Re: Why are my lungs sooooo bad? Great Answers!!!

July 9, 2009

Joyce, Beth, and ,

Thank you so much for such kind and wise words. I was waiting to get knuckled

in the head by Sister Anne (I did love her), I scraped by on that one.

I will keep you all informed on my visits to the Cleveland Clinic. I have been

looking for a reply that I received once from someone on the board that went to

the Cleveland Clinic not too long ago. Joyce she was from PA I believe, was that

you? I'm just wondering how that went.

ellen

>

> Good Evening,

>

> Yes, I am actually going to write something from my little corner, hoping

somone can give me a simple explanation.

>

> After reading posts since February, many of you drive, walk, run, ride bikes,

exercise, etc. I am so jealous. I'm thinking what happened to me? The day I was

struck down with lack of oxygen, Sep 2008, is the day I had to be on oxygen

24/7. How can I possibly be so bad off so soon? Of course I realize it did not

happen over night, but from breathing on my own to this - I just can't get my

mind wrapped around this. What is frusting me is with prednisone and cytoxin I

am getting worse.

>

> I am on my way to the Cleveland Clinic 22 Jun for testing for qualification

for a transplant. I am very nervous. Annnnnd just don't understand how I got to

this point so darned fast. I don't understand why my lungs are getting worse.

I'm not sick/well no fevers stuff like that, I don't cough but once in a great

while. Please understand, I am not complaining, I actually feel privledged that

I can get oxy so I can breath, and I have a chance to have new lungs, WOW! I

know I should be asking my doctor these questions - I have - my OSU surgeon who

told me I have advanced stages told me this happens all the time to people with

fibrosis. They seem fine one day and are completly down the next day .........

Why?

>

> OK, I know no one can really answer that question, but I have to ask. I was

always getting knuckled on the head for asking the sisters at Catholic School

questions that they couldn't answer, but someone had to ask.

>

> Thanks

> ellen

>

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