Guest guest Posted November 9, 2005 Report Share Posted November 9, 2005 Surgery 4/7/04- stage 3b with 1 poisitive node. Six months folfox 6. I keep track of medical milage for tax purposes and am almost at 11,000 miles for the year. I live in Norht Al and go to Vanderbilt for treatment. After a lot of scares this year I now have a good CT and PET and 4 consecutive good blood samples. Onc said to go away for a while . I will go back in Feb for cea and blood work. It will be great not driving to the doctor all the time. Based on current conditions Onc siad we should only be doing an annual CT now but we agreed on cea every 3 months and CT every six months. I went to Vanderbilt today and got there early --9AM - so I would have results for 11:20 appointment. CEA was below 2 again which made me glad I got there early so I would not have to wait. Onc and I discussed neuropathy. With more data the neuropathy is worse than originally thought. Latest data is 5% of people with grade 3 or 4 neuropathy and 25% with grade 1 or 2. Data originally thought improvement during first 6 months after chemo and stopped after 12 months. Latest data shows continued improvement out to 18 months after chemo. Checked cancer survivors network tonight and noted a couple of stage 4 posters -colon and liver- who were now NED . Encouraging. We need positive post to remind people it is possible to survive. Quote Link to comment Share on other sites More sharing options...
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