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Hi all,

Kristi reminded me how important it is for us as patients to be sure that

someone knows how to get in touch with our " air family " in the event something

happens. I know it's not something we like to think about, but I know that

there are members or past members that we have no idea what happened to them and

like a lost relative you are always wondering if they are ok.

So, please be sure to let your loved one know how to get on the site to update

us in case anything happens.

Thank you for your consideration in this matter.

Leanne Storch

uip diagnosed January, 2003 Chicago

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