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Re: Fatigue

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Cuyler,

Am I correct in assuming you are not currently using supplemental oxygen? If that's the case and your sats fall below 90 while using the treadmill (or any other time) you should do what it takes to get your sats back up over 90. If slowing your pace will do that fine, if it means stopping and resting than that's what you do. All this should be reported to your doctor so that he can act upon it.

If you are currently using oxygen, you can do the same thing with the additional step of turning your oxygen up one liter at a time until it's set at a level where you can maintain sats over 90 during that specific activity. Again it is extremely important to report this to your doctor so that he understands what is happening when you're not sitting in front of him/her in the office. Being able to monitor your sats and share this info with your doctor is extremely helpful to them and is proactive on your own behalf.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: "Breathe-Support " <Breathe-Support >Sent: Wednesday, September 2, 2009 7:57:45 PMSubject: Fatigue

Hello all,For the past month or so, I seem to be getting fatigued on the treadmill earlier than in the past. Just don't seem to have the energy to continue. Is this one of the symptoms of low oxygen 'sats'?I placed the order for that FDA approved pulse oximeter that Beth recommended, so that should give me some numbers to work with.During exercise, if my O-2 saturation drops below 90%, should I slow down the pace or stop altogether and rest for a period? Or is it a matter of how LONG the low level continues? I assume I can wear a pulse oximeter while on the treadmill. Believe one of the other members specifically mentioned that fact.Thanks again!Cuyler

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Cuyler,

Beth gave you all the right answers. I'm taking Pulmonary Rehab. again for

the next 4 weeks. When I finshed rehab 2 years ago I followed thru at home. One

of the things I did to keep up with my 'sats'and will do this time also, is to

log them in a notebook I keep on the magazine rack of the treadmill. I track O2

sat., heart rate and any changes I make in my routine. It helps me to see the

big picture for myself and helps the doctor too (and thankfully I don't have to

rely on my memory when he asks how long ago I started having negative changes.)

Please remember that any time during exercise you begin to feel over exerted

(even when your 'sats'are normal)you should adjust to a more comfortable pace or

intensity. Exercise for us P.F.er's is to help us, not to hurt us.

Best wishes!

34 FL

IPF dx 1/06

>

> Hello all,

> For the past month or so, I seem to be getting fatigued on the treadmill

earlier than in the past. Just don't seem to have the energy to continue. Is

this one of the symptoms of low oxygen 'sats'?

>

>

> I placed the order for that FDA approved pulse oximeter that Beth

recommended, so that should give me some numbers to work with.

>

>

> During exercise, if my O-2 saturation drops below 90%, should I slow down the

pace or stop altogether and rest for a period? Or is it a matter of how LONG

the low level continues? I assume I can wear a pulse oximeter while on the

treadmill. Believe one of the other members specifically mentioned that fact.

>

>

> Thanks again!

>

> Cuyler

>

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are you using o2 while on the treadmill?

if so, you might need to increase the lpm's -- liters per minute

when you get your oximeter, you will be able to check your sat and know what to do

otherwise you should discuss this with your doctor

my oximeter is on a lanyard around my neck and i check my o2 levels several times while on the treadmill

did you take a pulmonary rehab class?

that's where i learned about the oximeter and checking Sat's while exercising

my pulmonary at Penn gave me a prescription for pulmonary rehab the second or third time that he saw me

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: FatigueTo: "Breathe-Support " <Breathe-Support >Date: Wednesday, September 2, 2009, 7:57 PM

Hello all,For the past month or so, I seem to be getting fatigued on the treadmill earlier than in the past. Just don't seem to have the energy to continue. Is this one of the symptoms of low oxygen 'sats'?I placed the order for that FDA approved pulse oximeter that Beth recommended, so that should give me some numbers to work with.During exercise, if my O-2 saturation drops below 90%, should I slow down the pace or stop altogether and rest for a period? Or is it a matter of how LONG the low level continues? I assume I can wear a pulse oximeter while on the treadmill. Believe one of the other members specifically mentioned that fact.Thanks again!Cuyler

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Yes, I've been on O2 overnight using an oxygen concentrator for about 3 weeks now. I have it set at 2 LPM based on my Dr. orders. I will discuss the fatigue issue with my Dr. during my next visit.Don't yet use O2 during the day since I don't feel I need it but the pulse oximeter will give me a better reading on that. Also, will begin keeping a daily log for tracking my O2 levels and heart rate.Thanks!Cuyler9c.

Re: Fatigue

Posted by: "hunnybunnybinky"

brandy@...

hunnybunnybinky

Wed Sep 2, 2009 5:45 pm (PDT)

>

> Cuyler,

> Am I correct in assuming you are not currently using supplemental

oxygen? If that's the case and your sats fall below 90 while using the

treadmill (or any other time) you should do what it takes to get your

sats back up over 90. If slowing your pace will do that fine, if it

means stopping and resting than that's what you do. All this should be

reported to your doctor so that he can act upon it.

> If you are currently using oxygen, you can do the same thing with

the additional step of turning your oxygen up one liter at a time

until it's set at a level where you can maintain sats over 90

during that specific activity. Again it is extremely important to

report this to your doctor so that he understands what is happening

when you're not sitting in front of him/her in the office. Being able

to monitor your sats and share this info with your doctor is extremely

helpful to them and is proactive on your own behalf.

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/089d.

Re: Fatigue

Posted by: "hunnybunnybinky"

brandy@...

hunnybunnybinky

Wed Sep 2, 2009 6:26 pm (PDT)

Cuyler,

Beth gave you all the right answers. I'm taking Pulmonary Rehab.

again for the next 4 weeks. When I finshed rehab 2 years ago I followed

thru at home. One of the things I did to keep up with my 'sats'and will

do this time also, is to log them in a notebook I keep on the magazine

rack of the treadmill. I track O2 sat., heart rate and any changes I

make in my routine. It helps me to see the big picture for myself and

helps the doctor too (and thankfully I don't have to rely on my memory

when he asks how long ago I started having negative changes.)

Please remember that any time during exercise you begin to feel over

exerted (even when your 'sats'are normal)you should adjust to a more

comfortable pace or intensity. Exercise for us P.F.er's is to help us,

not to hurt us.

Best wishes!

34 FL

IPF dx 1/06

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