Guest guest Posted October 20, 2008 Report Share Posted October 20, 2008 My aminotest was in blood. It says it is low on cystein-cystin.(German language) And low in tryptofan. Very high in Taurin. I will anyway try the NAC, if I can help me. Livene > > > > Hi! I have been on the SCD for 40 days, and still do not have any > > improvement. > >I STILL cant tolerate supplements! > > There are lots of parents in the autism mercury group who report that > their kids can't tolerate supplements. It usually takes a certain > amount of chelation before they start to tolerate supplements. > > In the meantime, it takes some thinking about what you can do to ensure > that you are getting adequate nutrition plus sneaking in some of the > things that mercury poisoned people are known to be low in somehow. > > The SCD is good for some people to help to resolve gut issues so that > more of what you do eat is absorbed and utilized and the gut can start > to heal so that small pieces of undigested foods don't get into > circulation and stimulate the immune system. It is a starting place. > > The SCD is designed to nourish the person, encourage the gut organisms > that are favorable, discourage the gut organisms that are not > favorable, and also provide a favorable environment for gut healing. > > The 4 esssential supplements that Andy recommends are vit C, vit E, > zinc, and magnesium. Vit E is an oil that comes in capsules. The > capsules can be pricked with a pin and the oil rubbed on the skin. It > is good for the skin and is one way to get that supplement. Zinc and > magesium can also be found as ointments that can be rubbed on the > skin. Vitamin C can be purchased as pure ascorbic acid and small > amounts added to food, gradually increasing the amounts. If you can't > find a vitamin C source that you can tolerate then be sure to eats lots > of fresh fruits and vegetables that are high in antioxidants. > > Be sure that any supplements that you do try have very few additives if > any. > > Omega 3 can be obtained by eating frequent fish meals - the fish have > to be small or they might be high in heavy metals. I think Andy said > that wild salmon is usually ok. Walnuts are high in omega 3 as well. > Flax oil if you can tolerate it. > > > > > Maybe just tiny doses > > of c-vitamin and magnesium. I tried B-vitamin and my arms begun to > hurt. > > > B vitamins can be obtained by eating organic liver. > > > > > > I have been eating food without sulphur, but I don't know if I > > tolerate sulphur. I was so confused, so I just never stopped it. > > > > > It doesn't hurt to avoid sulfur foods for now. When you are feeling > better you could try a challenge. > > > > > > Now I have got my new amino acid-test. > > > Is this a blood test or urine test? We would really need to know that > before anyone could comment. > > > > It shows low tryptophan. But > > when I am on the antidepressant drugs that affect the serotonin, can I > > take the tryptophan or 5-HTP? > > > > I was really low on the cystein. > > > Are you sure that it was cysteine and not cystine? > > We are not able to get a blood test over here for plasma cysteine > anymore. Cystine is not the same thing. > > > > > The test told me it could reduce the > > glutathion production. I am supposed to take n-acetyl-cystein. > > > > > I guess this does not really make much difference until you can > tolerate supplements. > > It would help to know if they tested urine or blood and if they tested > cystine or cysteine. > > J > > > > > Livene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 21, 2008 Report Share Posted October 21, 2008 > > My aminotest was in blood. It says it is low on cystein-cystin.(German > language) This test probably doesn't help with what we are concerned about when we avoid sulfury foods and supplements. The sulfury part that we are concerned about is readily available thiols. Cysein has readily available thiols and cystin does not, so lumping them together in the test doesn't help. Really the only way to test is with a sulfur food exclusion diet and challenge. I think there is a file in the files section that explains how to do it. > And low in tryptofan. It's probably ok to try tryptophan or 5 HTP, noting your symptoms when trying them. It's best to try one thing at a time. > Very high in Taurin. > I will anyway try the NAC, if I can help me. > If you react to NAC it is probably because of the thiols, or sulfur food reaction. If you can tolerate it that is very good because it is a powerful antioxidant, besides a source of cysteine for those who need it. If you can take NAC you might want to add glutamine and glycine. Those are available in powder form and easy to supplement, and they are both very beneficial anyway. See p 43 of AI. > Livene > > > > > > > > Hi! I have been on the SCD for 40 days, and still do not have any > > > improvement. > > >I STILL cant tolerate supplements! > > > > There are lots of parents in the autism mercury group who report that > > their kids can't tolerate supplements. It usually takes a certain > > amount of chelation before they start to tolerate supplements. > > > > In the meantime, it takes some thinking about what you can do to ensure > > that you are getting adequate nutrition plus sneaking in some of the > > things that mercury poisoned people are known to be low in somehow. > > > > The SCD is good for some people to help to resolve gut issues so that > > more of what you do eat is absorbed and utilized and the gut can start > > to heal so that small pieces of undigested foods don't get into > > circulation and stimulate the immune system. It is a starting place. > > > > The SCD is designed to nourish the person, encourage the gut organisms > > that are favorable, discourage the gut organisms that are not > > favorable, and also provide a favorable environment for gut healing. > > > > The 4 esssential supplements that Andy recommends are vit C, vit E, > > zinc, and magnesium. Vit E is an oil that comes in capsules. The > > capsules can be pricked with a pin and the oil rubbed on the skin. It > > is good for the skin and is one way to get that supplement. Zinc and > > magesium can also be found as ointments that can be rubbed on the > > skin. Vitamin C can be purchased as pure ascorbic acid and small > > amounts added to food, gradually increasing the amounts. If you can't > > find a vitamin C source that you can tolerate then be sure to eats lots > > of fresh fruits and vegetables that are high in antioxidants. > > > > Be sure that any supplements that you do try have very few additives if > > any. > > > > Omega 3 can be obtained by eating frequent fish meals - the fish have > > to be small or they might be high in heavy metals. I think Andy said > > that wild salmon is usually ok. Walnuts are high in omega 3 as well. > > Flax oil if you can tolerate it. > > > > > > > > > > Maybe just tiny doses > > > of c-vitamin and magnesium. I tried B-vitamin and my arms begun to > > hurt. > > > > > > B vitamins can be obtained by eating organic liver. > > > > > > > > > > > I have been eating food without sulphur, but I don't know if I > > > tolerate sulphur. I was so confused, so I just never stopped it. > > > > > > > > > It doesn't hurt to avoid sulfur foods for now. When you are feeling > > better you could try a challenge. > > > > > > > > > > > Now I have got my new amino acid-test. > > > > > > Is this a blood test or urine test? We would really need to know that > > before anyone could comment. > > > > > > > > It shows low tryptophan. But > > > when I am on the antidepressant drugs that affect the serotonin, can I > > > take the tryptophan or 5-HTP? > > > > > > I was really low on the cystein. > > > > > > Are you sure that it was cysteine and not cystine? > > > > We are not able to get a blood test over here for plasma cysteine > > anymore. Cystine is not the same thing. > > > > > > > > > > The test told me it could reduce the > > > glutathion production. I am supposed to take n-acetyl-cystein. > > > > > > > > > I guess this does not really make much difference until you can > > tolerate supplements. > > > > It would help to know if they tested urine or blood and if they tested > > cystine or cysteine. > > > > J > > > > > > > > > Livene > > > > > > Quote Link to comment Share on other sites More sharing options...
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