Re: Re: introduction / Peggy E

[Guest guest]

Peggy E, Have you been to the photo albums ? There are a lot of pictures of us.Also Tomorrow night at 7: PM EST. we have a live phone chat. for an hour.the # is  then pin 961089 7: PM  Eastern6: PM  Central 4: PM  WesternI probably didn't get this exactly right but You can figure out your time from this.I will look forward to talking to you.Go to the home page and look at the photos then to the messages and read some of the past postsand you can learn a lot from our experiences. Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. Hi Patti, I totally understand what you mean about someone hitting the ball away from you. I injured my back once because my 'so called' partner kept windshield washering me (my terms) during warm up and since I wasn't 'warmed up' I ended up at the chiropractor. Suited her right. Glad you didn't have to go to E.R. I think when I can't do it any more it'll be fine. I've played since I was 40 and I am 53 so I made it to 3.5 USTA rating and that was my goal all along. Thanks for the support. This is a tough road. My husband is in denial. He has always thought of me as the 'healthy' one and he was supposed to be the one to die young. His family history and his particular body mass index etc. vs mine. I also did not get this from anything self-induced unless living with parents who smoked around you from birth to age 18 counts as self-induced. I'm not even sure that had anything to do with it but you never know. In any case I am glad I found this group as I do want to talk to others who have been through what I am going through and also others who might be at the same point as I am. More tests tomorrow and Friday. I think a lot of these tests are designed by would be torturers as it is the only legal way to torment people is through medical tests. Today I get to spend time with my quilt group board (I'm VP) so that will be fun.I'm going to have to try to figure out a way to keep all the people in this group straight. I'm really good with faces and names but not so good with just text and names so any suggestions for that?Cheers - Peggy E (53, ILD 1 year ago)> > > > > > From: artquilterpeg <artquilterpeg@ ...>> > Subject: introduction> > To: Breathe-Support@ yahoogroups. com> > Date: Tuesday, June 9, 2009, 7:26 PM> > > > > > > > > > > > > > > > > > Hi Everyone. I was diagnosed with ILD a year ago but basically thought the doctor was wrong so I stayed in denial until recently. I might still be in denial on some level. I am seeing a great pulmonologist at University of Washington in Seattle who is researching GERD and ILD. I had a series of unusual events that occurred that led him to think my ILD might be exacerbated by GERD or maybe caused? He won't be specific. I get the impression that they don't really know if GERD can cause ILD or not. So, this week I am undergoing a host of tests for my lungs, heart and GERD. For the most part I am doing really well and the only medication I am on is omraprazole for the GERD and my hormone replacements. I am able to play tennis but if I run for a few balls in a row my heart rate jumps up really high. It comes back down again quickly so I have decided for now to only play with people who have an understanding of how important it is for me to take my time> > between points even though that is breaking the rules of tennis. I am suspecting that I should probably switch to another form of exercise that is less 'fast start'. Every thing I read about this disease is pretty depressing. I'd love to talk to someone else out there who is doing well who and is stable. I wonder how long I can stay stable and also if anyone has had any success getting their ILD arrested in development by managing their GERD.> >>

[Guest guest]

SORRY MY MESS UP>>> NO CHAT THIS WEEK..  Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up. Peggy E, Have you been to the photo albums ? There are a lot of pictures of us.Also Tomorrow night at 7: PM EST. we have a live phone chat. for an hour.the # is  then pin 961089 7: PM  Eastern6: PM  Central 4: PM  WesternI probably didn't get this exactly right but You can figure out your time from this.I will look forward to talking to you.Go to the home page and look at the photos then to the messages and read some of the past postsand you can learn a lot from our experiences. Love and Prayers, Peggy   IPF  2004,  FloridaWorry looks around, Sorry looks back,  Faith looks up.<pastedGraphic.tiff> Hi Patti, I totally understand what you mean about someone hitting the ball away from you. I injured my back once because my 'so called' partner kept windshield washering me (my terms) during warm up and since I wasn't 'warmed up' I ended up at the chiropractor. Suited her right. Glad you didn't have to go to E.R. I think when I can't do it any more it'll be fine. I've played since I was 40 and I am 53 so I made it to 3.5 USTA rating and that was my goal all along. Thanks for the support. This is a tough road. My husband is in denial. He has always thought of me as the 'healthy' one and he was supposed to be the one to die young. His family history and his particular body mass index etc. vs mine. I also did not get this from anything self-induced unless living with parents who smoked around you from birth to age 18 counts as self-induced. I'm not even sure that had anything to do with it but you never know. In any case I am glad I found this group as I do want to talk to others who have been through what I am going through and also others who might be at the same point as I am. More tests tomorrow and Friday. I think a lot of these tests are designed by would be torturers as it is the only legal way to torment people is through medical tests. Today I get to spend time with my quilt group board (I'm VP) so that will be fun.I'm going to have to try to figure out a way to keep all the people in this group straight. I'm really good with faces and names but not so good with just text and names so any suggestions for that?Cheers - Peggy E (53, ILD 1 year ago)> > > > > > From: artquilterpeg <artquilterpeg@ ...>> > Subject: introduction> > To: Breathe-Support@ yahoogroups. com> > Date: Tuesday, June 9, 2009, 7:26 PM> > > > > > > > > > > > > > > > > > Hi Everyone. I was diagnosed with ILD a year ago but basically thought the doctor was wrong so I stayed in denial until recently. I might still be in denial on some level. I am seeing a great pulmonologist at University of Washington in Seattle who is researching GERD and ILD. I had a series of unusual events that occurred that led him to think my ILD might be exacerbated by GERD or maybe caused? He won't be specific. I get the impression that they don't really know if GERD can cause ILD or not. So, this week I am undergoing a host of tests for my lungs, heart and GERD. For the most part I am doing really well and the only medication I am on is omraprazole for the GERD and my hormone replacements. I am able to play tennis but if I run for a few balls in a row my heart rate jumps up really high. It comes back down again quickly so I have decided for now to only play with people who have an understanding of how important it is for me to take my time> > between points even though that is breaking the rules of tennis. I am suspecting that I should probably switch to another form of exercise that is less 'fast start'. Every thing I read about this disease is pretty depressing. I'd love to talk to someone else out there who is doing well who and is stable. I wonder how long I can stay stable and also if anyone has had any success getting their ILD arrested in development by managing their GERD.> >>