Just made a photo album

[Guest guest]

Wanted to share with you my family I dont take pictures of myself but had this

one a friend took...

Yes that predisone glow

merry

[Guest guest]

What adorable babies...You too!Dyane Phoenix IPF 02>> Wanted to share with you my family I dont take pictures of myself but had this one a friend took...> > Yes that predisone glow> > merry>

[Guest guest]

Thank you. They are my life savers. Brittany the mama has saved my live at

least three times and they all know when I stop breathing to go get dad...now to

teach them how to dial 911.

She knows sign language well did when she was growing up (she is 18 or 19 years

old now) I taught her sign language but she only rmembers sit down and out and

NO..

I was ravanious on the predisone did any of the rest of you do that? I ate

almost an entire ten inch chicken pot pie I had made that usually lasts us for

several meals (freeze portions and eat small fresh) my poor husband only got a

very very small piece of it...

hugs and blessings and thank you all for making me feel welcome and sharing all

that you have learned.

merry

[Guest guest]

Hello Barbara,

40 mg. seems like a high dose to start off with - did they say why? Has there been a change in your condition?

You mention a pulmodude at Emory in Atl. - do you travel to Emory? I live about 30 minutes from Emory - if you let me know when

you come to town I would love to meet you for lunch/dinner whatever? I could even cook at my house for you :-) might be potluck.

How did you choose Emory? Ironically, I travel to Duke Medical in Durham every three months to see my doc. They have a fantastic ILD department -.

When I first went there I was going once a month for Cytoxan infusions. That seemed to help more than anything - I was starting to feel really good, but I was

over the limit on Cytoxan and the fear of its many side effects.

Dorothy Reinecke-Fayetteville, GA (25 miles south of Atlanta)

VATS 7/05

UIP 7/05

From: Barbara McD Date: Thu, 13 Aug 2009 20:39:46 -0700 (PDT)To: <Breathe-Support >Subject: Re: Re: Just made a photo album

- just started taking this stuff on Sunday. My first follow-up appt is on Aug 18th, which will be two weeks and a day taking it. I don't know yet what tests they will do. I have been very resistant to the idea of taking prednisone, but got ganged up on by the local rheumey, the pulmodude (at Emory/Atl), my husband, and another doctor training with the pulmodude. We shall see how it goes - I really don't want to be taking it.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support Sent: Thursday, August 13, 2009 11:31:18 PMSubject: Re: Re: Just made a photo album

Hi Barbara,My first couple of weeks on prednisone gave me an increased sense of well-being, like, hey, I'm gonna be okay and I do feel like I breath better and cough less. But now as the weeks pile up, I feel like a manic-depressive person and I've also noticed a bruise or cut takes a long time to heal. No stomach problems. I also started having foot, leg, hip and finger cramping, but I started taking my multi-vitamins and extra calcium and that has improved.What's really scary is what is it doing internally that we don't know about yet? I have weekly blood tests too, to check for kidney failure, do you?

C_53_IPF_5/09Washington-the- Evergreen- state

From: Barbara McD <bamny (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 8:19:44 PMSubject: Re: Re: Just made a photo album

I've been on 40 mg of prednisone since Sunday. Feeling "better", more energetic--but edgy, slightly nauseous and have a slight headache much of the time.

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry