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Re: Cystinuria

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---Thanks for the info .

Do you think it would be OK to email Andy with the test results

attached? They are very compicated and better read straight off the

paper. There was a lot of important information obtained from my tests

and it seems more than most of us here can understand. Do you think

Andy would mind if I did this?

In frequent-dose-chelation , " "

wrote:

>

>

> >

> > Does anyone know much about cystinuria?

>

>

> I don't know enough about it to be very helpful. From what I read, it

> is a genetic problem where cystine doesn't get absorbed very well and

> is concentrated in the urine.

>

> (Note that cystine is different from cysteine. Cysteine is the one

> that has readily available thiols that are problematic)

>

>

>

> > I have this according to my

> > Urine amino acid testing.

> >

> > I understand that urine AA testing isn't recomended here but is it

> > really OK to ignore this result?

>

>

> No.

>

> The fact that you are not absorbing cystine is important information.

>

> I could only guess about what to do (with diet and supplements to try

> to increase absorption of amino acids).

>

> Andy would be the one to ask. You could post the test results

> (include everything, numbers, normal ranges, units, anything at all

> that is on the paper), and send the post number to Andy. Include the

> plasma tests too.

>

>

>

>

>

> I had this done as well as plasma

> > testing because it was part of a package of tests.

> >

> >

> >

>

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