Re: Re: Increase in List Members

[Guest guest]

Jack,

No epidemic...perish the thought. The numbers and participation in the group waxes and wanes. We've had no increase in numbers joining...it's staying at an average of 2 or 3 a week. We also have people unsubscribe for whatever reason at a rate of 3 a month or so.

What varies tremendously is how people participate. The majority of our members choose to lurk. That is read posts but not join in the conversation. We want people to do whatever makes them comfortable and use the group in whatever way works for them. Right now we've gotten into a very active phase but I've seen this many times before. It's wonderful to see so much activity on the board!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, August 14, 2009 9:11:01 AMSubject: Re: Re: Increase in List Members

It seems that we have become a much larger group within a short period of time. The number of posts daily

seem nearly double that of a few weeks ago. Is PF and its many manifestations becoming an epidemic? Jack79/IPF - UIP/dx06/05 Maine

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, August 14, 2009 8:05:56 AMSubject: Re: Re: Just made a photo album

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry

[Guest guest]

Beth and Jack

a couple of years ago when there were about 100+ posts daily

i stopped reading

too many to read at that

plus it was shortly after my brother died and i probably didn't want to deal with it at that time

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Increase in List MembersTo: Breathe-Support Date: Friday, August 14, 2009, 3:00 PM

Jack,

No epidemic...perish the thought. The numbers and participation in the group waxes and wanes. We've had no increase in numbers joining...it' s staying at an average of 2 or 3 a week. We also have people unsubscribe for whatever reason at a rate of 3 a month or so.

What varies tremendously is how people participate. The majority of our members choose to lurk. That is read posts but not join in the conversation. We want people to do whatever makes them comfortable and use the group in whatever way works for them. Right now we've gotten into a very active phase but I've seen this many times before. It's wonderful to see so much activity on the board!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: Jack Marshall <mrshlljck (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, August 14, 2009 9:11:01 AMSubject: Re: Re: Increase in List Members

It seems that we have become a much larger group within a short period of time. The number of posts daily

seem nearly double that of a few weeks ago. Is PF and its many manifestations becoming an epidemic? Jack79/IPF - UIP/dx06/05 Maine

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, August 14, 2009 8:05:56 AMSubject: Re: Re: Just made a photo album

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

From: worth <hope2thend (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 10:22:46 PMSubject: Re: Re: Just made a photo album

I've been on Prednisone 4-5 weeks and I've lost 8lbs! It keeps me wired all the time, I have increased anxiety and worry. I feel like I do everything in a rush, like I'm under some kind of pressure and I get spun-up about stuff or irritated. I talk faster and more and I can't sleep without taking a sleeping pill. I like the weight loss but don't like the crazy mania I feel. Sometimes in the afternoon I'll start to feel calm and sleepy only to get all spun-up again an hour or two later. It's crazy!

C_53_IPF_5/09Washington-the- Evergreen- state

From: Beverley Joy <sparrow_98367@ yahoo.com>To: Breathe-Support@ yahoogroups. comSent: Wednesday, August 12, 2009 7:46:15 PMSubject: Re: Re: Just made a photo album

I've gained 35 pounds since January and I now have diabetes. I hate prednisone.Beverley Joy,71, UIP,NSIP 1-09,Diabetes, Sjogren's, Fibromyalgia Idaho

From: Drisana Merry <drisanamerry@ yahoo.com>Subject: Re: Just made a photo albumTo: Breathe-Support@ yahoogroups. comDate: Wednesday, August 12, 2009, 12:38 PM

Thank you. They are my life savers. Brittany the mama has saved my live at least three times and they all know when I stop breathing to go get dad...now to teach them how to dial 911.She knows sign language well did when she was growing up (she is 18 or 19 years old now) I taught her sign language but she only rmembers sit down and out and NO..I was ravanious on the predisone did any of the rest of you do that? I ate almost an entire ten inch chicken pot pie I had made that usually lasts us for several meals (freeze portions and eat small fresh) my poor husband only got a very very small piece of it...hugs and blessings and thank you all for making me feel welcome and sharing all that you have learned.merry