Re: Explanation of CT scan for chronic aspiration of stomach acid

[Guest guest]

Sher

sorry if my last post sounded sacastic, i try not to be when i write

but i have this vision of sunny looking like a giant bubble floating by

that might be the only way i get to see her

i wonder if she ever thought about performing at a comedy club

the audience would laugh so hard they would "wet their pants"

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Explanation of CT scan for chronic aspiration of stomach acidTo: Breathe-Support Date: Wednesday, June 17, 2009, 2:26 PM

Hi Everyone,I thought I'd share this with you. I e-mailed my former pulmonologist from National Jewish (Don Rollins, MD) about my current status and he replied that the chronic aspiration usually yields a different CT result so I asked what that was and here is what he wrote:Hi Peggy: Hard to explain succinctly, but chronic aspiration leads to a pattern of "ground glass" and "patchy" infiltrates, sometimes changing over months, disappearing and recurring, accompanied by chronic cough, but there is a lot of overlap in how diseases present on the CT, it is usually not "diagnostic" , rather, points in the specific direction of the diagnosis. Glad to hear you are better.The strange thing is that those words which he wrote are nearly exactly what was written on my last 3 CT scans here at UW. Hopefully I can get a copy of my very first CT scan report (done at National Jewish) and see what was said at that time. Seems that maybe I

had something else (maybe an infection or viral condition or something) that did resolve and coincidentally I also have this aspiration situation. Of course he does say that it cannot be specifically diagnosed through CT so true 'knowledge' for me will only come through biopsy which I am at the very least stalling if not refusing (at least for now). I'm still trying to learn everything I can about my specific situation. Please keep this in mind that this is only about my case. If anything sounds 'familiar' maybe you could use it as a reason to investigate your situation with your pulmonologist. Still waiting to hear about the 24 hour test. With not hearing I am wondering if something happened to the data. It would be a bummer but with the CT showing no new areas I would just stay on this treatment and try to relax and enjoy my LIFE until the next round of evaluations.Hope all is well with you all out there in the AIR,Peggy Ellis (53,

ILD, possible GERD)

[Guest guest]

Thanks for posting this information.PJ Explanation of CT scan for chronic aspiration of stomach acid

Hi Everyone,I thought I'd share this with you. I e-mailed my former pulmonologist from National Jewish (Don Rollins, MD) about my current status and he replied that the chronic aspiration usually yields a different CT result so I asked what that was and here is what he wrote:Hi Peggy: Hard to explain succinctly, but chronic aspiration leads to a pattern of "ground glass" and "patchy" infiltrates, sometimes changing over months, disappearing and recurring, accompanied by chronic cough, but there is a lot of overlap in how diseases present on the CT, it is usually not "diagnostic", rather, points in the specific direction of the diagnosis. Glad to hear you are better.The strange thing is that those words which he wrote are nearly exactly what was written on my last 3 CT scans here at UW. Hopefully I can get a copy of my very first CT scan report (done at National Jewish) and see what was said at that time. Seems that maybe I had something else (maybe an infection or viral condition or something) that did resolve and coincidentally I also have this aspiration situation. Of course he does say that it cannot be specifically diagnosed through CT so true 'knowledge' for me will only come through biopsy which I am at the very least stalling if not refusing (at least for now). I'm still trying to learn everything I can about my specific situation. Please keep this in mind that this is only about my case. If anything sounds 'familiar' maybe you could use it as a reason to investigate your situation with your pulmonologist. Still waiting to hear about the 24 hour test. With not hearing I am wondering if something happened to the data. It would be a bummer but with the CT showing no new areas I would just stay on this treatment and try to relax and enjoy my LIFE until the next round of evaluations.Hope all is well with you all out there in the AIR,Peggy Ellis (53, ILD, possible GERD)

[Guest guest]

You're very welcome. Happy to share.Peggy EHi Peggy: Hard to explain succinctly, but chronic aspiration leads to a pattern of "ground glass" and "patchy" infiltrates, sometimes changing over months, disappearing and recurring, accompanied by chronic cough, but there is a lot of overlap in how diseases present on the CT, it is usually not "diagnostic" , rather, points in the specific direction of the diagnosis. Glad to hear you are better.The strange thing is that those words which he wrote are nearly exactly what was written on my last 3 CT scans here at UW. Hopefully I can get a copy of my very first CT scan

report (done at National Jewish) and see what was said at that time. Seems that maybe I had something else (maybe an infection or viral condition or something) that did resolve and coincidentally I also have this aspiration situation. Of course he does say that it cannot be specifically diagnosed through CT so true 'knowledge' for me will only come through biopsy which I am at the very least stalling if not refusing (at least for now). I'm still trying to learn everything I can about my specific situation. Please keep this in mind that this is only about my case. If anything sounds 'familiar' maybe you could use it as a reason to investigate your situation with your pulmonologist. Still waiting to hear about the 24 hour test. With not hearing I am wondering if something happened to the data. It would be a bummer but with the CT showing no new

areas I would just stay on this treatment and try to relax and enjoy my LIFE until the next round of evaluations.Hope all is well with you all out there in the AIR,Peggy Ellis (53, ILD, possible GERD)

[Guest guest]

thanks sher

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Explanation of CT scan for chronic aspiration of stomach acidTo: Breathe-Support Date: Thursday, June 18, 2009, 5:07 PM

Pink...I didn't think anything

sarcastic... .

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Re: Explanation of CT scan for chronic aspiration of stomach acid

Sher

sorry if my last post sounded sacastic, i try not to be when i write

but i have this vision of sunny looking like a giant bubble floating by

that might be the only way i get to see her

i wonder if she ever thought about performing at a comedy club

the audience would laugh so hard they would "wet their pants"

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. orgHi Peggy: Hard to explain succinctly, but chronic aspiration leads to a pattern of "ground glass" and "patchy" infiltrates, sometimes changing over months, disappearing and recurring, accompanied by chronic cough, but there is a lot of overlap in how diseases present on the CT, it is usually not "diagnostic" , rather, points in the specific direction of the diagnosis. Glad to hear you are better.The strange thing is that those words which he wrote are nearly exactly what was written on my last 3 CT scans here at UW. Hopefully I can get a copy of my very first CT scan report (done at National Jewish) and see what was said at that time. Seems that maybe I

had something else (maybe an infection or viral condition or something) that did resolve and coincidentally I also have this aspiration situation. Of course he does say that it cannot be specifically diagnosed through CT so true 'knowledge' for me will only come through biopsy which I am at the very least stalling if not refusing (at least for now). I'm still trying to learn everything I can about my specific situation. Please keep this in mind that this is only about my case. If anything sounds 'familiar' maybe you could use it as a reason to investigate your situation with your pulmonologist. Still waiting to hear about the 24 hour test. With not hearing I am wondering if something happened to the data. It would be a bummer but with the CT showing no new areas I would just stay on this treatment and try to relax and enjoy my LIFE until the next round of evaluations.Hope all is well with you all out there in the AIR,Peggy Ellis (53,

ILD, possible GERD)