List started '84 ILD '04 PF '08 Asthma '09 > > Hi Nan, > > I just got back home from my 48 week checkup with Dr. Zibrak this afternoon > and he said they are expecting about 150 for the symposium. My wife Barbara > and I will be attending (I'll be presenting) and my youngest son Greg and > his wife Patti will be attending too. I'm not sure who else in the Breathe > Support Group will be there. > > > > Ken Baker UIP/IPF 12/05 New Hampshire > > > > _____ > > From: Breathe-Support > [mailto:Breathe-Support ] On Behalf Of truromntc > Sent: Monday, August 31, 2009 1:42 PM > To: Breathe-Support > Subject: PF synposium > > > > > > I'm getting excited. The symposium is coming up soon. I just booked my > transportation to get there. It's in Boston on the 12th of Sept. > I mentioned it to my uncle. He's a RT in upstate N.Y. He said he's going to > try and switch shifts with someone and come down. I hope he can. It'll be > nice spending some time with him and going to the symposium together. > Will anyone else be coming?? I know there are a few people in N.H. I'd love > to meet some people. > Nan 49, MA > List started '82 > ILD '04 > PF '08 > Asthma '09 > Quote Link to comment Share on other sites More sharing options...
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