Re: Re: My exciting trip and my new doctor.

[Guest guest]

Dyane, I wasn't afraid and it is an adventure to remember. I might not want my adventures to be quite so exciting but I hope to have many more. If I am still here in the spring I will probably go out on the boat again. It should be repaired by thenBeverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia IdahoSubject: Re: My exciting trip and my new doctor.To: Breathe-Support Date: Thursday, September 10, 2009, 8:50 AM

Beverly Joy,OMG What an adventure, I love the water but that would have been just too much! Glad you got to the big house...didn' t know that imuran could mess with your pancreas...have to watch that I was in the hospital once for 10 days with acute pancreatitis, I will do anything but no more NG tubes for me!Feel better!Dyane phoenix ipf 02> > From: jerryb888 jerryb888@.. .> Subject: Beverley Joy> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, September 8, 2009, 8:54 PM> > > > > > > > > > > > > Hello Beverley Joy,Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will

find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?Jerry? Mississippi/ 54/IPF/dx April 05 >

[Guest guest]

Hi Dyane, I was on Imuran and had to have my blood checked every month.. I had to quit the second check soyea it dies mess with some peoples liver. Be careful. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Beverly Joy,OMG What an adventure, I love the water but that would have been just too much! Glad you got to the big house...didn't know that imuran could mess with your pancreas...have to watch that I was in the hospital once for 10 days with acute pancreatitis, I will do anything but no more NG tubes for me!Feel better!Dyane phoenix ipf 02> > Subject: Beverley Joy> To: Breathe-Support > Date: Tuesday, September 8, 2009, 8:54 PM> > > > > > > > > > > > > Hello Beverley Joy,Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?Jerry?Mississippi/ 54/IPF/dx April 05 >

[Guest guest]

imuran -- some people are on it for multiple years

everyone is different

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: My exciting trip and my new doctor.To: Breathe-Support Date: Thursday, September 10, 2009, 12:52 PM

Hi Dyane, I was on Imuran and had to have my blood checked every month.. I had to quit the second check so

yea it dies mess with some peoples liver. Be careful.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Beverly Joy,OMG What an adventure, I love the water but that would have been just too much! Glad you got to the big house...didn' t know that imuran could mess with your pancreas...have to watch that I was in the hospital once for 10 days with acute pancreatitis, I will do anything but no more NG tubes for me!Feel better!Dyane phoenix ipf 02> > From: jerryb888 jerryb888@.. .> Subject: Beverley Joy> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, September 8, 2009, 8:54 PM> > > > > > > > > > > > > Hello Beverley Joy,Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung

man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?Jerry? Mississippi/ 54/IPF/dx April 05 >

[Guest guest]

Hi Joyce,

I couldn't take Imuran either, had a terrible allergic reaction -

If I am reading your signature correctly you were registered on the transplant list in January and then Inactive in April. Why do they move you to inactive?

Dorothy Reinecke

Fayetteville, GA (20 miles south of Atlanta)

VATS 7/05 - UIP 7/05

From: Breathe-Support [mailto:Breathe-Support ] On Behalf Of Joyce T RosenbergSent: Thursday, September 10, 2009 2:36 PMTo: Breathe-Support Subject: Re: Re: My exciting trip and my new doctor.

imuran -- some people are on it for multiple years

everyone is different

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org--- On Thu, 9/10/09, Peggy <pac1773 (AT) cfl (DOT) rr.com> wrote:

From: Peggy <pac1773 (AT) cfl (DOT) rr.com>Subject: Re: Re: My exciting trip and my new doctor.To: Breathe-Support Date: Thursday, September 10, 2009, 12:52 PM

Hi Dyane, I was on Imuran and had to have my blood checked every month.. I had to quit the second check so yea it dies mess with some peoples liver. Be careful.

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Beverly Joy,OMG What an adventure, I love the water but that would have been just too much! Glad you got to the big house...didn' t know that imuran could mess with your pancreas...have to watch that I was in the hospital once for 10 days with acute pancreatitis, I will do anything but no more NG tubes for me!Feel better!Dyane phoenix ipf 02> > From: jerryb888 jerryb888@.. .> Subject: Beverley Joy> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, September 8, 2009, 8:54 PM> > > > > > > > > > > > > Hello Beverley Joy,Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?Jerry? Mississippi/ 54/IPF/dx April 05 >

[Guest guest]

my disease was responsive to 40 mgs prednisone

they gave me cellcept and decreased the prednisone

made me inactive

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: RE: Re: My exciting trip and my new doctor.To: Breathe-Support Date: Thursday, September 10, 2009, 6:28 PM

Hi Joyce,

I couldn't take Imuran either, had a terrible allergic reaction -

If I am reading your signature correctly you were registered on the transplant list in January and then Inactive in April. Why do they move you to inactive?

Dorothy Reinecke

Fayetteville, GA (20 miles south of Atlanta)

VATS 7/05 - UIP 7/05

From: Breathe-Support@ yahoogroups. com [mailto:Breathe- Support@yahoogro ups.com] On Behalf Of Joyce T RosenbergSent: Thursday, September 10, 2009 2:36 PMTo: Breathe-Support@ yahoogroups. comSubject: Re: Re: My exciting trip and my new doctor.

imuran -- some people are on it for multiple years

everyone is different

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

Beverly Joy,OMG What an adventure, I love the water but that would have been just too much! Glad you got to the big house...didn' t know that imuran could mess with your pancreas...have to watch that I was in the hospital once for 10 days with acute pancreatitis, I will do anything but no more NG tubes for me!Feel better!Dyane phoenix ipf 02> > From: jerryb888 jerryb888@.. .> Subject: Beverley Joy> To: Breathe-Support@ yahoogroups. com> Date: Tuesday, September 8, 2009, 8:54 PM> > > > > > > > > > > > > Hello Beverley Joy,Am I right thinking you have an appointment with your new pulmonologist tomorrow the 9th? I hope all goes well with your first visit and that you will find a friendly, knowledgeable lung

man. But you know if you aren't happy, there are other qualified doctors near you. Take care of yourself and I'll be looking to hear some news. As i'll be traveling down to tomorrow for the Celtic Fest, I may not have access to a computer link as often as here, but I'll check in when I can and see if you have posted. Take care. Oh yes, notice I typed in blue like Mamasher? Since we are going to use blue for our color, I may start emailing to everyone in blue all the time. What do you think?Jerry? Mississippi/ 54/IPF/dx April 05 >