Thank You Thank You Thank You

[Guest guest]

Thank you so much for everyones advice. I called my Pulmodude today and told

the Nurse about the problems I have been having at Pulminary Rehab, she was

really surprised that no one had called my Dr yet, she asked what they did every

time my sats dropped, I told her that they just hd me sit and rest awhile. She

said she would talk to my Dr , and the Rehab center and then she would call me

back. She called me back around 2:00 and said she had made a lot of calls for

me, to a DME provider and found out I needed to have another 6MW done either at

my PCP or at the Dr in the next 48 hours. She is making that appt. for me now I

am waiting for her to call me back.

Sounds like I finally got the ball rolling.

For Beth: I am going to a teaching hospital I go to University of

Michigan. This too I learned from all of you. Last year I asked my local Dr.

to send me there. He wasn't happy but I tolded him I wanted to anyway.

For Mama Sher; I live in Michigan, Divorced, only my Children and Grandchildren

for support, which aren't much support. I have tried to find a support group in

Mi, but there aren't any, so you guys are my only support.

For Jack; No I don't have another oximeter yet but I will try to get another

one soon.

For everyone else THANK YOU

[Guest guest]

Jo Ann,

Congratulations!! I'm so happy you rocked the boat a bit, now things should get moving towards getting you what you need. It shouldn't be necessary but the reality is we have to be pro-active on hour own behalf, watch what's happening and ask questions. Don't take for granted that one health professional is talking to the other health professionals who are taking care of you. Very often they are not. The most important thing we can do is look out for ourselves!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Monday, June 29, 2009 6:46:10 PMSubject: Thank You Thank You Thank You

Thank you so much for everyones advice. I called my Pulmodude today and told the Nurse about the problems I have been having at Pulminary Rehab, she was really surprised that no one had called my Dr yet, she asked what they did every time my sats dropped, I told her that they just hd me sit and rest awhile. She said she would talk to my Dr , and the Rehab center and then she would call me back. She called me back around 2:00 and said she had made a lot of calls for me, to a DME provider and found out I needed to have another 6MW done either at my PCP or at the Dr in the next 48 hours. She is making that appt. for me now I am waiting for her to call me back.Sounds like I finally got the ball rolling.For Beth: I am going to a teaching hospital I go to University of Michigan. This too I learned from all of you. Last year I asked my local Dr. to send me there. He wasn't happy but I tolded him I wanted to anyway.For Mama Sher; I

live in Michigan, Divorced, only my Children and Grandchildren for support, which aren't much support. I have tried to find a support group in Mi, but there aren't any, so you guys are my only support.For Jack; No I don't have another oximeter yet but I will try to get another one soon.For everyone else THANK YOU

[Guest guest]

Jo Ann .... I'm sorry to hear you do not have family support. Maybe that will happen as you tell them more about PF.

Put Leanne's name in the subject line and request brochures about PF and give to your family.

At least we all have the board.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Thank You Thank You Thank You

Thank you so much for everyones advice. I called my Pulmodude today and told the Nurse about the problems I have been having at Pulminary Rehab, she was really surprised that no one had called my Dr yet, she asked what they did every time my sats dropped, I told her that they just hd me sit and rest awhile. She said she would talk to my Dr , and the Rehab center and then she would call me back. She called me back around 2:00 and said she had made a lot of calls for me, to a DME provider and found out I needed to have another 6MW done either at my PCP or at the Dr in the next 48 hours. She is making that appt. for me now I am waiting for her to call me back.Sounds like I finally got the ball rolling.For Beth: I am going to a teaching hospital I go to University of Michigan. This too I learned from all of you. Last year I asked my local Dr. to send me there. He wasn't happy but I tolded him I wanted to anyway.For Mama Sher; I live in Michigan, Divorced, only my Children and Grandchildren for support, which aren't much support. I have tried to find a support group in Mi, but there aren't any, so you guys are my only support.For Jack; No I don't have another oximeter yet but I will try to get another one soon.For everyone else THANK YOU

[Guest guest]

>

> Jo Ann .... I'm sorry to hear you do not have family support. Maybe that will

happen as you tell them more about PF.

> Put Leanne's name in the subject line and request brochures about PF and give

to your family.

> At least we all have the board.

> MamaSher; 70, IPF 3-06, OR.

> Nasturtiums

> Don't fret about tomorrow, God is already there!

>

> Thank You Thank You Thank You

>

> Mama Sher.....I live with my Daughter and Son. My Daughter is 24

years old, and my Son is 21 years old. has 3 children Hailey 6

years old, Alli 4 years old and Chase 2 years old. We all live together, and I

take care of them all. I do every thing around the house. I think they feel

that if they ignor the fact that I am sick and going to die soon,that maybe it

won't happen. I worry about what will happen to them. How they will manage.

Well it is getting late so I am going to bed now. I hope I hear from the Dr.

tommorrow.

Jo Ann 53 MI UIP 9/07

>

>

>

> Thank you so much for everyones advice. I called my Pulmodude today and told

the Nurse about the problems I have been having at Pulminary Rehab, she was

really surprised that no one had called my Dr yet, she asked what they did every

time my sats dropped, I told her that they just hd me sit and rest awhile. She

said she would talk to my Dr , and the Rehab center and then she would call me

back. She called me back around 2:00 and said she had made a lot of calls for

me, to a DME provider and found out I needed to have another 6MW done either at

my PCP or at the Dr in the next 48 hours. She is making that appt. for me now I

am waiting for her to call me back.

> Sounds like I finally got the ball rolling.

>

> For Beth: I am going to a teaching hospital I go to University of

Michigan. This too I learned from all of you. Last year I asked my local Dr. to

send me there. He wasn't happy but I tolded him I wanted to anyway.

>

> For Mama Sher; I live in Michigan, Divorced, only my Children and

Grandchildren for support, which aren't much support. I have tried to find a

support group in Mi, but there aren't any, so you guys are my only support.

>

> For Jack; No I don't have another oximeter yet but I will try to get another

one soon.

>

> For everyone else THANK YOU

>