Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Joann Any pulmonary rehab that let you continue at those levels is totally incompetent. You must not continue like that. As to your doctor, I'd say pretty much the same thing. What does he think, you're making this up for what reason. Do a 6 minute walk at racing speed and show him. You need to tell him strongly and tell the rehab center strongly. If they don't react properly you need to start over with a new pulmonlogist and rehab center. Meanwhile order a new oximeter. Best $65 you can ever spend. > > I am a Lurker,have been for a year and a half, sorry I don't post but I do read almost everyday. I have learned a lot from all of you. I used to have a oximeter (my Granddaughters bit off the button to turn it on) I have UIP I am not on 02 yet. I used to check my sats and I have told my Pulmodude about my sats dropping into the 80s when walking or doing things around house. He didn't believe me because my 6mw test is in the low 90s. Well I finially got my Dr to perscribe Pulminary Rehab. My question for all of you is this, I have been going to PR for 3 weeks already, this week I did 15 min on treadmill the whole time I have the thing on my finger to check my sats and they were never over 89. Then I did 15min on the Nustep when I was done my sats were only 83, then I did the stair steps, I did 1min 40sec and dropped to 79. Should I call my Dr and tell him all of this or should I just wait until I am done with PR and have them send the report to my Dr. I would really like some help with this. > > > Jo Ann 53, UIP 9/07 > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Jo Ann, apart from you other questions, I have one. Do you now have an oximeter? If not, is it because you cannot afford one? If that is the case, I will send you one free. All you have to do is send me your full name and maiingl address and telephone number. If you do not want to reply via the support group, you can email to JMARSHALL6867@.... Jack79/IPF - UIP/dx06/05 Maine To: Breathe-Support Sent: Saturday, June 27, 2009 7:34:01 AMSubject: Help I am a Lurker,have been for a year and a half, sorry I don't post but I do read almost everyday. I have learned a lot from all of you. I used to have a oximeter (my Granddaughters bit off the button to turn it on) I have UIP I am not on 02 yet. I used to check my sats and I have told my Pulmodude about my sats dropping into the 80s when walking or doing things around house. He didn't believe me because my 6mw test is in the low 90s. Well I finially got my Dr to perscribe Pulminary Rehab. My question for all of you is this, I have been going to PR for 3 weeks already, this week I did 15 min on treadmill the whole time I have the thing on my finger to check my sats and they were never over 89. Then I did 15min on the Nustep when I was done my sats were only 83, then I did the stair steps, I did 1min 40sec and dropped to 79. Should I call my Dr and tell him all of this or should I just wait until I am done with PR and have them send the report to my Dr. I would really like some help with this.Jo Ann 53, UIP 9/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Hi Jo Ann and welcome to our board. You already know this is a good place to be. In my opinion, Yes, call your dr although I don't give him much credibility since he didn't believe you to begin with... I'm so surprised rehab didn't stop the exercise with readings like that. Talk to them too and ask about another pulmodude in the area. You have to be your own best advocate JoAnn. Yes, SPEAK UP. MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Help I am a Lurker,have been for a year and a half, sorry I don't post but I do read almost everyday. I have learned a lot from all of you. I used to have a oximeter (my Granddaughters bit off the button to turn it on) I have UIP I am not on 02 yet. I used to check my sats and I have told my Pulmodude about my sats dropping into the 80s when walking or doing things around house. He didn't believe me because my 6mw test is in the low 90s. Well I finially got my Dr to perscribe Pulminary Rehab. My question for all of you is this, I have been going to PR for 3 weeks already, this week I did 15 min on treadmill the whole time I have the thing on my finger to check my sats and they were never over 89. Then I did 15min on the Nustep when I was done my sats were only 83, then I did the stair steps, I did 1min 40sec and dropped to 79. Should I call my Dr and tell him all of this or should I just wait until I am done with PR and have them send the report to my Dr. I would really like some help with this.Jo Ann 53, UIP 9/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 27, 2009 Report Share Posted June 27, 2009 Jo Ann ... I forgot to ask you, in what State do you live, married? Family to support you? MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! HelpTo: Breathe-Support Date: Saturday, June 27, 2009, 7:34 AM I am a Lurker,have been for a year and a half, sorry I don't post but I do read almost everyday. I have learned a lot from all of you. I used to have a oximeter (my Granddaughters bit off the button to turn it on) I have UIP I am not on 02 yet. I used to check my sats and I have told my Pulmodude about my sats dropping into the 80s when walking or doing things around house. He didn't believe me because my 6mw test is in the low 90s. Well I finially got my Dr to perscribe Pulminary Rehab. My question for all of you is this, I have been going to PR for 3 weeks already, this week I did 15 min on treadmill the whole time I have the thing on my finger to check my sats and they were never over 89. Then I did 15min on the Nustep when I was done my sats were only 83, then I did the stair steps, I did 1min 40sec and dropped to 79. Should I call my Dr and tell him all of this or should I just wait until I am done with PR and have them send the report to my Dr. I would really like some help with this.Jo Ann 53, UIP 9/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 > > I am a Lurker,have been for a year and a half, sorry I don't post but I do read almost everyday. I have learned a lot from all of you. I used to have a oximeter (my Granddaughters bit off the button to turn it on) I have UIP I am not on 02 yet. I used to check my sats and I have told my Pulmodude about my sats dropping into the 80s when walking or doing things around house. He didn't believe me because my 6mw test is in the low 90s. Well I finially got my Dr to perscribe Pulminary Rehab. My question for all of you is this, I have been going to PR for 3 weeks already, this week I did 15 min on treadmill the whole time I have the thing on my finger to check my sats and they were never over 89. Then I did 15min on the Nustep when I was done my sats were only 83, then I did the stair steps, I did 1min 40sec and dropped to 79. Should I call my Dr and tell him all of this or should I just wait until I am done with PR and have them send the report to my Dr. I would really like some help with this. > > > Jo Ann 53, UIP 9/07 > Quote Link to comment Share on other sites More sharing options...
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