Re: Ronnie--Transplant evaluation

[Guest guest]

what about the lady who had the transplant in Texas? i think her name is GwynnePink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09www.transplantfund.org

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM

DorothyThe insurances choose for different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,>

Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. . com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith

you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week.. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday today!>

[Guest guest]

Joyce,

You're right of course...Gwynne. Her transplant was some time ago now. I'm not sure where she had her initial evaluation. Bruce will probably remember.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Saturday, July 25, 2009 9:50:19 AMSubject: Re: Ronnie--Transplant evaluation

what about the lady who had the transplant in Texas? i think her name is Gwynne

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: Bruce Moreland <brucemoreland@ gmail.com>Subject: Re: Transplant Evaluation!To: Breathe-Support@ yahoogroups. comDate: Wednesday, July 15, 2009, 11:16 AM

DorothyThe insurances choose for different reasons. Sometimes its because oftheir hospital contracts and, when so, thats troublesome as you may notbe able to choose the best or closest. In Jan's case, if I remembercorrectly, its a choice based on quality. Methodist Hospital in Houstonhad a period during which they considered them not to meet the standard.I do believe though that they have recovered or are on the way torecovery.JanIs there a chance down the road, you'll switch to Houston? I see theyare doing far more transplants than UTSW and while their success rate islower they are transplanting a much higher percentage of those waiting.>> Jan,>

Congrats - you must be glad this portion is complete. How long is the> process? This is going to be my next step after I see the doctor on8/20.>> I didn't realize your insurance would choose the facility that youhave to> go to. Is that because there is not a transplant hospital near you?>> I will keep you in my prayers for approval by the Committee.> Dorothy, Fayetteville, GA> UIP 7/05>> _____>> From: Breathe-Support@ yahoogroups. com> [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan> Sent: Wednesday, July 15, 2009 11:29 AM> To: Breathe-Support@ yahoogroups. . com> Subject: Transplant Evaluation!>>>>>> I have just completed (I think) testing for transplanteligibility. ..it was> very interesting and intense!>> Due to my insurance we have to go to Dallas for anything related to> Transplant. We are patients of the Heart and Lung Transplantdepartment at> UT Southwest. I can't say enough about every single employee at thehospital> and every specialist's office that we have had to visit. They are allvery> concerned about your comfort, that you do not have to wait for your> appointment and that you always have someone right there to help youfind> whatever you may need ! Even the doctors take their time and visitwith

you> until all your questions are answered. We are very impressed. They areone> of the Centers of Excellence, and we can sure see how they got there!>> Hopefully, my case will be presented to the Committee on Friday ofthis> week...if not then the next week.. It has been fun...interesting andthe> source of greater fatigue, just keeping up with the schedule...lol. ..>> I hope you all have a great Wednesday

today!>

[Guest guest]

Pink

Gwynne did go to UTSW (Dallas) for her evaluation and goes there now.

She actually had her transplant at UTSA (San ).

> >

> > Jan,

> >

> Congrats - you must be glad this portion is complete. How long is the

> > process? This is going to be my next step after I see the doctor on

> 8/20.

> >

> > I didn't realize your insurance would choose the facility that you

> have to

> > go to. Is that because there is not a transplant hospital near you?

> >

> > I will keep you in my prayers for approval by the Committee.

> > Dorothy, Fayetteville, GA

> > UIP 7/05

> >

> > _____

> >

> > From: Breathe-Support@ yahoogroups. com

> > [mailto:Breathe-Support@ yahoogroups. com] On Behalf Of Jan

> > Sent: Wednesday, July 15, 2009 11:29 AM

> > To: Breathe-Support@ yahoogroups. . com

> > Subject: Transplant Evaluation!

> >

> >

> >

> >

> >

> > I have just completed (I think) testing for transplant

> eligibility. ..it was

> > very interesting and intense!

> >

> > Due to my insurance we have to go to Dallas for anything related to

> > Transplant. We are patients of the Heart and Lung Transplant

> department at

> > UT Southwest. I can't say enough about every single employee at the

> hospital

> > and every specialist's office that we have had to visit. They are

all

> very

> > concerned about your comfort, that you do not have to wait for your

> > appointment and that you always have someone right there to help you

> find

> > whatever you may need ! Even the doctors take their time and visit

> with

> you

> > until all your questions are answered. We are very impressed. They

are

> one

> > of the Centers of Excellence, and we can sure see how they got

there!

> >

> > Hopefully, my case will be presented to the Committee on Friday of

> this

> > week...if not then the next week.. It has been fun...interesting and

> the

> > source of greater fatigue, just keeping up with the schedule...lol.

...

> >

> > I hope you all have a great Wednesday today!

> >

>