Guest guest Posted June 14, 2009 Report Share Posted June 14, 2009 As I expected I was diagnosed with IPF last week. The first clues were x-rays last January during and 1 month following what was said to be flu / pneumonia. I vacationed in the tropics and SCUBA dove once in March. The xrays after this were " abnormal " and fibrosis was said by my family doctor. After I went thru: Pulmonlogist, ct-scan, exercise test, breathing test, pulmonlogist, cardiologist, pulmonlogist and a diagnosis of IPF. I have to do 8 minute walk test and a cardia echography exercise tes Pulmonologist said no effective treatments exist, 5-10% possibility with antiinflamatory drugs with lots oof side effects. Need to get me on transplant list quickly and see if I should get oxygen. I`ve been suspecting I had breathing problems since 2006 with the stairs at work. Prior to that in 2000 at high altitude when climbing inclines and my problems with summer heat. I had restarted SCUBA diving then. Last summer was especially worrying. I had discomfort in my chest. I feel better in buildings with airconditioning. Outside today or with windows open I feel a warmth in my chest. Prior to all this I was using antihistamines & decongestants in 2007, I stopped. I was prescribed Nasonex, this gave me a cough and hurt my chest. Later Rhinocort & lozec. The Rhinocort gave me a cough. I stopped taking it in April and my coughing subsided 90%. I cough sometimes when I eat and clear post nasal drip caught in my nasal passage or throat. Quote Link to comment Share on other sites More sharing options...
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