Re: Pulmonary rehab evaluation

[Guest guest]

Congratulations Beth

I have never been through anything like that. I am looking for a new Pulmo Doc so will see what happens next. What results from rehab can you expect or hope for?

Walt on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

Subject: Pulmonary rehab evaluationTo: Breathe-Support Date: Monday, July 6, 2009, 1:17 PM

This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL

I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.

The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilitation" . (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right?

We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

Walt,

I've never had anything like that either. I did rehab in NY and there they did a cardiac stress test, and I saw a physical therapist for a sort of range of motion evaluation. That was it. This was far more thorough.

Results? Well to start with I am hoping to kick start some weight loss. I've been feeling very stuck right where I am. Though I use the treadmill 5 days a week it feels like my metabolism has just adjusted to that and I'm not making any progress. I expect to work towards better cardiac conditioning and just generally improving my overall strength and physical condition. The whole point of pulmonary rehab is to get our bodies in the best possible shape to make use of the limited amount of oxygen our lungs can supply to us. In short I want to be challenged but in a safe environment where my medical condition is monitored.

I asked today and was told that this is the same program that pre and post transplant patients use at Duke so I'll be meeting some of those folks which should be interesting. She also told me that 'at least half' of my fellow participants will have some form of ILD which will be very different from my last experience where nearly everyone but me was a COPD patient and I was one of only 2 or 3 on oxygen.

I also asked why they do it 5 days a week 4 hours a day for a month. (Last time I went 3 times a week, 3 hours a day for 12 weeks.) I was told it's because so many people travel from elsewhere to do this program so they tried to compress it in order to make it possible for people to come, stay for a month and then go home, especially the folks who are preparing for transplant.

It should all be very interesting. I'm really looking forward to getting started.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Monday, July 6, 2009 4:29:17 PMSubject: Re: Pulmonary rehab evaluation

Congratulations Beth

I have never been through anything like that. I am looking for a new Pulmo Doc so will see what happens next. What results from rehab can you expect or hope for?

Walt on Whidbey IPF,Nsip.Uip. 06

Courage doesn't always roar. Sometimes courage is the quiet voice at the end of the day saying, "I will try again tomorrow.â€

From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Pulmonary rehab evaluationTo: Breathe-Support@ yahoogroups. comDate: Monday, July 6, 2009, 1:17 PM

This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL

I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.

The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilitation" . (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right?

We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

>

> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who explained the

program and then I had my 6 minute walk. First time ever I did a 6 minute walk

on an indoor track instead of a treadmill. I started out at 6 liters and

after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet

in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

>

> Then I did an exercise tolerence test which seemed to be very similar to a

cardiac stress test but with the added attraction of ABG's both before and

after. The fun just never ends huh? LOL

> I passed everything with flying colors and the next round of rehab that has

spaces available starts 9/9/09.

> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30.

Intense...as a matter of fact it's actually called  " Intensive

Pulmonary Rehabilitation " . (The RT's at my old pulmonary rehab program referred

to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking,

stationary bike, weight training, pool walking and educational lectures. I am

actually looking forward to it. I need a kick start in the exercise dept. I

expect it to be both tough and challenging but nothing ventured, nothing gained

right?

>

> We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like

that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory

Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on

treadmill. Then I see the Physical Therapist for one hour, 8 min. on total

gym, then 3 min of stair steps, then arm weights. That is all I do.

Today I had my 6MW test. When I first got there I was told I was having PFT's.

I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said

NO I was there for a 6MW. She finially called the DR. and found out I was

supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's.

She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90,

at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2

min for my sats to come back up to 96. She said I definately qualify for o2.

This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought

me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the

are heavy. I can't imagine being gone for 8 hrs. with these. They told me

later I could switch to something else. I guess this will be a learning

experience. I can see why some people never go anywhere. Tomorrow I go to

Pulminary Rehab, I will see how this goes. More later.

Jo Ann 53 MI UIP 9/07

>

[Guest guest]

Jo Ann - this is my first day on oxygen, too. I thought I was going to be getting a liquid oxy system, for use for exertion. Imagine my surprise when the tech showed up with a concentrator, a liquid oxy reservior tank and a portable unit. The doctor had prescribed 2 liters 24/7. I am bummed. But my sats are much better!

B

Barbara McD

IPF, Sept 08

Beautiful Western NC

Let us not become weary in doing good, for at the proper time we will reap a harvest if we do not give up. Galatians 6:9

To: Breathe-Support Sent: Monday, July 6, 2009 8:10:55 PMSubject: Re: Pulmonary rehab evaluation

>> This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.> > Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL> I passed everything with flying colors

and the next round of rehab that has spaces available starts 9/9/09.> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right? > > We'll see...by the end they'll probably be mopping me up with a dishtowel. lol> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16

weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, then arm weights. That is all I do. Today I had my 6MW test. When I first got there I was told I was having PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said NO I was there for a 6MW. She finially called the DR. and found out I was supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's. She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2 min for my sats to come back up to 96. She said I definately qualify for o2. This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the are

heavy. I can't imagine being gone for 8 hrs. with these. They told me later I could switch to something else. I guess this will be a learning experience. I can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes. More later.Jo Ann 53 MI UIP 9/07>

[Guest guest]

Just finished rehab at Duke in May.  Loved every minute of it, they are friendly, knowledgeable and you feel like you are the only person there.  The staff makes you feel confident and at the same time they keep you pushing for more.  I loved pool tues and thurs, and yes I am on o2.  they attach long cord and walk with you.  Fabulous feeling of freedom.  Wish I could have continued, however 4 weeks goes very fast.  Enjoy.  Later, IPF/NSIP 08Garner, NCSubject: Re: Pulmonary rehab evaluationTo:

Breathe-Support Date: Monday, July 6, 2009, 8:10 PM

>

> This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

>

> Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL

> I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.

> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right?

>

> We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

>  

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, then arm weights. That is all I do.

Today I had my 6MW test. When I first got there I was told I was having PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said NO I was there for a 6MW. She finially called the DR. and found out I was supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's. She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2 min for my sats to come back up to 96. She said I definately qualify for o2.

This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the are heavy. I can't imagine being gone for 8 hrs. with these. They told me later I could switch to something else. I guess this will be a learning experience. I can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes. More later.

Jo Ann 53 MI UIP 9/07

>

[Guest guest]

Beth

sounds like a great program

i like the fact that it is in the afternoon

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Pulmonary rehab evaluationTo: Breathe-Support Date: Monday, July 6, 2009, 4:17 PM

This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL

I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.

The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilitation" . (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right?

We'll see...by the end they'll probably be mopping me up with a dishtowel. lol

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

[Guest guest]

my main complaint about the pulmonary rehab i had was...

everyone else had COPD

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Pulmonary rehab evaluationTo: Breathe-Support Date: Monday, July 6, 2009, 6:30 PM

Bruce,

Believe me it's too hot even here to do anything in the way of exercise. My morning and evening strolls outside with the dog are plenty in the hottest months here. And we don't have anything like the heat that you have. My Mom lived in Fort Worth as a child and has vivid memories of the HEAT!

I chatted with the RT today about how widely the quality of pulmonary rehabs can vary across the country. In some places it seems like an afterthought tacked onto the cardiac rehab with no special accomodations for pulmonary patients. My guess would be the best programs are found in centers where lung transplants are done. Although you never know where you'll find a good one. Helen Hospital where I did my first program is excellent and they've been doing it for 17 years. Duke's had their pulmonary rehab program for 24 years I learned today.

There's also an excellent program at Watauga Medical Center up in Boone of all places. So you never know and it's always worth looking into!

How are you feeling these days? Coping with the heat?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Bruce Moreland <brucemoreland@ gmail.com>To: Breathe-Support@ yahoogroups. comSent: Monday, July 6, 2009 5:10:58 PMSubject: Re: Pulmonary rehab evaluation

BethSounds great. Makes me think....July, August...unfit to get outdoorshere. Now, I'm wishing there was a program like Duke's....well, maybenot quite as intensive. But it does sound nice and complete.>> This morning I was evaluated for pulmonary rehab at the Duke Centerfor Living-Fitness Center. I met with a respiratory therapist whoexplained the program and then I had my 6 minute walk. First time ever Idid a 6 minute walk on an indoor track instead of a treadmill. I startedout at 6 liters and after two laps, the RT upped my flow to 8 liters. Iwalked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My satsstayed in the low to mid

90's.>> Then I did an exercise tolerence test which seemed to be very similarto a cardiac stress test but with the added attraction of ABG's bothbefore and after. The fun just never ends huh? LOL> I passed everything with flying colors and the next round of rehabthat has spaces available starts 9/9/09.> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to4:30. Intense...as a matter of fact it's actually called "IntensivePulmonary Rehabilitation" . (The RT's at my old pulmonary rehab programreferred to Duke's as the 'boot camp of pulmonary rehab'.) It involveswalking, stationary bike, weight training, pool walking and educationallectures. I am actually looking forward to it. I need a kick start inthe exercise dept. I expect it to be both tough and challenging butnothing ventured, nothing gained right?>> We'll see...by the end they'll probably be mopping me up

with adishtowel. lol>> Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08>

[Guest guest]

jo ann

i agree, the metal tanks are very heavy

even the liquid o2 tanks get heavy

i put the o2 in a baby stroller when i walk the dog, go to the mall, etc

at the supermarket, or anyplace that has a shopping cart, i put the o2 in the children's seat

carrying the tanks tires me out and hurts my back

did they bring you a concentrator to use in the home?

i used to tire when taking a shower, someone on here talked about using o2 in the shower, showers are less tiring when using o2

i need o2 when doing laundry -- lots of exertion with that -- bending -- lifting

there is a lot of exertion when doing housework

the concentrator has a 50 foot tube, so i can walk around my entire house with it

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Pulmonary rehab evaluationTo: Breathe-Support Date: Monday, July 6, 2009, 8:10 PM

>> This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.> > Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL> I

passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right? > > We'll see...by the end they'll probably be mopping me up with a dishtowel. lol> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like that. I go

Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, then arm weights. That is all I do. Today I had my 6MW test. When I first got there I was told I was having PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said NO I was there for a 6MW. She finially called the DR. and found out I was supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's. She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2 min for my sats to come back up to 96. She said I definately qualify for o2. This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought me 7 tanks that each last about 3-3 1/2 hours,

they are in a backpack but the are heavy. I can't imagine being gone for 8 hrs. with these. They told me later I could switch to something else. I guess this will be a learning experience. I can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes. More later.Jo Ann 53 MI UIP 9/07>

[Guest guest]

does anyone know --

what is the longest tube you can use with the metal tanks -- m6 or c

i have been told that 7 feet is max for the helios and marathon

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Pulmonary rehab evaluationTo: Breathe-Support Date: Tuesday, July 7, 2009, 12:58 AM

Just finished rehab at Duke in May. Loved every minute of it, they are friendly, knowledgeable and you feel like you are the only person there. The staff makes you feel confident and at the same time they keep you pushing for more. I loved pool tues and thurs, and yes I am on o2. they attach long cord and walk with you. Fabulous feeling of freedom. Wish I could have continued, however 4 weeks goes very fast. Enjoy.

Later,

IPF/NSIP 08

Garner, NC

From: Jo Ann Barrett <joann.butterflies@ att.net>Subject: Re: Pulmonary rehab evaluationTo: Breathe-Support@ yahoogroups. comDate: Monday, July 6, 2009, 8:10 PM

>> This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.> > Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL> I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.> The program at Duke runs

for 4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right? > > We'll see...by the end they'll probably be mopping me up with a dishtowel. lol> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on

treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, then arm weights. That is all I do. Today I had my 6MW test. When I first got there I was told I was having PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said NO I was there for a 6MW. She finially called the DR. and found out I was supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's. She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2 min for my sats to come back up to 96. She said I definately qualify for o2. This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the are heavy. I can't imagine being gone for 8 hrs. with these. They told me later I could switch to something

else. I guess this will be a learning experience. I can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes. More later.Jo Ann 53 MI UIP 9/07>

[Guest guest]

Pink

What they say may not always be true. Now for pulse or demand use I

think longer lengths may be a problem. However, I just did a little

experiment in my family room. I took a 25 foot tube and connected it to

the top port of my Helios Marathon (the one that puts out the oxygen). I

turned the Marathon on Continuous. I then used a liter miter. I got

higher readings at all levels than were shown on the dial. So at 2, 3 ,

4 liters I not only got that level. I got more. I guess testing 50 feet

is next. I do know some rehabs using pools do use Companion 1000's with

long tubing.

Ok, Just tried 50 feet on the Marathon. I registered equal or more than

the dial was set on every setting except 6. At 6lpm on the Marathon, my

liter meter only registered a little over 5.5.

Very interesting little experiment.

> >

> > This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who

explained the program and then I had my 6 minute walk. First time ever I

did a 6 minute walk on an indoor track instead of a treadmill. I started

out at 6 liters and after two laps, the RT upped my flow to 8 liters. I

walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats

stayed in the low to mid 90's.

> >

> > Then I did an exercise tolerence test which seemed to be very

similar to a cardiac stress test but with the added attraction of ABG's

both before and after. The fun just never ends huh? LOL

> > I passed everything with flying colors and the next round of rehab

that has spaces available starts 9/9/09.

> > The program at Duke runs for 4 weeks, 5 days a week from 12:30 to

4:30. Intense...as a matter of fact it's actually called " Intensive

Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab program

referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves

walking, stationary bike, weight training, pool walking and educational

lectures. I am actually looking forward to it. I need a kick start in

the exercise dept. I expect it to be both tough and challenging but

nothing ventured, nothing gained right?

> >

> > We'll see...by the end they'll probably be mopping me up with a

dishtowel. lol

> >

> > Beth

> > Moderator

> > Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

> Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is

nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see

a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand

bike, then 15 min on treadmill. Then I see the Physical Therapist for

one hour, 8 min. on total gym, then 3 min of stair steps, then arm

weights. That is all I do.

>

> Today I had my 6MW test. When I first got there I was told I was

having PFT's. I said no I was there for a 6MW, she said no I was

scheduled for PFT's. I said NO I was there for a 6MW. She finially

called the DR. and found out I was supposed to have a 6MW sombody had

made a mistake and scheduled me for PFT's. She finially did the 6MW. I

started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85,

then I dropped every min, at 6min I was at 76. It took 2 min for my sats

to come back up to 96. She said I definately qualify for o2.

> This afternoon my o2 was delivered. I am on 2lpm with exertion. They

brought me 7 tanks that each last about 3-3 1/2 hours, they are in a

backpack but the are heavy. I can't imagine being gone for 8 hrs. with

these. They told me later I could switch to something else. I guess this

will be a learning experience. I can see why some people never go

anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes.

More later.

>

> Jo Ann 53 MI UIP 9/07

> >

>

[Guest guest]

,

I didn't realize you had done the rehab at Duke. It's great to hear that you got so much out of it. I'm really looking forward to it. The fitness center at the Center for Living is a great facility isn't it?

4 weeks will go really fast!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tuesday, July 7, 2009 12:58:47 AMSubject: Re: Re: Pulmonary rehab evaluation

Just finished rehab at Duke in May. Loved every minute of it, they are friendly, knowledgeable and you feel like you are the only person there. The staff makes you feel confident and at the same time they keep you pushing for more. I loved pool tues and thurs, and yes I am on o2. they attach long cord and walk with you. Fabulous feeling of freedom. Wish I could have continued, however 4 weeks goes very fast. Enjoy.

Later,

IPF/NSIP 08

Garner, NC

From: Jo Ann Barrett <joann.butterflies@ att.net>Subject: Re: Pulmonary rehab evaluationTo: Breathe-Support@ yahoogroups. comDate: Monday, July 6, 2009, 8:10 PM

>> This morning I was evaluated for pulmonary rehab at the Duke Center for Living-Fitness Center. I met with a respiratory therapist who explained the program and then I had my 6 minute walk. First time ever I did a 6 minute walk on an indoor track instead of a treadmill. I started out at 6 liters and after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.> > Then I did an exercise tolerence test which seemed to be very similar to a cardiac stress test but with the added attraction of ABG's both before and after. The fun just never ends huh? LOL> I passed everything with flying colors and the next round of rehab that has spaces available starts 9/9/09.> The program at Duke runs for

4 weeks, 5 days a week from 12:30 to 4:30. Intense...as a matter of fact it's actually called "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking, stationary bike, weight training, pool walking and educational lectures. I am actually looking forward to it. I need a kick start in the exercise dept. I expect it to be both tough and challenging but nothing ventured, nothing gained right? > > We'll see...by the end they'll probably be mopping me up with a dishtowel. lol> > Beth> Moderator> Fibrotic NSIP 06/06 Dermatomyositis 11/08Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on treadmill.

Then I see the Physical Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, then arm weights. That is all I do. Today I had my 6MW test. When I first got there I was told I was having PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I said NO I was there for a 6MW. She finially called the DR. and found out I was supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's. She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2 min for my sats to come back up to 96. She said I definately qualify for o2. This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the are heavy. I can't imagine being gone for 8 hrs. with these. They told me later I could switch to something else. I guess

this will be a learning experience. I can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this goes. More later.Jo Ann 53 MI UIP 9/07>

[Guest guest]

> >>

> >> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who explained the

program and then I had my 6 minute walk. First time ever I did a 6 minute walk

on an indoor track instead of a treadmill. I started out at 6 liters and

after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet

in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

> >>

> >> Then I did an exercise tolerence test which seemed to be very similar to a

cardiac stress test but with the added attraction of ABG's both before and

after. The fun just never ends huh? LOL

> >> I passed everything with flying colors and the next round of rehab that has

spaces available starts 9/9/09.

> >> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30.

Intense...as a matter of fact it's actually called  " Intensive

Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab program referred

to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking,

stationary bike, weight training, pool walking and educational lectures. I am

actually looking forward to it. I need a kick start in the exercise dept. I

expect it to be both tough and challenging but nothing ventured, nothing gained

right?

> >>

> >> We'll see...by the end they'll probably be mopping me up with a dishtowel.

lol

> >>  

> >> Beth

> >> Moderator

> >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> >

> >Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing

like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory

Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on

treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym,

then 3 min of stair steps, then arm weights. That is all I do.

> >

> >Today I had my 6MW test. When I first got there I was told I was having

PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I

said NO I was there for a 6MW. She finially called the DR. and found out I was

supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's.

She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90,

at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2

min for my sats to come back up to 96. She said I definately qualify for o2.

> >This afternoon my o2 was delivered. I am on 2lpm with exertion. They brought

me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack but the

are heavy. I can't imagine being gone for 8 hrs. with these. They told me later

I could switch to something else. I guess this will be a learning experience. I

can see why some people never go anywhere. Tomorrow I go to Pulminary Rehab, I

will see how this goes. More later.

> >

> >Jo Ann 53 MI UIP 9/07

> >>

> >

> >

>

[Guest guest]

Hello Everyone,

I am new to the group have been reading all your posts. I was diagnosed through

a lung biopsy in July 05.

I was happy to see information about Duke Medical posted today. I have been

seeing a Pulmo specialist at Duke since Aug. 07 but they never mentioned the

Rehab Program to me. I was treated with Cytoxan IV monthly for 6 months, then

quarterly for a year. I had some improvement during that time but more than

reached my limit for the drug. Now on Cellcept since Nov. 08, but seem to be

losing ground slowly. What is the goal of the Rehab Program - does it help?

Has anyone ever been evaluated for a transplant? What is the process? I am told

that is the only thing left to think about.

I live in Atlanta but there were not any specialists for ILD in the area,

although Emory Univ/hospital seems to have started one up.

I go back to Duke on Aug. 20 and am trying to get some questions, etc. ready to

see if the transplant program is the way to go. I am 66 which used to be out of

range, but because I have no other health issues they seem to think I would be

considered.

Dorothy-Fayetteville, GA

UIP-7/05

> > >>

> > >> This morning I was evaluated for pulmonary rehab at the Duke Center

for Living-Fitness Center. I met with a respiratory therapist who explained the

program and then I had my 6 minute walk. First time ever I did a 6 minute walk

on an indoor track instead of a treadmill. I started out at 6 liters and

after two laps, the RT upped my flow to 8 liters. I walked a total of 1320 feet

in 6 minutes, roughly a 1/4 mile. My sats stayed in the low to mid 90's.

> > >>

> > >> Then I did an exercise tolerence test which seemed to be very similar to

a cardiac stress test but with the added attraction of ABG's both before and

after. The fun just never ends huh? LOL

> > >> I passed everything with flying colors and the next round of rehab that

has spaces available starts 9/9/09.

> > >> The program at Duke runs for 4 weeks, 5 days a week from 12:30 to 4:30.

Intense...as a matter of fact it's actually called  " Intensive

Pulmonary Rehabilita tion " . (The RT's at my old pulmonary rehab program referred

to Duke's as the 'boot camp of pulmonary rehab'.) It involves walking,

stationary bike, weight training, pool walking and educational lectures. I am

actually looking forward to it. I need a kick start in the exercise dept. I

expect it to be both tough and challenging but nothing ventured, nothing gained

right?

> > >>

> > >> We'll see...by the end they'll probably be mopping me up with a

dishtowel. lol

> > >>  

> > >> Beth

> > >> Moderator

> > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08

> > >

> > >Wow Beth that is some Pulminary Rehab. My Pulminary Rehab is nothing

like that. I go Tues. and Thur. for 2 hours, for 16 weeks. I see a Respritory

Therapist for one hour, 15 min on NuStep and 7 min of hand bike, then 15 min on

treadmill. Then I see the Physical Therapist for one hour, 8 min. on total gym,

then 3 min of stair steps, then arm weights. That is all I do.

> > >

> > >Today I had my 6MW test. When I first got there I was told I was having

PFT's. I said no I was there for a 6MW, she said no I was scheduled for PFT's. I

said NO I was there for a 6MW. She finially called the DR. and found out I was

supposed to have a 6MW sombody had made a mistake and scheduled me for PFT's.

She finially did the 6MW. I started out a 96 at rest. At 1min I dropped to 90,

at 2 min I was at 85, then I dropped every min, at 6min I was at 76. It took 2

min for my sats to come back up to 96. She said I definately qualify for o2.

> > >This afternoon my o2 was delivered. I am on 2lpm with exertion. They

brought me 7 tanks that each last about 3-3 1/2 hours, they are in a backpack

but the are heavy. I can't imagine being gone for 8 hrs. with these. They told

me later I could switch to something else. I guess this will be a learning

experience. I can see why some people never go anywhere. Tomorrow I go to

Pulminary Rehab, I will see how this goes. More later.

> > >

> > >Jo Ann 53 MI UIP 9/07

> > >>

> > >

> > >

> >

>