Re: New Best Friend

[Guest guest]

Joann

A couple more questions. Do you have an oximeter? If not, please get

one.

Second, you mention forgetting to put it on in the morning. I can't

imagine you need it during the day but not at night. Have you had an

overnight oximeter check done? If not, request one immediately.

Everyone's sats drop during sleep and so for a PF'er its normal that

they would need oxygen during sleep. My first test after diagnosis, I

was dropping below 90% over 25% of the time. Now, this is a person who

could lay in bed at that time awake and be at 98-99% after laying there

a while.

>

> I just started on 02 2 weeks ago. I feel soo much better that I call

it my New Best Friend. Right now my Dr. is still trying to find out how

much 02 I need and they are still adjusting it. I started on 2 lpm

w/exertion, now it has been raised to 4 lpm w/exertion. feel so much

beter now, I have more energy, I'm not so tired anymore. Now when I go

to Pulmonary Rehab my sats stay in the 90's.

>

> I want to thank everyone of you who suggested I call my Dr. myself

instead of waiting until my PR was over and they sent the report to my

Dr. I still have 2 weeks of PR yet, this means I got a 4 week jump on

them. THANK YOU.

>

> I still have the problem that I forget to put my 02 on in he morning.

I will get up in the morning an start doing things around the house and

realize that I'm having trouble breathing then I will remember my 02.

Sometimes I even go away from the house and forget to take it, then I

have to go home and get it. Soon, hopefully, I will remember it all the

time. Did anyone else have this problem when they were on 02 w/exertion

only?

> Have a nice day everyone. Me and my Best Friend are off for the day.

>

> Jo Ann 53 MI UIP 9/07

>

[Guest guest]

joann

i put myself on o2 all waking day when i felt like i needed it

when i told my doc, she told me that i also need it at night

something about shallow breathing at night

now, thanks to meds, i am on o2 with exertion and at night

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: New Best FriendTo: Breathe-Support Date: Wednesday, July 22, 2009, 9:13 AM

I just started on 02 2 weeks ago. I feel soo much better that I call it my New Best Friend. Right now my Dr. is still trying to find out how much 02 I need and they are still adjusting it. I started on 2 lpm w/exertion, now it has been raised to 4 lpm w/exertion. feel so much beter now, I have more energy, I'm not so tired anymore. Now when I go to Pulmonary Rehab my sats stay in the 90's.I want to thank everyone of you who suggested I call my Dr. myself instead of waiting until my PR was over and they sent the report to my Dr. I still have 2 weeks of PR yet, this means I got a 4 week jump on them. THANK YOU. I still have the problem that I forget to put my 02 on in he morning. I will get up in the morning an start doing things around the house and realize that I'm having trouble breathing then I will remember my 02. Sometimes I even go away from the house and forget to take it, then I have to go home and get it. Soon, hopefully, I

will remember it all the time. Did anyone else have this problem when they were on 02 w/exertion only? Have a nice day everyone. Me and my Best Friend are off for the day.Jo Ann 53 MI UIP 9/07

[Guest guest]

i have put the canula on my face and forgot to turn on the concentrator and vice versa

i have taken off the canula and forgot to turn off the concentrator

glad i am not the only one

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: New Best FriendTo: Breathe-Support Date: Wednesday, July 22, 2009, 10:45 AM

Jo Ann,

Such good news!! I'm so happy that you are finding such a big difference on the oxygen. It feels like a miracle doesn't it? But if you think about it what we were doing before we got the oxygen was like trying to get our cars to run without gasoline. A car needs fuel to run and humans need oxygen to live. Since our lungs can't process enough from the atmosphere we need supplemental.

And yes I've left the house without it, you are not the only one. I've actually gotten in the car and driven all the way to the store before I realized my mistake. This happened several times in the beginning, not so much now. Although I have tried to leave the house still attached to my concentrator. Not too bright huh?

I'll also echo what the others have said about using the O2 when you sleep. If you need it during the day, it's very likely you need it at night. Ask your doctor for an overnight oximeter and that will tell the tale for sure.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Jo Ann Barrett <joann.butterflies@ att.net>To: Breathe-Support@ yahoogroups. comSent: Wednesday, July 22, 2009 9:13:35 AMSubject: New Best Friend

I just started on 02 2 weeks ago. I feel soo much better that I call it my New Best Friend. Right now my Dr. is still trying to find out how much 02 I need and they are still adjusting it. I started on 2 lpm w/exertion, now it has been raised to 4 lpm w/exertion. feel so much beter now, I have more energy, I'm not so tired anymore. Now when I go to Pulmonary Rehab my sats stay in the 90's.I want to thank everyone of you who suggested I call my Dr. myself instead of waiting until my PR was over and they sent the report to my Dr. I still have 2 weeks of PR yet, this means I got a 4 week jump on them. THANK YOU. I still have the problem that I forget to put my 02 on in he morning. I will get up in the morning an start doing things around the house and realize that I'm having trouble breathing then I will remember my 02. Sometimes I even go away from the house and forget to take it, then I have to go home and get it. Soon, hopefully, I

will remember it all the time. Did anyone else have this problem when they were on 02 w/exertion only? Have a nice day everyone. Me and my Best Friend are off for the day.Jo Ann 53 MI UIP 9/07

[Guest guest]

I'm laughing out here in Oregon! I've done both of these things!

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

New Best Friend

I just started on 02 2 weeks ago. I feel soo much better that I call it my New Best Friend. Right now my Dr. is still trying to find out how much 02 I need and they are still adjusting it. I started on 2 lpm w/exertion, now it has been raised to 4 lpm w/exertion. feel so much beter now, I have more energy, I'm not so tired anymore. Now when I go to Pulmonary Rehab my sats stay in the 90's.I want to thank everyone of you who suggested I call my Dr. myself instead of waiting until my PR was over and they sent the report to my Dr. I still have 2 weeks of PR yet, this means I got a 4 week jump on them. THANK YOU. I still have the problem that I forget to put my 02 on in he morning. I will get up in the morning an start doing things around the house and realize that I'm having trouble breathing then I will remember my 02. Sometimes I even go away from the house and forget to take it, then I have to go home and get it. Soon, hopefully, I will remember it all the time. Did anyone else have this problem when they were on 02 w/exertion only? Have a nice day everyone. Me and my Best Friend are off for the day.Jo Ann 53 MI UIP 9/07

[Guest guest]

why not ask them to do the pulse ox test and have you wear it overnight and

during the day. just a thought

[Guest guest]

Jerry.

Thanks for the advice- will bring this up at dr. visit about an oximeter. I

guess I'm a little hyper about all this and should relax a little.

> > >

> > > I just started on 02 2 weeks ago. I feel soo much better that I call it my

New Best Friend. Right now my Dr. is still trying to find out how much 02 I need

and they are still adjusting it. I started on 2 lpm w/exertion, now it has been

raised to 4 lpm w/exertion. feel so much beter now, I have more energy, I'm not

so tired anymore. Now when I go to Pulmonary Rehab my sats stay in the 90's.

> > >

> > > I want to thank everyone of you who suggested I call my Dr. myself instead

of waiting until my PR was over and they sent the report to my Dr. I still have

2 weeks of PR yet, this means I got a 4 week jump on them. THANK YOU.

> > >

> > > I still have the problem that I forget to put my 02 on in he morning. I

will get up in the morning an start doing things around the house and realize

that I'm having trouble breathing then I will remember my 02. Sometimes I even

go away from the house and forget to take it, then I have to go home and get it.

Soon, hopefully, I will remember it all the time. Did anyone else have this

problem when they were on 02 w/exertion only?

> > > Have a nice day everyone. Me and my Best Friend are off for the day.

> > >

> > > Jo Ann 53 MI UIP 9/07

> > >

> >

> > Thank You again everyone. I was Dx in Aug. 08 with Sleep Apnea. I have a

CPAP machine. I asked my Dr if I should be using 02 at night also and they told

me No. Once again I will take your advice and call my Dr. tommorrow and ask

again if I should be using 02 at night with my CPAP.

> > Oh how I wish that all doctors would get with the same program and treat

everyone the same so that we wouldn't have to tell our doctors when we need

something, they should know, they are the ones that went to school to become a

doctor.

> > Bruce; no I don't have an oximeter. I had one but my Granddaughters bit off

the button. I used to use it and I would tell my Dr how low my sats were

dropping and he always said that wasn't possible because they weren't that low

when I was in the office. I kind of quit using it because he told me it probably

wasn't right. I have since proven to him that it was right. I am trying to buy

another one.

> >

> > Could someone please tell me how to set up my signature so that it comes up

automately so I don't have to type it everytime I post.

> >

> > Jo Ann 53 MI UIP 9/07

> >

>