Donelle & Narice

[Guest guest]

You two are bringing back so many bad memories, my heart bleed for

you.

I have something I would like to share with you. Last January

was so sick they did not think he would make the night. He

had a horrible abscess of the lungs from the radiation.

The had been pumping him with various antibiotics for the abscess

and the diareah. It seemed everything they gave him created more

weakness and a new problem.

I do not remember who called in the Infectious disease doctor, but

that was the best thing they ever did.

They had on a high powered drip and it seemed to be working.

The Infectious disease doctor came up with a pill form of the drug

that he could be sent home with.

I was under the impression that a Infectious disease doctor was only

used for someone that had a disease that could easily be spread.

He nailed the type of infection the first time after doing some

blood and sputum testing.

I hate the old " let's try this and if it does not work we will use

something else " method.

You might want to ask for this type of doctor and at least know what

type of infection your dealing with. Too many antibiotics just

create more problems.

Saying lots of prayers for both of you gals.

Joyce

>

> {{{{{{ To ALL }}}}}}

>

> I know I'm not posting much...but I'm reading and trying to keep

up with

> everyone. Haven't seen anything from for a couple days,

tho. Or

> Dianna for a while. Am I just missing some messages?? I IM'd

with Narice early

> this morning and she was going to the hospital about 8

a.m....haven't heard

> from her since and praying things are going as well as she hoped

they would

> for Phil today...

>

> Welll.....I raged finally today!!! As most of you know, but as

an update

> for the newest family members.... Glenn had the pump surgery on

Aug. 29th and

> was given a strong anti-biotic from which he developed an " anti-

biotic related

> Colitis also called C-Diff (short for some real long name) and

has had this

> brutally severe diarrhea for the last 8 wks. TODAY, with some

relief after

> numerous meds and losing another 15 lbs. Instead of 30-40 times

a day and

> night, it's down to 5-10 times a day...he has had some diarrhea-

free

> nights...wahooo!!! Seriously, I'm grateful. Last Wed., I was

able to get him to the

> hosp. for a full Liver Panel Profile and another stool sample

testing.

>

> Glenn talked with the Dr. before I got home from work yesterday

and the Dr.

> told him the stool sample was " clean " ...meaning the C-Diff

infection is

> cleared up (but remember he still has the diarrhea, albeit not as

bad) and never

> mentioned the liver profile results...and, of course, Glenn

didn't ask. Glenn

> did ask, " What do I do now? " to which the GI Specialist

said... " I'm calling

> in another prescription for the diarrhea (not an anti- and WE

RIDE IT

> OUT " ....well, I was livid....and it didn't go away

overnight...smiling sheepishly!!

>

> When I got to work, I called both the GI Spec. and the Onc. The

GI GUY was

> out of the office and couldn't be reached for the day...so I laid

it on his

> poor nurse. I didn't scream or yell...just told her that someone

has to do

> something for this poor man, who is literally lying here totally

non

> functional, unable to eat or retain anything if he does eat. If

he is dying, I need to

> know and he needs to know!!! He needs to be made comfortable and

I need to

> call in Hospice. The conversation was more in depth, but I'll

spare you...

> Well, miraculously the nurse " found " the dr. b/c he called here,

once again,

> before I got home (and he knows what time I get home and has my

cell phone and

> work phone...he doesn't want to deal with me) He basically told

Glenn to

> call his Onc. b/c his liver profile counts or whatever they are

were

> high....now why didn't he tell him that yesterday??? Well, I had

already called the

> Onc. this morning...so does that make me a better dr. than the

Specialist....LOL

>

> When you call s Hopkins Hosp. you can NEVER talk immediately

to your dr.

> But the Triage Nurse listened to " My story " and said she would

talk with

> the Dr. and call me back....and she did. I told her all of the

above what's

> been going on....and that the C-Diff is cleared up... told her

his skin tone

> was yellow as are his bowel movements, he itches all over, and

the " bruising "

> marks that were only on one arm are now all over most of his

body, he's

> sleeping 20 hrs a day and having a lot of pain in the upper and

lower abdomen...if

> the liver is failing further, I need to know and he needs to

know!!!! Well,

> I want you to know I got an appt. for Glenn for Thursday....yes,

day after

> tomorrow!!! Not 4 wks. from now.... which impressed me until I

realized there

> may be some serious crap going on and that's why they are getting

us in so

> quickly. They have already scheduled a CT Scan and bloodwork

previous to

> seeing the Onc. at 12 noon. Normally, as you all know, it takes

weeks to get

> them done also.... I had already told the GI Spec. nurse to fax

over the

> results of the testing from last week, so he now has that.

>

> So that brings you up to date.... obviously we need

prayers....and will

> continue prayer for each of you...

>

> Just IM'd with Narice... and Phil has a blood infection....she is

very sad

> and, of course tired from the grueling day at the hospital...

please keep her

> and Phil in your prayers also....

>

> Lots of hugs and prayers, Donelle

> Caregiver to Glenn

>

>

>