Re: Could we just be moving metals around

[Guest guest]

---I have done so many tests you wouldn't believe and trying not to be

too negative I am really stumped at the moment. We've discussed my

progress before when I did the below mentioned testing but I feeling

more and more dispondent as time goes on.

I really wish that someone like Andy could give people like me some

encouragement as I have been faithful to this protocol and am really

getting nowhere fast. And now it seems as though there may be little

point in stirring up all these metals with the chelators if my kidenys

and liver can't deal with it. Is that right?

After 19 months of 25mgs DMSA and a couple of rounds with 1mg ALA

(that's all the ALA I can handle), plenty of mercury in the blood and

none in the urine on round. No improvements other than being able to

increase the DMSA slightly after starting molybdenum and generally

quality of life getting slowly worse as well as motivation and hope

dwindling slowly away too. This is so, so frustrating and dissapointing.

I have fast 1, slow 2 liver phases, cystinuria (which no one here

seems to know about or share), multiple hormone problems which don't

respond to therapy because of the metals,symptoms of Myasthenia, I'm

unable to take the recomended supplements for one thing becasue of

another anomaly (such as NAC for example)and I am really really

exhausted with studying all this and Andy's book month after month and

all the other research relating to whatever other problem I have

recently unearthed.

Sorry, this has turned into a miserable moan. I do firmly believe that

Andy's protocol is the only one and that he knows exactly what he's

talking about but there are people like me who are struggling with so

many complications and realy stuck in a rut still.

This subject of whether or not the metals are actually leaving my body

is one which I am still not convinced of. I have more and more doubts

as time goes on.

BUT to end on a positive note - to all you newer folk on the list -

don't let my tale dishearten you becasue this is a fabulous group,

Andy's protocol is the only way to go IMHO and the majority of people

don't seem to be anywhere near as complicated as me. There are lots of

people here who ARE improving. Maybe I'm one who just needs a few more

years!!!

In frequent-dose-chelation , Sherratt

wrote:

>

> Hi ,

>

> Yes, I remember discussing this blood test now that you mention it.

That is odd. If it were me I would probably want to keep testing

until I figured out what was going on. All in all, it would be great

if there was more testing and study of levels of excretion and burden

in blood, urine, and feces during and between rounds of chelation. It

would be great if you could get together 5-10 patients who were

starting out, agree on a protocol and tests, and put together a paper

at the end.

>

> Good luck,

>

> Dave

>

> > Thanks for that good explanation. However, I forgot to

> > mention that

> > the reason this was also so annoying for me at the time was

> > because I

> > had a blood test the same week a few days after the DMSA

> > round)which

> > showed high levels of mercury in my blood.

> >

> > So obviously the extra cellular mercury was still there in

> > plentiful

> > amounts.

> >

>

> > > >

> > > > I just wanted to point out that some of us

> > don't get

> > > > any detectable

> > > > mercury excretion in urine tests when chelating.

> > I did a 24

> > > > hour urine

> > > > collection test earlier this year whilst on a

> > round of DMSA

> > > > and there

> > > > was no detectable mercury.And I am extremely

> > toxic.

> > > >

> > > > I was extremely dissapointed as this would have

> > been great

> > > > to show to

> > > > Doctors. But aparently, according to discussions

> > on this

> > > > board at that

> > > > time, this is actually quite common, especially

> > amoungst

> > > > the autistic

> > > > kids group.

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > In frequent-dose-chelation ,

> > Sherratt

> > > >

> > > > <reconstructions@> wrote:

> > > > >

> > > > > Hi Sheila,

> > > > >

> > > > > Many people in this group, including myself,

> > have had

> > > > urine tests

> > > > with and without DMSA chelation. I did not pass

> > any

> > > > mercury when I

> > > > was not chelating and passed amounts above the

> > reference

> > > > levels when I

> > > > was chelating.

> > > > >

> > > > > I have heard more detailed but similar

> > results from

> > > > many others on

> > > > this board. If your doctor doubts that DMSA

> > chelates

> > > > mercury, a urine

> > > > test would be the quick and easy way to confirm

> > what is

> > > > well known

> > > > about DMSA (i.e., that it increases mercury

> > excretion in

> > > > urine).

> > > > >

> > > > > Good luck,

> > > > >

> > > > > Dave

> > > > >

> > >

>

[Guest guest]

Hi You said that you have done 2 rounds with ALA , and

at a dose of 1mg.. that is so little that it would not be

enough time to see any improvements.

What sort of symptoms do you get with the ALA?? I figure if you

are getting some negative effects that means metals are being

pulled out.\

I would be interested at this point to find out if one should be

increasing DMSA above a certain level , say 25 mg that you are

using until after ALA is increased?? I have not

researched it yet , but will put it out now to the group.

From what I have gathered a test is not going to show for

sure what is being excreted.. So it goes more about your

symtoms.?? I had gone up to 50 mg DMSA but when the 50mg ALA

is too much for me I have lowered both to 25mg. IS there any

point to take the 50 mg DMSA plus the 25 ALA. Or should I put my

money elsewhere>

I would be interested in Andy anwerering your questions too. Nanci