Re: Bob

[Guest guest]

Hi Bob, Welcome to our Air Family. The first thing we all needed to realize is we are NOT going to die tomorrow.. Live your life like youhave that 40 years.. You can see by my signature I have been diagnosed for over 5 years and am still kicking even though not getting my feet up more than a few inches.. LOL Without my Faith and the peace I have I would be a basket case. I know God has a plan. You are very wise to go on a cruse. That will be so much fun. Have you seen where some of us are going to meet in Oct. in Chattanooga, Tn.We have had a couple meetings just to yack and hug and encourage..IT is wonderful. If your Dr's give you a time frame ask them to show you where the expiration date is stamped.. NOT They don't really know. Where do you live ? I hope you are going to a University Medical Center. You have the advantage of all your tests and Dr under one roof.I do anyhow. I go to Shands at UF in Gainesville.Enough for now again Welcome and tell your wife to relax a bit. There is a Caregiver support group also. Just look on the home page and you will find the site address.God Bless you with strength and peace to endure.. You are NOT alone. Take Care of you. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Hi Beth and Everyone else.... My name is Bob and I have been lurking since some time in Jan. I was Dx with IPF Jan 8,09. I have to thank all the regulars on this board, I learned more here than anywhere else. I guess its understandable since We are all living it! Not JUST talking about it! The first thing all Newbies want to know is... what "stage" they are in or how long do they have? I( of course, did the same. At the first Dx Dr told me I had IPF, there is no cure and survival rate is 3 years! Needless to say, Diane (my wife) and I were devastated. Went home in a daze, never heard of pf ....and now I will die from it! Thank God for this board, I learned I may have more time , than the three years I was told. The next time I went to see Dr. , he was not in, so....I saw his associate, Dr Lovey (just by his name I knew things were going to get better!) sure enough, he said maybe its not as dire as Dr. first said. he said we'd wait 3 Mos then get another HRCT make comparisons and see what we see. So,.....the next time I saw Dr Lovey he said,"Bob you really move air very well, you have a lot of muscle and I see no reason you can't live another 40 years! Oops...How old are you? I Said 69. He said OK then, lets say 30 yrs, no guarantee after that"..... So...........Somewhere between 3 and 30?????Both Dr's are pulomonologists....I am on 2-3 lpm of O2 walking , none sitting, 4-5 Exercising. I had 5 bypases in 01. Diane and I just booked a 14 day Mediterranean Cruise for this November. From: Beth <mbmurtha (AT) yahoo (DOT) com>Subject: Re: JUST DROPPIN' INTo: Breathe-Support Date: Thursday, August 13, 2009, 12:46 PM Sher, I'm glad your halfway done with this. How smart of you to plan a couple of down days before the movers come. Great planning! We miss you too and we'll be here when you are settled in. Look after yourself and Rich! Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: Sher Bauman <bofus (AT) wbcable (DOT) net>To: Breathe-Support@ yahoogroups. comSent: Thursday, August 13, 2009 12:39:08 PMSubject: JUST DROPPIN' IN WHOOO BOY, WE ARE FINALLY FINISHED PACKING AND READY TO GO ON SUNDAY. GOSH, THIS HAS BEEN A HARD MOVE AND WE ARE ONLY HALF FINISHED. REALLY SHOWS ME WHAT I USED TO DO AND HOW QUICKLY I USED TO DO IT. THIS PACKING ALSO SHOWS ME I DEFINITELY HAVE TAKEN IT 'EASY DOES IT'...THUS TAKING SO LONG TO FINISH. OH WELL. I'M GLAD WE HAVE A COUPLE OF DAYS (PLANNED) BEFORE THE MOVE SO RICH AND I CAN JUST REST UP... IF EVERYONE SHOWS UP THERE WILL BE 9 TO HELP LOAD THE TRUCK AND A COUPLE OF PICKUPS. I MISS MY AIR-FAMILY! I FEEL OUT OF TOUCH AND DISCONNECTED. YOU MAY NOT NEED TO HEAR FROM ME BUT I NEED TO POST EVEN WHEN IT'S JUST ABOUT MOVING RIGHT NOW. DENISE....I DID CATCH YOUR POST. GOODNESS I'M CONCERNED ABOUT YOU. I HOPE YOU CAN SEE A DOC SOONER AND I KNOW THE OXYGEN WILL HELP YOU LOTS! DO THE NEW MEDS SEEM TO HELP OR IS IT TOO SOON TO KNOW? APOLOGIES FOR WRITING IN CAPS. IT'S EASIER ON MY HANDS...GUESS NEXT TIME I COULD MAKE THE PRINT SMALLER? NO, THAT'S TOO SMALL! BYE FOR NOW. GOD BLESS EVERYONE. LOVE YA. MamaSher; 71, IPF 3-2006, OR.Don't fret about tomorrow, God is already there!