Re: Clinical Trial

[Guest guest]

Merf, Here's hoping you are the

best new drug tester they've ever had!!!!

Your giving nature gives you a head start!!!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

murphy.patrick10 wrote:

Hey just want to let the group know that I go in for first round

of infusions on Thur. Sept 3. They say I will be in hospital 6-8 hrs.

First all the tests that we have all come to love, PFT, 6 min walk,

DLCO, echo, blood work, urine (steriods?ha ha),questionnaires. The

infusion will take 90 minutes. It will be one of 4 groups ; Placebo;

CNTO 888, 1mg; 5mg; 15mg. Starting to feel a bit apprehensive. My wife

is behind me all the way, thank God, but she wonders if I am doing the

right thing. I say we have to find a way to stop this thing and

experimentation is the only way. I am very fortunate that I am still

healthy enough to be able to do this and I plan on doing everything

with the biggest smile and the heartiest laugh that i can muster. I

have always been an upbeat sort of guy and this damn thing has a fight

on its hands. If I make 1 person laugh when I'm there that means I've

already won the battle, the war will take a day or two longer. Anyways

guys, I've rambled enough, every body hang tough we shall persevere.

Merf 61 IPF 05

[Guest guest]

Thank You

everyone for your support and words of encouragement.Sorry I didn't answer back

last nite but I went to bed right after posting.Jerry I'm not to sure how to

answer that because pulmodude said if I start going downhill whatever I am on

he will stop it and reassess to see which way to go.

Merf 61 IPF 05-- In Breathe-Support , " jerryb888 "

wrote:

>

> Merf,

> I will be thinking about you and I can't wait to hear all about it. Yours is

the right reason for going into trials. Is your trial study set to default to

the trail medication if your lung function falls while you are taking placebo?

The Gleevec study with which I am familiar was set up so as not to let the

control group participants decline beyond a certain percentage below their

initial testing. Unfortunately, my lung function was below acceptable limits.

Now my higher lung funtion or lack of decline has kept me out of trials I would

be interested in. Thank you for what you are doing for us, and I hope to hear

good nuew soon.

>

> Jerry/Mississippi/54/IPF/dx April 05 ---

In Breathe-Support , " murphy.patrick10 " <corpat@> wrote:

> >

> > Hey just want to let the group know that I go in for first round of

infusions on Thur. Sept 3. They say I will be in hospital 6-8 hrs. First all the

tests that we have all come to love, PFT, 6 min walk, DLCO, echo, blood work,

urine (steriods?ha ha),questionnaires. The infusion will take 90 minutes. It

will be one of 4 groups ; Placebo; CNTO 888, 1mg; 5mg; 15mg. Starting to feel a

bit apprehensive. My wife is behind me all the way, thank God, but she wonders

if I am doing the right thing. I say we have to find a way to stop this thing

and experimentation is the only way. I am very fortunate that I am still healthy

enough to be able to do this and I plan on doing everything with the biggest

smile and the heartiest laugh that i can muster. I have always been an upbeat

sort of guy and this damn thing has a fight on its hands. If I make 1 person

laugh when I'm there that means I've already won the battle, the war will take a

day or two longer. Anyways guys, I've rambled enough, every body hang tough we

shall persevere.

> > Merf 61 IPF 05

> >

>

[Guest guest]

All the best to you Merf!Thanks for volunteering.PJ in OH, 54, IPF'09, Sjogren's '95 Clinical Trial

Hey just want to let the group know that I go in for first round of infusions on Thur. Sept 3. They say I will be in hospital 6-8 hrs. First all the tests that we have all come to love, PFT, 6 min walk, DLCO, echo, blood work, urine (steriods?ha ha),questionnaires. The infusion will take 90 minutes. It will be one of 4 groups ; Placebo; CNTO 888, 1mg; 5mg; 15mg. Starting to feel a bit apprehensive. My wife is behind me all the way, thank God, but she wonders if I am doing the right thing. I say we have to find a way to stop this thing and experimentation is the only way. I am very fortunate that I am still healthy enough to be able to do this and I plan on doing everything with the biggest smile and the heartiest laugh that i can muster. I have always been an upbeat sort of guy and this damn thing has a fight on its hands. If I make 1 person laugh when I'm there that means I've already won the battle, the war will take a day or two longer. Anyways guys, I've rambled enough, every body hang tough we shall persevere.Merf 61 IPF 05

[Guest guest]

good luck Merf, keep us posted.

ken o.

To: Breathe-Support Sent: Monday, August 31, 2009 5:06:12 PMSubject: Clinical Trial

Hey just want to let the group know that I go in for first round of infusions on Thur. Sept 3. They say I will be in hospital 6-8 hrs. First all the tests that we have all come to love, PFT, 6 min walk, DLCO, echo, blood work, urine (steriods?ha ha),questionnaires. The infusion will take 90 minutes. It will be one of 4 groups ; Placebo; CNTO 888, 1mg; 5mg; 15mg. Starting to feel a bit apprehensive. My wife is behind me all the way, thank God, but she wonders if I am doing the right thing. I say we have to find a way to stop this thing and experimentation is the only way. I am very fortunate that I am still healthy enough to be able to do this and I plan on doing everything with the biggest smile and the heartiest laugh that i can muster. I have always been an upbeat sort of guy and this damn thing has a fight on its hands. If I make 1 person laugh when I'm there that means I've already won the battle, the war will take a day or two longer. Anyways

guys, I've rambled enough, every body hang tough we shall persevere.Merf 61 IPF 05