Re: My sorry little roller coaster ride-To Jay

[Guest guest]

Monday I had my PET scan, and today I saw Dr. Napoli.

I am crying now... dont know what the f*ck to do. I have two spots on my

liver. Doc said they are not cysts. I have to be scanned in another month,

and the port will have to stay in.

Jay: I am so sorry to hear this news. It is a shock. Are the spots clear?

What else did the doctor say? Did you receive a written copy of the

radiologist's report? If not, please ask your doctor to fax it to you.

Believe

me, my report that I got from my scans last week had a LOT more info in it than

I got from talking to my oncologist. In my case, they don't know what they

are looking at either.

I was told that no one knows what they are seeing on my liver and I just

have to wait for 4 more chemo cycles till they do another scan. It could

possibly be just inflammation. As for the hemangioma, I know that is what the

radiologist's said I had before I was diagnosed Stage 4. They thought that was

what was on the liver but it wasn't -- it was a 3.9 c.m. tumor

Jay: don't get drunk now. Save that liver. You will have more clarity

with more information. It seems highly unlikely that it is a recurrence so

fast. And, even if it is, they can shrink those suckers with chemo + Avastin.

It may be nothing. Keep asking questions of your oncologist and read the

reports and compare them with the earlier scan reports. You are a survivor and

this isn't going to change that.

in California

[Guest guest]

Jay: when you say you did the last round of chemo, was that in addition to

the initial 12 cycles? I can't imagine being able to endure that. Were you

on Folfox plus Avastin (I have forgotten). This is not fair. Light some

candles and put them around your hot tub and look up to the sky. It is a

beautiful night.

[Guest guest]

I remember when you got your scan... It is so hard to grapple with bad news. I

will ask for my report and maybe we can all read it and put some positive light

on it. ...

I actually saw the picture. Compared to my last PET in April, there was a

noticeable difference. The doctor now wants another scan in about a month to

compare and plan a course of action. What really is discouraging is the fact

that I was NED in April and did this last round of FOLFOX as a precaution to

kiss this cancer good by... It really hurts because we fight so hard with no

rewards.

It is encouraging to hear success stories, and so maybe I need to focus my

energy on the successful fighters out there. I am going to go run 3 miles now

and then sit in the hot tub. The kids are with their mother this weekend and

they went to the mountains.

Tomorrow I go to work and will be in Sydney. Maybe that will get me to change my

ugly attitude right now.

Thanks !

Re: My sorry little roller coaster ride-To Jay

Monday I had my PET scan, and today I saw Dr. Napoli.

I am crying now... dont know what the f*ck to do. I have two spots on my

liver. Doc said they are not cysts. I have to be scanned in another month,

and the port will have to stay in.

Jay: I am so sorry to hear this news. It is a shock. Are the spots clear?

What else did the doctor say? Did you receive a written copy of the

radiologist's report? If not, please ask your doctor to fax it to you.

Believe

me, my report that I got from my scans last week had a LOT more info in it

than

I got from talking to my oncologist. In my case, they don't know what they

are looking at either.

I was told that no one knows what they are seeing on my liver and I just

have to wait for 4 more chemo cycles till they do another scan. It could

possibly be just inflammation. As for the hemangioma, I know that is what

the

radiologist's said I had before I was diagnosed Stage 4. They thought that

was

what was on the liver but it wasn't -- it was a 3.9 c.m. tumor

Jay: don't get drunk now. Save that liver. You will have more clarity

with more information. It seems highly unlikely that it is a recurrence so

fast. And, even if it is, they can shrink those suckers with chemo +

Avastin.

It may be nothing. Keep asking questions of your oncologist and read the

reports and compare them with the earlier scan reports. You are a survivor

and

this isn't going to change that.

in California

[Guest guest]

Yes. FOLFOX6 ammended to the 12 cycles of 5FU. So a total of 18 - 10 day

cycles; the last 6 were the FOLFOX6. No Avastin.

Sounds like a plan (the hot tub and candles!)... I so need to change my

thought patterns. Thats the bonus this group has to offer- not sure how I would

vent without this group. My kids are too young. I am going for the run now as

the kids just left. Dang this cancer...

Re: My sorry little roller coaster ride-To Jay

Jay: when you say you did the last round of chemo, was that in addition to

the initial 12 cycles? I can't imagine being able to endure that. Were you

on Folfox plus Avastin (I have forgotten). This is not fair. Light some

candles and put them around your hot tub and look up to the sky. It is a

beautiful night.

[Guest guest]

It really hurts because we fight so hard with no

rewards.

Jay, Right now they are going to treat it as the worst until they can

decide if this is anything or not. They cannot lie to you and have to

tell you. But suppose it is NOT!!!! How is your CEA count? This

could be anything.

And if it is the dreaded.... Then it may of been worse without the

last round of chemo. We have no sure way to know.

But whatever it is you will have to take it by the horns and fight

it. Just that it is honestly to soon to be cancer again.

Yes, I know you are angry, shocked and scared. We all here are

fighting this damm scared feeling each and everyday. There are still

alot of options out there to fight this if it turns out to have come

back. And the fact the doctor is not sure!!!!!

They have to tell you the worst.

Yes, you are the type that has to stay busy to keep from falling

apart. If that is what you need then do it.

I am Praying so hard for you!!!!! Just for now wait and give this

the time. It may be nothing!!!!!! Love, Ingrid

>

> I remember when you got your scan... It is so hard to grapple with

bad news. I will ask for my report and maybe we can all read it and

put some positive light on it. ...

>

> I actually saw the picture. Compared to my last PET in April,

there was a noticeable difference. The doctor now wants another scan

in about a month to compare and plan a course of action. What really

is discouraging is the fact that I was NED in April and did this last

round of FOLFOX as a precaution to kiss this cancer good by... It

really hurts because we fight so hard with no rewards.

>

> It is encouraging to hear success stories, and so maybe I need to

focus my energy on the successful fighters out there. I am going to

go run 3 miles now and then sit in the hot tub. The kids are with

their mother this weekend and they went to the mountains.

>

> Tomorrow I go to work and will be in Sydney. Maybe that will get me

to change my ugly attitude right now.

>

> Thanks !

> Re: My sorry little roller

coaster ride-To Jay

>

>

>

>

>

> Monday I had my PET scan, and today I saw Dr. Napoli.

> I am crying now... dont know what the f*ck to do. I have two

spots on my

> liver. Doc said they are not cysts. I have to be scanned in

another month,

> and the port will have to stay in.

>

> Jay: I am so sorry to hear this news. It is a shock. Are the

spots clear?

> What else did the doctor say? Did you receive a written copy of

the

> radiologist's report? If not, please ask your doctor to fax it

to you. Believe

> me, my report that I got from my scans last week had a LOT more

info in it than

> I got from talking to my oncologist. In my case, they don't

know what they

> are looking at either.

>

> I was told that no one knows what they are seeing on my liver

and I just

> have to wait for 4 more chemo cycles till they do another scan.

It could

> possibly be just inflammation. As for the hemangioma, I know

that is what the

> radiologist's said I had before I was diagnosed Stage 4. They

thought that was

> what was on the liver but it wasn't -- it was a 3.9 c.m. tumor

>

> Jay: don't get drunk now. Save that liver. You will have more

clarity

> with more information. It seems highly unlikely that it is a

recurrence so

> fast. And, even if it is, they can shrink those suckers with

chemo + Avastin.

> It may be nothing. Keep asking questions of your oncologist and

read the

> reports and compare them with the earlier scan reports. You are

a survivor and

> this isn't going to change that.

>

> in California

>

>

>

>

>

>

>