Guest guest Posted July 7, 2009 Report Share Posted July 7, 2009 Jane Oh my....I don't even go to Emory but I'm heartbroken for you to lose Dr. and Tamra. I had one of the greatest conversations with her over a year ago. I have tremendous respect for them both and I bet they were highly recruited to their new position. In Louisville it would either be the University of Louisville or it could be Jewish Hospital there. > > > > > > >> > > > > > > >> This morning I was evaluated for pulmonary rehab at the > Duke Center for Living-Fitness Center. I met with a respiratory > therapist who explained the program and then I had my 6 minute walk. > First time ever I did a 6 minute walk on an indoor track instead of a > treadmill. I started out at 6 liters and after two laps, the RT upped my > flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly a > 1/4 mile. My sats stayed in the low to mid 90's. > > > > > > >> > > > > > > >> Then I did an exercise tolerence test which seemed to be > very similar to a cardiac stress test but with the added attraction of > ABG's both before and after. The fun just never ends huh? LOL > > > > > > >> I passed everything with flying colors and the next round > of rehab that has spaces available starts 9/9/09. > > > > > > >> The program at Duke runs for 4 weeks, 5 days a week from > 12:30 to 4:30. Intense...as a matter of fact it's actually called > " Intensive Pulmonary Rehabilita tion " . (The RT's at my old pulmonary > rehab program referred to Duke's as the 'boot camp of pulmonary rehab'.) > It involves walking, stationary bike, weight training, pool walking and > educational lectures. I am actually looking forward to it. I need a kick > start in the exercise dept. I expect it to be both tough and challenging > but nothing ventured, nothing gained right? > > > > > > >> > > > > > > >> We'll see...by the end they'll probably be mopping me up > with a dishtowel. lol > > > > > > >> > > > > > > >> Beth > > > > > > >> Moderator > > > > > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > >Wow Beth that is some Pulminary Rehab. My Pulminary > Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16 > weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and 7 > min of hand bike, then 15 min on treadmill. Then I see the Physical > Therapist for one hour, 8 min. on total gym, then 3 min of stair steps, > then arm weights. That is all I do. > > > > > > > > > > > > > >Today I had my 6MW test. When I first got there I was told I > was having PFT's. I said no I was there for a 6MW, she said no I was > scheduled for PFT's. I said NO I was there for a 6MW. She finially > called the DR. and found out I was supposed to have a 6MW sombody had > made a mistake and scheduled me for PFT's. She finially did the 6MW. I > started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at 85, > then I dropped every min, at 6min I was at 76. It took 2 min for my sats > to come back up to 96. She said I definately qualify for o2. > > > > > > >This afternoon my o2 was delivered. I am on 2lpm with > exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, > they are in a backpack but the are heavy. I can't imagine being gone for > 8 hrs. with these. They told me later I could switch to something else. > I guess this will be a learning experience. I can see why some people > never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how this > goes. More later. > > > > > > > > > > > > > >Jo Ann 53 MI UIP 9/07 > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 I did not see a new Dr. yet as Dr. asked me to delay my tests as he wanted me to see the new Dr. I am still waiting for a call to find out who my new Dr. will be. Joe   JOE & JOANIE LAMENSKIE IPF JAN. 2008 -- Re: Pulmonary Rehab Eval JaneOh my....I don't even go to Emory but I'm heartbroken for you to loseDr. and Tamra. I had one of the greatest conversations with herover a year ago. I have tremendous respect for them both and I bet theywere highly recruited to their new position. In Louisville it wouldeither be the University of Louisville or it could be Jewish Hospitalthere.> > > > > > >>> > > > > > >> This morning I was evaluated for pulmonary rehab at the> Duke Center for Living-Fitness Center. I met with a respiratory> therapist who explained the program and then I had my 6 minute walk.> First time ever I did a 6 minute walk on an indoor track instead of a> treadmill. I started out at 6 liters and after two laps, the RT uppedmy> flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughlya> 1/4 mile. My sats stayed in the low to mid 90's.> > > > > > >>> > > > > > >> Then I did an exercise tolerence test which seemed to be> very similar to a cardiac stress test but with the added attraction of> ABG's both before and after. The fun just never ends huh? LOL> > > > > > >> I passed everything with flying colors and the next round> of rehab that has spaces available starts 9/9/09.> > > > > > >> The program at Duke runs for 4 weeks, 5 days a week from> 12:30 to 4:30. Intense...as a matter of fact it's actually called> "Intensive Pulmonary Rehabilita tion". (The RT's at my old pulmonary> rehab program referred to Duke's as the 'boot camp of pulmonaryrehab'.)> It involves walking, stationary bike, weight training, pool walkingand> educational lectures. I am actually looking forward to it. I need akick> start in the exercise dept. I expect it to be both tough andchallenging> but nothing ventured, nothing gained right?> > > > > > >>> > > > > > >> We'll see...by the end they'll probably be mopping me up> with a dishtowel. lol> > > > > > >>> > > > > > >> Beth> > > > > > >> Moderator> > > > > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08> > > > > > >> > > > > > >Wow Beth that is some Pulminary Rehab. My Pulminary> Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16> weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and7> min of hand bike, then 15 min on treadmill. Then I see the Physical> Therapist for one hour, 8 min. on total gym, then 3 min of stairsteps,> then arm weights. That is all I do.> > > > > > >> > > > > > >Today I had my 6MW test. When I first got there I was toldI> was having PFT's. I said no I was there for a 6MW, she said no I was> scheduled for PFT's. I said NO I was there for a 6MW. She finially> called the DR. and found out I was supposed to have a 6MW sombody had> made a mistake and scheduled me for PFT's. She finially did the 6MW. I> started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at85,> then I dropped every min, at 6min I was at 76. It took 2 min for mysats> to come back up to 96. She said I definately qualify for o2.> > > > > > >This afternoon my o2 was delivered. I am on 2lpm with> exertion. They brought me 7 tanks that each last about 3-3 1/2 hours,> they are in a backpack but the are heavy. I can't imagine being gonefor> 8 hrs. with these. They told me later I could switch to somethingelse.> I guess this will be a learning experience. I can see why some people> never go anywhere. Tomorrow I go to Pulminary Rehab, I will see howthis> goes. More later.> > > > > > >> > > > > > >Jo Ann 53 MI UIP 9/07> > > > > > >>> > > > > > >> > > > > > >> > > > > >> > > > >> > > >> > >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2009 Report Share Posted July 8, 2009 Hello Joe & Joanie, Sorry to hear about all the changes at Emory - Four years ago when I was diagnosed, I tried to find an ILD specialist and Emory was just in the process of setting up that department. I am wondering what the Emory facility offers since I live in Fayetteville and right now I travel to Duke every 3 months. Duke is fabulous and I hesitate to change but it is worth looking into to see if the program is equal. Being closer to home would be easier on my husband. Have you been happy with the care and programs since you have been going to Emory? Would you keep us all posted on what changes take place in the pulmo program and what you think of the new doctors that come into the department? Thanks so much, Dorothy - Fayetteville, GA UIP 7/05 > > > > > > > >> > > > > > > > >> This morning I was evaluated for pulmonary rehab at the > > Duke Center for Living-Fitness Center. I met with a respiratory > > therapist who explained the program and then I had my 6 minute walk. > > First time ever I did a 6 minute walk on an indoor track instead of a > > treadmill. I started out at 6 liters and after two laps, the RT upped > my > > flow to 8 liters. I walked a total of 1320 feet in 6 minutes, roughly > a > > 1/4 mile. My sats stayed in the low to mid 90's. > > > > > > > >> > > > > > > > >> Then I did an exercise tolerence test which seemed to be > > very similar to a cardiac stress test but with the added attraction of > > ABG's both before and after. The fun just never ends huh? LOL > > > > > > > >> I passed everything with flying colors and the next round > > of rehab that has spaces available starts 9/9/09. > > > > > > > >> The program at Duke runs for 4 weeks, 5 days a week from > > 12:30 to 4:30. Intense...as a matter of fact it's actually called > > " Intensive Pulmonary Rehabilita tion " . (The RT's at my old pulmonary > > rehab program referred to Duke's as the 'boot camp of pulmonary > rehab'.) > > It involves walking, stationary bike, weight training, pool walking > and > > educational lectures. I am actually looking forward to it. I need a > kick > > start in the exercise dept. I expect it to be both tough and > challenging > > but nothing ventured, nothing gained right? > > > > > > > >> > > > > > > > >> We'll see...by the end they'll probably be mopping me up > > with a dishtowel. lol > > > > > > > >> > > > > > > > >> Beth > > > > > > > >> Moderator > > > > > > > >> Fibrotic NSIP 06/06 Dermatomyositis 11/08 > > > > > > > > > > > > > > > >Wow Beth that is some Pulminary Rehab. My Pulminary > > Rehab is nothing like that. I go Tues. and Thur. for 2 hours, for 16 > > weeks. I see a Respritory Therapist for one hour, 15 min on NuStep and > 7 > > min of hand bike, then 15 min on treadmill. Then I see the Physical > > Therapist for one hour, 8 min. on total gym, then 3 min of stair > steps, > > then arm weights. That is all I do. > > > > > > > > > > > > > > > >Today I had my 6MW test. When I first got there I was told > I > > was having PFT's. I said no I was there for a 6MW, she said no I was > > scheduled for PFT's. I said NO I was there for a 6MW. She finially > > called the DR. and found out I was supposed to have a 6MW sombody had > > made a mistake and scheduled me for PFT's. She finially did the 6MW. I > > started out a 96 at rest. At 1min I dropped to 90, at 2 min I was at > 85, > > then I dropped every min, at 6min I was at 76. It took 2 min for my > sats > > to come back up to 96. She said I definately qualify for o2. > > > > > > > >This afternoon my o2 was delivered. I am on 2lpm with > > exertion. They brought me 7 tanks that each last about 3-3 1/2 hours, > > they are in a backpack but the are heavy. I can't imagine being gone > for > > 8 hrs. with these. They told me later I could switch to something > else. > > I guess this will be a learning experience. I can see why some people > > never go anywhere. Tomorrow I go to Pulminary Rehab, I will see how > this > > goes. More later. > > > > > > > > > > > > > > > >Jo Ann 53 MI UIP 9/07 > > > > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.