Re: Fwd: Joyce, Sher, Patti and all

[Guest guest]

Peggy

Doing it all is overrated. I worked much too hard, too many hours, too

long. Getting some assistance or others to wait on us is deserved.

Whether its one year or ten this is our time for that and actually it's

pretty neat some of the time to ask people or allow people to help. Now,

I know your mobility is very diminished but still the things that really

matter in your life, your friends and family, are there for you to enjoy

and I know you well enough to know you do. Sometimes just sitting on the

porch and observing nature is beautiful.

I take my trips online rather than in a book, but I do take lots of

them, Peggy. Thats the thing I'm most greatful for, that our minds are

spared and still allow us to take those trips as well as communicate

with others. You with your kindle, me with my computer monitor. I think

how lucky to be in this time as opposed to times past where you really

did get cut off from the outside world if you lost mobility. I take a

little hug trip everytime I think of you.

Can't wait to see you in Chattanooga.

I know its tough as we lose friends, but as this board ages thats going

to be more frequent. We each will have to struggle to find our ways of

keeping ourselves going and our attitudes positive as we face that. I'm

willing to deal with those losses because they are preceeded by such

gains. I've gotten to know those who have died and I treasure those

friendships. Trying not to be too corny but the old line " better to have

loved and lost than never to have loved at all. " Well, for me, it's

better to have known and lost the incredible friends we have lost than

to have never known them. We all come here knowing that we are at some

point likely to be the one leaving. I can't think of anywhere I'd rather

spend some of the quality time I have left than here among friends. I

think thats where we need to get our solace, that our friends found

being among us comforting, pleasurable, or reassuring in some way. That

they chose to share their lives with us, even as they approached the

final moments. That truly says so much for the depth of friendships and

love in the forum. That love is what characterizes this forum, not that

one moment of death. I know I'll carry the love and strength and courage

of so many who have been before me to the end. I don't think of most of

our friends as dying but I think of them as relieved and set free from

any more suffering. I'm sad that we're seeing the frequency increase and

will continue to do so, but that also shows that we're serving as a

community that is here for each of us through every stage and to the

end.

>

>

>

> Subject: Joyce, Sher, Patti and all

>

> You are all sweet to be concerned about me.. I am just having trouble

> again with progression. I was so upset

> about not being able to do anything but I have come to realize I was

> diagnosed 5 years ago this month and was told at that time I was in

> advanced stages SOOO I guess I am blessed to have this day and am

> making plans to go to Kentucky the end of this month with

> , and Amber. Them to be in Chattanooga in October. So I

> just have to realize I have to be waited on and just

> do the best I can without becoming a pain in the BOOTÃ. I still

say

> this is just almost to much to ask of a woman that wants to do it

> ALL.. and has until this monster came to live here. But I am thankful

> for this and every other day I am privileged to have.

> I am so thankful for my Kindle I read. read, read.. It really does

> take me all over the world.. In so many situations that I am

> enjoying. So I do encourage you if you find yourself with time to

> spare... take a trip in a book.

> Mysteries are hard on ya if you forget to breathe or hold your breath

> until ya shoot the bad guy.. LOL

>

> I still pray for this Air Family daily and do wish I could do

> something, anything to make this easier on all of us.

> This has just been such a really rough month or so.

>

>

> Love and Prayers, Peggy

> IPF 2004, Florida

>

> Worry looks around,

> Sorry looks back,

> Faith looks up.

>

>

> 

>

[Guest guest]



Peggy... I'm trying to imagine what the progression is like...the changes and all.

I do know how difficult it is for you to be dependant on others when you want to be the one in the kitchen shakin' those pots and pans.

Ya know something, our disease gives us an opportunity to learn how to accept help and love from others. That's hard to do when we are used to being the givers.

Glad you like your Kindle. I may get one down the road.

Keep on keepin' on kiddo.

I'm with you all the way...

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all

You are all sweet to be concerned about me.. I am just having trouble again with progression. I was so upset

about not being able to do anything but I have come to realize I was diagnosed 5 years ago this month and was told at that time I was in advanced stages SOOO I guess I am blessed to have this day and am making plans to go to Kentucky the end of this month with

, and Amber. Them to be in Chattanooga in October. So I just have to realize I have to be waited on and just�

do the best I can without becoming a pain in the BOOT�. I still say this is just almost to much to ask of a woman that wants to do it ALL.. and has until this monster came to live here. But I am thankful for this and every other day I am�privileged�to have.

I am so thankful for my Kindle I read. read, read.. It really does take me all over the world.. In so many situations that I am�

enjoying. So I do encourage you if you find yourself with time to spare... take a trip in a book.�

Mysteries are hard on ya if you forget to breathe or hold your breath until ya shoot the bad guy.. LOL�

I still pray for this Air Family daily and do wish I could do something, anything to make this easier on all of us.�

This has just been such a really rough month or so.�

Love and Prayers, Peggy ��

IPF �2004, �Florida

Worry looks around,

�Sorry looks back,

��Faith looks up.

[Guest guest]

Sher

Great news on the housing.

As to the prednisone, I don't recall what dosage you're on. Certainly

with a low dosage, say 10 mg, the side effects are reduced. However,

they are still lurking there once you go beyond two to three weeks on

it. Now, the benefits may or may not be greater than the side effects,

but I wouldn't suggest it as a feel good drug. If its helping your

breathing then there must have been some inflammation. If, as we've

suspected but never had confirmed, you have NSIP or one of the others

other than UIP, then it might well be helping to slow or stop the

progression. The decision is a very personal one. But if you do continue

the prednisone for a while, you need to take the precautions to minimize

the side effects. This means take something for your bones, manage diet

and watch your sugar levels for diabetes as well as weight gain, and

recognize your lowered immunity and be even more careful regarding

germs.

> >

> >

> >

> > Subject: Joyce, Sher, Patti and all

> >

> > You are all sweet to be concerned about me.. I am just having

trouble

> > again with progression. I was so upset

> > about not being able to do anything but I have come to realize I

was

> > diagnosed 5 years ago this month and was told at that time I was

in

> > advanced stages SOOO I guess I am blessed to have this day and am

> > making plans to go to Kentucky the end of this month with

> > , and Amber. Them to be in Chattanooga in October. So

I

> > just have to realize I have to be waited on and just

> > do the best I can without becoming a pain in the BOOTÃ. I

still

> say

> > this is just almost to much to ask of a woman that wants to do it

> > ALL.. and has until this monster came to live here. But I am

thankful

> > for this and every other day I am privileged to have.

> > I am so thankful for my Kindle I read. read, read.. It really does

> > take me all over the world.. In so many situations that I am

> > enjoying. So I do encourage you if you find yourself with time to

> > spare... take a trip in a book.

> > Mysteries are hard on ya if you forget to breathe or hold your

breath

> > until ya shoot the bad guy.. LOL

> >

> > I still pray for this Air Family daily and do wish I could do

> > something, anything to make this easier on all of us.

> > This has just been such a really rough month or so.

> >

> >

> > Love and Prayers, Peggy

> > IPF 2004, Florida

> >

> > Worry looks around,

> > Sorry looks back,

> > Faith looks up.

> >

> >

> > 

> >

>

[Guest guest]

Sher

As long as you're talking a low dosage such as 10 mg any decision is

reversible. Can always get back on or get off. At least you know that if

you face an attack of some sort the short tapering regimen is something

you handle well.

> > >

> > >

> > >

> > > Subject: Joyce, Sher, Patti and all

> > >

> > > You are all sweet to be concerned about me.. I am just having

> trouble

> > > again with progression. I was so upset

> > > about not being able to do anything but I have come to realize I

> was

> > > diagnosed 5 years ago this month and was told at that time I was

> in

> > > advanced stages SOOO I guess I am blessed to have this day and

am

> > > making plans to go to Kentucky the end of this month with

> > > , and Amber. Them to be in Chattanooga in October.

So

> I

> > > just have to realize I have to be waited on and just

> > > do the best I can without becoming a pain in the BOOTÃ. I

> still

> > say

> > > this is just almost to much to ask of a woman that wants to do

it

> > > ALL.. and has until this monster came to live here. But I am

> thankful

> > > for this and every other day I am privileged to have.

> > > I am so thankful for my Kindle I read. read, read.. It really

does

> > > take me all over the world.. In so many situations that I am

> > > enjoying. So I do encourage you if you find yourself with time

to

> > > spare... take a trip in a book.

> > > Mysteries are hard on ya if you forget to breathe or hold your

> breath

> > > until ya shoot the bad guy.. LOL

> > >

> > > I still pray for this Air Family daily and do wish I could do

> > > something, anything to make this easier on all of us.

> > > This has just been such a really rough month or so.

> > >

> > >

> > > Love and Prayers, Peggy

> > > IPF 2004, Florida

> > >

> > > Worry looks around,

> > > Sorry looks back,

> > > Faith looks up.

> > >

> > >

> > > 

> > >

> >

>