Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Hi there from Toronto. This is my first post on this great forum, and I am looking to get some advice and information from people going through the same hell like me.. My Dad who is 66, was diagnosed with colon cancer in March 2005. He took 5 weeks of radiation with chemo in the same time before his colon surgery. I do not know what the chemo was, but he had a pump with if for 5 weeks. He went through surgery on May 30, tumor (size of orange) was removed, 2 lymph nodes were affected. He ended with temporary colonoscopy bag. After surgery his doctor recommended chemo. He took 5 injections of 5FU for 5 days, 2 weeks break and again. 5 cycles. After 4th cycle he started to feel some stomach discomfort and pain in a lower left part of abdomen. After checking with his doctor this was blamed on chemo side effects. The same happened after 5th cycle, this time doctor ordered CT Scan. The news was bad. Cancer has spread to his abdomen area and lungs even though he was on 5FU chemo. It was discovered that his pain is due to obstruction in abdomen area,( small intestine gets tangled, twisted and temporarily blocked causing pain.) This happens every 2-3 days. He was given 4 to 12 months (this was 2 weeks ago)with possible total blockage if 2nd line of chemo does not work, He started CPT-11 last Friday (Nov 11), no side effect at all in first 48 hours, but in the last couple of days he is having cramps in his abdomen area. They are coming in waves. Before the pain was coming more less from one spot, now its all over his abdomen. He is also taking stool softener to prevent blockages I believe it is Domperidone. I could not reach our Doctor today ( Dr. Hedley from Princess Margaret Hosp) to ask if this is maybe due to chemo side effects, or maybe something more worrisome. Dr said, that my dad should see some improvement in about week if CPT-11 works (less obstruction due to tumor shrinkage) which is in 2 days. We scare to death , as so far there is no improvement. If there is no response to CPT-11 there is not too much he can try he said. My dad is on strict diet, nothing solid, everything blended, baby food etc, he is passing some stuff to his waste bag, but pain is still there. Are these cramps he is having possible delayed side effects? Dr said the he will take another CT Scan to see if CPT-11 works in 9 weeks. Is it normal? We are also exploring non conventional treatments. Has anyone heard about ATP treatment, auto-Sanguis Stair Case Dilution therapy, Wharton's jelly or Stabilized Oxygen?? Would some suggest another GI oncologist in Toronto area for a second opinion? Any input will be greatly appreciated. Many thanks. ...sorry for my English Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 17, 2005 Report Share Posted November 17, 2005 Hello , Sorry your dad is going through so much. I do not have any answers for you. Someone here may be able to help you with some answers. Just wanted you to know I have added your dad to my prayers. Ingrid > > Hi there from Toronto. This is my first post on this great forum, > and I am looking to get some advice and information from people > going through the same hell like me.. > > My Dad who is 66, was diagnosed with colon cancer in March 2005. He > took 5 weeks of radiation with chemo in the same time before his > colon surgery. I do not know what the chemo was, but he had a pump > with if for 5 weeks. He went through surgery on May 30, tumor (size > of orange) was removed, 2 lymph nodes were affected. He ended with > temporary colonoscopy bag. After surgery his doctor recommended > chemo. He took 5 injections of 5FU for 5 days, 2 weeks break and > again. 5 cycles. After 4th cycle he started to feel some stomach > discomfort and pain in a lower left part of abdomen. After checking > with his doctor this was blamed on chemo side effects. The same > happened after 5th cycle, this time doctor ordered CT Scan. The news > was bad. Cancer has spread to his abdomen area and lungs even though > he was on 5FU chemo. It was discovered that his pain is due to > obstruction in abdomen area,( small intestine gets tangled, twisted > and temporarily blocked causing pain.) This happens every 2-3 days. > He was given 4 to 12 months (this was 2 weeks ago)with possible > total blockage if 2nd line of chemo does not work, He started CPT- 11 > last Friday (Nov 11), no side effect at all in first 48 hours, but > in the last couple of days he is having cramps in his abdomen area. > They are coming in waves. Before the pain was coming more less from > one spot, now its all over his abdomen. He is also taking stool > softener to prevent blockages I believe it is Domperidone. I could > not reach our Doctor today ( Dr. Hedley from Princess Margaret Hosp) > to ask if this is maybe due to chemo side effects, or maybe > something more worrisome. Dr said, that my dad should see some > improvement in about week if CPT-11 works (less obstruction due to > tumor shrinkage) which is in 2 days. We scare to death , as so far > there is no improvement. If there is no response to CPT-11 there is > not too much he can try he said. My dad is on strict diet, nothing > solid, everything blended, baby food etc, he is passing some stuff > to his waste bag, but pain is still there. Are these cramps he is > having possible delayed side effects? Dr said the he will take > another CT Scan to see if CPT-11 works in 9 weeks. Is it normal? We > are also exploring non conventional treatments. Has anyone heard > about ATP treatment, auto-Sanguis Stair Case Dilution therapy, > Wharton's jelly or Stabilized Oxygen?? Would some suggest another GI > oncologist in Toronto area for a second opinion? Any input will be > greatly appreciated. Many thanks. ...sorry for my English > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 Hi Cliff, Thank you for that information, It would appear that those recent cramps were from a chemo (CPT-11). It seems that they slow down now (9 th day after infusion) after a couple of bad days, and he can manage it with a pain killer. He is very weak though. I know, before chemo cramps were coming in waves, he said they were different, and we know that cramps were due to some blockage. In the last couple of days he did not notice any blockage, but the cramps were there. He also said that they are very painful. Once again thank you, and I wish you all the best as well. > > > > Hi there from Toronto. This is my first post on this great forum, > > and I am looking to get some advice and information from people > > going through the same hell like me.. > > > > My Dad who is 66, was diagnosed with colon cancer in March 2005. He > > took 5 weeks of radiation with chemo in the same time before his > > colon surgery. I do not know what the chemo was, but he had a pump > > with if for 5 weeks. He went through surgery on May 30, tumor (size > > of orange) was removed, 2 lymph nodes were affected. He ended with > > temporary colonoscopy bag. After surgery his doctor recommended > > chemo. He took 5 injections of 5FU for 5 days, 2 weeks break and > > again. 5 cycles. After 4th cycle he started to feel some stomach > > discomfort and pain in a lower left part of abdomen. After checking > > with his doctor this was blamed on chemo side effects. The same > > happened after 5th cycle, this time doctor ordered CT Scan. The > news > > was bad. Cancer has spread to his abdomen area and lungs even > though > > he was on 5FU chemo. It was discovered that his pain is due to > > obstruction in abdomen area,( small intestine gets tangled, twisted > > and temporarily blocked causing pain.) This happens every 2-3 days. > > He was given 4 to 12 months (this was 2 weeks ago)with possible > > total blockage if 2nd line of chemo does not work, He started CPT- > 11 > > last Friday (Nov 11), no side effect at all in first 48 hours, but > > in the last couple of days he is having cramps in his abdomen area. > > They are coming in waves. Before the pain was coming more less from > > one spot, now its all over his abdomen. He is also taking stool > > softener to prevent blockages I believe it is Domperidone. I could > > not reach our Doctor today ( Dr. Hedley from Princess Margaret > Hosp) > > to ask if this is maybe due to chemo side effects, or maybe > > something more worrisome. Dr said, that my dad should see some > > improvement in about week if CPT-11 works (less obstruction due to > > tumor shrinkage) which is in 2 days. We scare to death , as so far > > there is no improvement. If there is no response to CPT-11 there is > > not too much he can try he said. My dad is on strict diet, nothing > > solid, everything blended, baby food etc, he is passing some stuff > > to his waste bag, but pain is still there. Are these cramps he is > > having possible delayed side effects? Dr said the he will take > > another CT Scan to see if CPT-11 works in 9 weeks. Is it normal? We > > are also exploring non conventional treatments. Has anyone heard > > about ATP treatment, auto-Sanguis Stair Case Dilution therapy, > > Wharton's jelly or Stabilized Oxygen?? Would some suggest another > GI > > oncologist in Toronto area for a second opinion? Any input will be > > greatly appreciated. Many thanks. ...sorry for my English > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 Hi Len, Than you for your information, sorry to hear that after 8 years it came back. My dad wasn't as lucky, he has not even finished his post surgery chemo with 5FU and tumor came back very aggressively. Today, he feels better, cramps stopped, he can manage now without pain killer. It would appear that were chemo related, but they came late in 5,6 and 7th day after infusion. He did notine any blockage in last few days, and he said crapms he had after chemo were somehow different that before due to blockage. We will so what tomorror brings. If he does not respond well to CPT-11, I am not even sure if avastin and oxaliplatin are even available in Canada. I wish you all the best as well, be strong > > > --------------------------------- > Hi there from Toronto. This is my first post on this > great forum, > and I am looking to get some advice and information > from people > going through the same hell like me.. > > My Dad who is 66, was diagnosed with colon cancer in > March 2005. He > took 5 weeks of radiation with chemo in the same time > before his > colon surgery. I do not know what the chemo was, but > he had a pump > with if for 5 weeks. He went through surgery on May > 30, tumor (size > of orange) was removed, 2 lymph nodes were affected. > He ended with > temporary colonoscopy bag. After surgery his doctor > recommended > chemo. He took 5 injections of 5FU for 5 days, 2 weeks > break and > again. 5 cycles. After 4th cycle he started to feel > some stomach > discomfort and pain in a lower left part of abdomen. > After checking > with his doctor this was blamed on chemo side effects. > The same > happened after 5th cycle, this time doctor ordered CT > Scan. The news > was bad. Cancer has spread to his abdomen area and > lungs even though > he was on 5FU chemo. It was discovered that his pain > is due to > obstruction in abdomen area,( small intestine gets > tangled, twisted > and temporarily blocked causing pain.) This happens > every 2-3 days. > He was given 4 to 12 months (this was 2 weeks ago)with > possible > total blockage if 2nd line of chemo does not work, He > started CPT-11 > last Friday (Nov 11), no side effect at all in first > 48 hours, but > in the last couple of days he is having cramps in his > abdomen area. > They are coming in waves. Before the pain was coming > more less from > one spot, now its all over his abdomen. He is also > taking stool > softener to prevent blockages I believe it is > Domperidone. I could > not reach our Doctor today ( Dr. Hedley from Princess > Margaret Hosp) > to ask if this is maybe due to chemo side effects, or > maybe > something more worrisome. Dr said, that my dad should > see some > improvement in about week if CPT-11 works (less > obstruction due to > tumor shrinkage) which is in 2 days. We scare to death > , as so far > there is no improvement. If there is no response to > CPT-11 there is > not too much he can try he said. My dad is on strict > diet, nothing > solid, everything blended, baby food etc, he is > passing some stuff > to his waste bag, but pain is still there. Are these > cramps he is > having possible delayed side effects? Dr said the he > will take > another CT Scan to see if CPT-11 works in 9 weeks. Is > it normal? We > are also exploring non conventional treatments. Has > anyone heard > about ATP treatment, auto-Sanguis Stair Case Dilution > therapy, > Wharton's jelly or Stabilized Oxygen?? Would some > suggest another GI > oncologist in Toronto area for a second opinion? Any > input will be > greatly appreciated. Many thanks. ...sorry for > my English > > > > > > For an an extensive collection of colon cancer related > links go to > http://groups.yahoo.com/group/colon_cancer_support/links > or > http://ourworld.compuserve.com/homepages/suthercon/ > > yahoo.com/group/colon_cancer_support/links or > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 Hi Ingrid, Thank you for you prayers. All the best to you too! > > > > Hi there from Toronto. This is my first post on this great forum, > > and I am looking to get some advice and information from people > > going through the same hell like me.. > > > > My Dad who is 66, was diagnosed with colon cancer in March 2005. He > > took 5 weeks of radiation with chemo in the same time before his > > colon surgery. I do not know what the chemo was, but he had a pump > > with if for 5 weeks. He went through surgery on May 30, tumor (size > > of orange) was removed, 2 lymph nodes were affected. He ended with > > temporary colonoscopy bag. After surgery his doctor recommended > > chemo. He took 5 injections of 5FU for 5 days, 2 weeks break and > > again. 5 cycles. After 4th cycle he started to feel some stomach > > discomfort and pain in a lower left part of abdomen. After checking > > with his doctor this was blamed on chemo side effects. The same > > happened after 5th cycle, this time doctor ordered CT Scan. The > news > > was bad. Cancer has spread to his abdomen area and lungs even > though > > he was on 5FU chemo. It was discovered that his pain is due to > > obstruction in abdomen area,( small intestine gets tangled, twisted > > and temporarily blocked causing pain.) This happens every 2-3 days. > > He was given 4 to 12 months (this was 2 weeks ago)with possible > > total blockage if 2nd line of chemo does not work, He started CPT- > 11 > > last Friday (Nov 11), no side effect at all in first 48 hours, but > > in the last couple of days he is having cramps in his abdomen area. > > They are coming in waves. Before the pain was coming more less from > > one spot, now its all over his abdomen. He is also taking stool > > softener to prevent blockages I believe it is Domperidone. I could > > not reach our Doctor today ( Dr. Hedley from Princess Margaret > Hosp) > > to ask if this is maybe due to chemo side effects, or maybe > > something more worrisome. Dr said, that my dad should see some > > improvement in about week if CPT-11 works (less obstruction due to > > tumor shrinkage) which is in 2 days. We scare to death , as so far > > there is no improvement. If there is no response to CPT-11 there is > > not too much he can try he said. My dad is on strict diet, nothing > > solid, everything blended, baby food etc, he is passing some stuff > > to his waste bag, but pain is still there. Are these cramps he is > > having possible delayed side effects? Dr said the he will take > > another CT Scan to see if CPT-11 works in 9 weeks. Is it normal? We > > are also exploring non conventional treatments. Has anyone heard > > about ATP treatment, auto-Sanguis Stair Case Dilution therapy, > > Wharton's jelly or Stabilized Oxygen?? Would some suggest another > GI > > oncologist in Toronto area for a second opinion? Any input will be > > greatly appreciated. Many thanks. ...sorry for my English > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2005 Report Share Posted November 20, 2005 Hi Deb, Thank you far that info. All the best > Hi there from Toronto. This is my first post on this great forum, > and I am looking to get some advice and information from people > going through the same hell like me.. > > My Dad who is 66, was diagnosed with colon cancer in March 2005. He > took 5 weeks of radiation with chemo in the same time before his > colon surgery. I do not know what the chemo was, but he had a pump > with if for 5 weeks. He went through surgery on May 30, tumor (size > of orange) was removed, 2 lymph nodes were affected. He ended with > temporary colonoscopy bag. After surgery his doctor recommended > chemo. He took 5 injections of 5FU for 5 days, 2 weeks break and > again. 5 cycles. After 4th cycle he started to feel some stomach > discomfort and pain in a lower left part of abdomen. After checking > with his doctor this was blamed on chemo side effects. The same > happened after 5th cycle, this time doctor ordered CT Scan. The news > was bad. Cancer has spread to his abdomen area and lungs even though > he was on 5FU chemo. It was discovered that his pain is due to > obstruction in abdomen area,( small intestine gets tangled, twisted > and temporarily blocked causing pain.) This happens every 2-3 days. > He was given 4 to 12 months (this was 2 weeks ago)with possible > total blockage if 2nd line of chemo does not work, He started CPT- 11 > last Friday (Nov 11), no side effect at all in first 48 hours, but > in the last couple of days he is having cramps in his abdomen area. > They are coming in waves. Before the pain was coming more less from > one spot, now its all over his abdomen. He is also taking stool > softener to prevent blockages I believe it is Domperidone. I could > not reach our Doctor today ( Dr. Hedley from Princess Margaret Hosp) > to ask if this is maybe due to chemo side effects, or maybe > something more worrisome. Dr said, that my dad should see some > improvement in about week if CPT-11 works (less obstruction due to > tumor shrinkage) which is in 2 days. We scare to death , as so far > there is no improvement. If there is no response to CPT-11 there is > not too much he can try he said. My dad is on strict diet, nothing > solid, everything blended, baby food etc, he is passing some stuff > to his waste bag, but pain is still there. Are these cramps he is > having possible delayed side effects? Dr said the he will take > another CT Scan to see if CPT-11 works in 9 weeks. Is it normal? We > are also exploring non conventional treatments. Has anyone heard > about ATP treatment, auto-Sanguis Stair Case Dilution therapy, > Wharton's jelly or Stabilized Oxygen?? Would some suggest another GI > oncologist in Toronto area for a second opinion? Any input will be > greatly appreciated. Many thanks. ...sorry for my English > > --------------------------------- > Yahoo! FareChase - Search multiple travel sites in one click. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 21, 2005 Report Share Posted November 21, 2005 , I am glad that your dad is feeling better today. The chemo sometimes can caue cramping since the intestinal lining gets irritated. You have two weeks till the next chemo. Make sure he drinks a lot of fluids to help flush the chemo chemicals and to keep him hydrated. This is very-very important. Let him eat whatever he can tolerate. Try to get him to eat high calorie meals. Small meals and often are better then one big meal and better tolerated. Prayers are being sent for him. Ingrid > > > > > > --------------------------------- > > Hi there from Toronto. This is my first post on this > > great forum, > > and I am looking to get some advice and information > > from people > > going through the same hell like me.. > > > > My Dad who is 66, was diagnosed with colon cancer in > > March 2005. He > > took 5 weeks of radiation with chemo in the same time > > before his > > colon surgery. I do not know what the chemo was, but > > he had a pump > > with if for 5 weeks. He went through surgery on May > > 30, tumor (size > > of orange) was removed, 2 lymph nodes were affected. > > He ended with > > temporary colonoscopy bag. After surgery his doctor > > recommended > > chemo. He took 5 injections of 5FU for 5 days, 2 weeks > > break and > > again. 5 cycles. After 4th cycle he started to feel > > some stomach > > discomfort and pain in a lower left part of abdomen. > > After checking > > with his doctor this was blamed on chemo side effects. > > The same > > happened after 5th cycle, this time doctor ordered CT > > Scan. The news > > was bad. Cancer has spread to his abdomen area and > > lungs even though > > he was on 5FU chemo. It was discovered that his pain > > is due to > > obstruction in abdomen area,( small intestine gets > > tangled, twisted > > and temporarily blocked causing pain.) This happens > > every 2-3 days. > > He was given 4 to 12 months (this was 2 weeks ago)with > > possible > > total blockage if 2nd line of chemo does not work, He > > started CPT-11 > > last Friday (Nov 11), no side effect at all in first > > 48 hours, but > > in the last couple of days he is having cramps in his > > abdomen area. > > They are coming in waves. Before the pain was coming > > more less from > > one spot, now its all over his abdomen. He is also > > taking stool > > softener to prevent blockages I believe it is > > Domperidone. I could > > not reach our Doctor today ( Dr. Hedley from Princess > > Margaret Hosp) > > to ask if this is maybe due to chemo side effects, or > > maybe > > something more worrisome. Dr said, that my dad should > > see some > > improvement in about week if CPT-11 works (less > > obstruction due to > > tumor shrinkage) which is in 2 days. We scare to death > > , as so far > > there is no improvement. If there is no response to > > CPT-11 there is > > not too much he can try he said. My dad is on strict > > diet, nothing > > solid, everything blended, baby food etc, he is > > passing some stuff > > to his waste bag, but pain is still there. Are these > > cramps he is > > having possible delayed side effects? Dr said the he > > will take > > another CT Scan to see if CPT-11 works in 9 weeks. Is > > it normal? We > > are also exploring non conventional treatments. Has > > anyone heard > > about ATP treatment, auto-Sanguis Stair Case Dilution > > therapy, > > Wharton's jelly or Stabilized Oxygen?? Would some > > suggest another GI > > oncologist in Toronto area for a second opinion? Any > > input will be > > greatly appreciated. Many thanks. ...sorry for > > my English > > > > > > > > > > > > For an an extensive collection of colon cancer related > > links go to > > http://groups.yahoo.com/group/colon_cancer_support/links > > or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > yahoo.com/group/colon_cancer_support/links or > > http://ourworld.compuserve.com/homepages/suthercon/ > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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