Update on us

[Guest guest]

Hi all,

Thought I would write a update on us , as I havent in awhile,

Joe continues to do pretty good, he has had unexplained pains in his left

chest area for a few weeks, radiates all the way through to back, decided to go

to the docs to get it checked, she said ( what we think ) is that he pulled

something , but she wants to do a chest ct scan as a precaution, ( we are all

for that )

He has also been getting reallllllly tired lately ( unusual for him) however

he works REALLY weird hours 130am-930am 6 days a week , physical labor.

And never gets more than 7hours a sleep a night , so we think this is the

reason.

He goes for his first colonoscopy ( the other one didnt count as they couldnt

do it ) on Nov 30.

Dani our daughter , continues to have a variety of odd things going on with

her , unexplained joint pain ( shoulder , hip) episodes of staggering ( almost

like she is drunk) we believe this is all due to the chiari/syrinx in spine but

wont know more til next Neuro appt. in Jan.

On a good note , she is passing all of her classes , even dreaded Algebra 2 .

is doing well , with very minor hearing issues,

As for me , I am medicated lol Wellbutrin does the body good

And driving on a daily basis ( we wont discuss how I got totally lost the

other night

Hope all is well

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

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