Guest guest Posted June 29, 2009 Report Share Posted June 29, 2009 HELLO, MY NAME IS DIANE AND I LIVE IN NEW YORK. I RECENTLY HAVE BEEN DIAGNOSED WITH PULMONARY FIBROSIS, I'M TRYING TO FIND INFORMATION ON THIS DISEASE AS WELL AS A DOCTOR WHO SPECIALIZES IN THIS. I DO NOT KNOW WHICH TYPE, I WAS TOLD I WOULD NEED A BIOPSY TO GET FURTHER DETAILS. I AM 43 AND VERY ACTIVE WITH MY 6 CHILDREN. I AM VERY FRIGHTENED TO HEAR HOW SERIOUS AND PROBABLY FATAL THIS MAY BE. IS ANYONE FROM THE NY AREA AND/OR IS THERE A PLACE THAT I SHOULD GO TO GET THE BEST OR MOST UP TO DATE CARE OR TREATMENT? MY DOCTOR ALSO BELIEVES THAT I MAY HAVE LUPUS AND I KNOW I HAVE THYROID DISEASE AND RENAUDS. I AM LOOKING FORWARD TO ANY ADVICE OR IMPUT. THANK YOU, /DIANE Subject: Peggy CTo: Breathe-Support Date: Monday, June 29, 2009, 4:58 PM Peggy, Wow...I've been thinking of you all day today wondering how it was going but I didn't want to bother you in the middle of all that fun. I'm so glad you did this trip and had a great time. I'm also glad that Bill pushed you down close to the falls and even more glad that he didn't just push you over the falls. I notice it was Bill doing the pushing and not . might have been too tempted to send you swimming huh? LOL You know I'm kidding, just so happy you got to do this. Sounds like soooo much fun! I missed you! Hugs, Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 To: Breathe-Support Sent: Monday, June 29, 2009 4:37:37 PMSubject: Hello Group, WE MADE IT.. We got in last night about 10:PM and went to bed pretty quickly. Then I slept most of the day. I had a good good time. My goodness I was waited on hand and foot... what else cold a person ask.. T & Bill pushed me down close to the falls and it was very pretty and SOOO NICE TO SEE ANYTHING BUT GREEN WALLS.. LOL I walked a short distance to the cable in front of the falls so I thoroughly enjoyed myself. I made the trip real well. I used 7 or 8 E tanks going up and about the same coming back. We took my concentrator for night use. So it all worked out well. They had a concentrator and 24 E tanks there for me so all went well. Thats is about it for this min. I am soooo sleepy. I can hardly keep my eyes open. Think I just may go back to bed.. Missed all of you so much. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2009 Report Share Posted June 30, 2009 Dear Diane,If you go to ipfnet.org you will see hospitals that specialize in this disease. Sorry that you need us, but glad that you found us.PJ Hello Group, WE MADE IT.. We got in last night about 10:PM and went to bed pretty quickly. Then I slept most of the day. I had a good good time. My goodness I was waited on hand and foot... what else cold a person ask.. T & Bill pushed me down close to the falls and it was very pretty and SOOO NICE TO SEE ANYTHING BUT GREEN WALLS.. LOL I walked a short distance to the cable in front of the falls so I thoroughly enjoyed myself. I made the trip real well. I used 7 or 8 E tanks going up and about the same coming back. We took my concentrator for night use. So it all worked out well. They had a concentrator and 24 E tanks there for me so all went well. Thats is about it for this min. I am soooo sleepy. I can hardly keep my eyes open. Think I just may go back to bed.. Missed all of you so much. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Quote Link to comment Share on other sites More sharing options...
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