Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Terre Yes it is approved for PAH. Tracleer is also dispensed only by the manufacturer and special pharmacies through enrollment. The biggest risk of Letairis is liver damage so that is monitored closely. www.phassociation.org is an excellent site. I especially love their find a doctor function. http://www.phassociation.org/Find_A_Doctor/ It even shows you how many times the doctor has used each form of treatment in the past year on most doctors and the nature of their patients. For instance, my doctor's treatments in the past year are: Flolan 10, Remodulin 35, Tracleer 60, Thromboendarterectomy 2, Ventavis 10, Revatio 35, Lung/Heart Transplant 2. > > I just looked up Ambrisentan (trade name Letairis) because of the the study being done using it for IPF. I knew it had been studied for PAH and was somewhat successful. > What I didn't know is that is available now through special pharmacies with your doctor's enrollment of you in a program called LEAP. This is for treatment of PAH. > If anyone is interested go to www.letairis.com. > There are side effects of course but this may be a new drug that is helpful right away to some for PAH. > And, maybe, I'm just way behind the curve and you already know about this. > Regards to all. > Terre, 66, IPF 6/08, FL > Quote Link to comment Share on other sites More sharing options...
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