Re: Re: Fwd: Joyce, Sher, Patti and all

[Guest guest]

Thank you guys. NEEDED this, so much going on and i do understand peggy and i think we need these reminders from our friends and knowing we are not alone and think of ways we can increase or keep our quality of life.. praying i can get to Ocean City, land with my friend and her family where i am blessed i don't need to ask with her. Hang in there Peggy and i appreciate your humor, suggestions and even your hard times.And you are right even myself back in july '06 they thought i was done. and here i am still more active then they thought possible.. man has no understanding of GOD's plans.. patti ch,nj, 7'06

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online

rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends. Ithink thats where we need

to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOT�. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to

live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough

month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]



Peggy, Bruce.....

This is such a comforting post to Peggy (all of us) Bruce.

I have a question about prednisone....

I've been on a short term use for tendonitis. Didn't help it much but I feel sooo good. It must be the prednisone.

I know, it's the best of drugs and the worst of drugs and you and I feel about the same Peggy. However, I'm wondering if I stayed on a low dose of prednisone would it eventually accumulate in the body and then I'd flop over to the "worst of prednisone"?

I know, I will talk to the doc about it (Friday) but wanted to go straight to the ones 'who know'. lol

Also: Our name has finally come up for Sect 8. I am so excited I'm hyperventilating! Now we can move closer to Lysa and still have our rent subsidized.

You know by now that due to our tremendously high medical bills we no longer can pay market rent for an apt. We've been waiting about 3-4 years. Thank God.

I called the two places that we left apps. at and they both have vacancies.

Now to decide how to hold an apt we may want....that stuff you just went through Bruce.

Hugs to all.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Sher

i have been on prednisone since diagnosis 3/06 -- various strengths

started at 10 mgs, down to 7.5 mgs for a long time, then increased to 40 mgs when flare up happened last week

if it helps, then it is worth it, i did not even question the side effects, didn't even know them in the beginning

the worst for me was the gradual weight gain -- about 1 lb per month on 10 mgs

total increase was about 15 lbs

after going up to 40 mgs, diabetes kicked in, but...

the lower the prednisone, the lower the glucose level

endocrine doc wants to me to continue with metformin for glucose

plus side of diabetes is the diet -- low carb, i count the carbs and have lost 10 - 15 lbs since January

eye doc keeps checking my eyes for cataracts every 6 month, they do exist, but small at this time

there are a lot of people who live on various doses of prednisone for many, many years

they learn to live with the side effects because the prednisone helps the primary disease

it's a love/hate relationship

congrats on your future apartment, hope finances will improve

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Wednesday, June 10, 2009, 3:03 PM

 Peggy, Bruce.....

This is such a comforting post to Peggy (all of us) Bruce.

I have a question about prednisone.. ..

I've been on a short term use for tendonitis. Didn't help it much but I feel sooo good. It must be the prednisone.

I know, it's the best of drugs and the worst of drugs and you and I feel about the same Peggy. However, I'm wondering if I stayed on a low dose of prednisone would it eventually accumulate in the body and then I'd flop over to the "worst of prednisone"?

I know, I will talk to the doc about it (Friday) but wanted to go straight to the ones 'who know'. lol

Also: Our name has finally come up for Sect 8. I am so excited I'm hyperventilating! Now we can move closer to Lysa and still have our rent subsidized.

You know by now that due to our tremendously high medical bills we no longer can pay market rent for an apt. We've been waiting about 3-4 years. Thank God.

I called the two places that we left apps. at and they both have vacancies.

Now to decide how to hold an apt we may want....that stuff you just went through Bruce.

Hugs to all.

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay>

this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>>

>

[Guest guest]

I wish that I could have told you that it is all wonderful but it doesn't even make me feel good. Someone asked if Demi lived in Coeur'd'Alene. I forgot to answer and I didn't know. I just found out that she does. I knew that Patty Duke and the heavy guy from NYPD Blues lived there but I didn't know about anyone else. I was told that nne Barr has a place near there too and Clint Eastwood has one near Sandpoint.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends. Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Sher

bruce reminded me about the fosamax, pulmonary doc prescribed a higher than usual dose because of the prednisone and i take two calcium pill daily

this is something that needs to be discussed with your doc

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Wednesday, June 10, 2009, 3:32 PM

SherGreat news on the housing.As to the prednisone, I don't recall what dosage you're on. Certainlywith a low dosage, say 10 mg, the side effects are reduced. However,they are still lurking there once you go beyond two to three weeks onit. Now, the benefits may or may not be greater than the side effects,but I wouldn't suggest it as a feel good drug. If its helping yourbreathing then there must have been some inflammation. If, as we'vesuspected but never had confirmed, you have NSIP or one of the othersother than UIP, then it might well be helping to slow or stop theprogression. The decision is a very personal one. But if you do continuethe prednisone for a while, you need to take the precautions to minimizethe side effects. This means take something for your bones, manage dietand watch your sugar levels for diabetes as well as weight gain, andrecognize your lowered immunity and be even

more careful regardinggerms.> >> >> >> > Subject: Joyce, Sher, Patti and all> >> > You are all sweet to be concerned about me.. I am just havingtrouble> > again with progression. I was so upset> > about not being able to do anything but I have come to realize Iwas> > diagnosed 5 years ago this month and was told at that time I wasin> > advanced stages SOOO I guess I am blessed to have this day and am> > making plans to go to Kentucky the end of this month with> > , and Amber. Them to be in Chattanooga in October. SoI> > just have to realize I have to be waited on and just> > do

the best I can without becoming a pain in the BOOTÃ. Istill> say> > this is just almost to much to ask of a woman that wants to do it> > ALL.. and has until this monster came to live here. But I amthankful> > for this and every other day I am privileged to have.> > I am so thankful for my Kindle I read. read, read.. It really does> > take me all over the world.. In so many situations that I am> > enjoying. So I do encourage you if you find yourself with time to> > spare... take a trip in a book.> > Mysteries are hard on ya if you forget to breathe or hold yourbreath> > until ya shoot the bad guy.. LOL> >> > I still pray for this Air Family daily and do wish I could do> > something, anything to make this easier on all of us.> > This has just been such a really rough month or so.> >>

>> > Love and Prayers, Peggy> > IPF 2004, Florida> >> > Worry looks around,> > Sorry looks back,> > Faith looks up.> >> >> > > >>

[Guest guest]

Joyce, How many carbs should you have in a day? My glucose levels are very unstable even with Metformin. Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay>

this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>>

>

[Guest guest]



Thanks Pink...I think I would willing to be on a small dosage of prednisone just for the easier breathing and to feel better....."Just for?" What else is there! lol

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

the dietician at the diabetes education class evaluated me and put me 1200 calories and 150 grams of carbs per day

that breaks down to about 45 grams of carbs daily

the amount varies for different people due to height, weight etc

i am less than 5 feet

you need to discuss this with your doc

when i met with the endocrinologist, she agreed with what the dietician recommended, but put me on metfomin anyway

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Wednesday, June 10, 2009, 7:25 PM

Joyce, How many carbs should you have in a day? My glucose levels are very unstable even with Metformin. Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

oops!!! i made a mistake

i meant to say it breaks down to about 45 grams of carbs per meal

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Fwd: Joyce, Sher, Patti and allTo: Breathe-Support Date: Wednesday, June 10, 2009, 7:41 PM

the dietician at the diabetes education class evaluated me and put me 1200 calories and 150 grams of carbs per day

that breaks down to about 45 grams of carbs daily

the amount varies for different people due to height, weight etc

i am less than 5 feet

you need to discuss this with your doc

when i met with the endocrinologist, she agreed with what the dietician recommended, but put me on metfomin anyway

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

Thank you. I have only been on the Metformin for less that a week but so far it doesn't seem to be doing a lot. I've heard 150 before but I'll check with my doctor. I don't have a lot of specialists. Medicare probably wouldn't pay for it if I did. I just have my primary care and my pulmo who is moving the first and my cardiologist. I guess that that is plenty.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >

[Guest guest]

I knew what you meant. After all, we all have OD.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho

PeggyDoing it all is overrated. I worked much too hard, too many hours, toolong. Getting some assistance or others to wait on us is deserved.Whether its one year or ten this is our time for that and actually it'spretty neat some of the time to ask people or allow people to help. Now,I know your mobility is very diminished but still the things that reallymatter in your life, your friends and family, are there for you to enjoyand I know you well enough to know you do. Sometimes just sitting on theporch and observing nature is beautiful.I take my trips online rather than in a book, but I do take lots ofthem, Peggy. Thats the thing I'm most greatful for, that our minds arespared and still allow us to take those trips as well as communicatewith others. You with your kindle, me with my computer monitor. I thinkhow lucky to be in this time as opposed to times past where you reallydid get cut

off from the outside world if you lost mobility. I take alittle hug trip everytime I think of you.Can't wait to see you in Chattanooga.I know its tough as we lose friends, but as this board ages thats goingto be more frequent. We each will have to struggle to find our ways ofkeeping ourselves going and our attitudes positive as we face that. I'mwilling to deal with those losses because they are preceeded by suchgains. I've gotten to know those who have died and I treasure thosefriendships. Trying not to be too corny but the old line "better to haveloved and lost than never to have loved at all." Well, for me, it'sbetter to have known and lost the incredible friends we have lost thanto have never known them. We all come here knowing that we are at somepoint likely to be the one leaving. I can't think of anywhere I'd ratherspend some of the quality time I have left than here among friends.

Ithink thats where we need to get our solace, that our friends foundbeing among us comforting, pleasurable, or reassuring in some way. Thatthey chose to share their lives with us, even as they approached thefinal moments. That truly says so much for the depth of friendships andlove in the forum. That love is what characterizes this forum, not thatone moment of death. I know I'll carry the love and strength and courageof so many who have been before me to the end. I don't think of most ofour friends as dying but I think of them as relieved and set free fromany more suffering. I'm sad that we're seeing the frequency increase andwill continue to do so, but that also shows that we're serving as acommunity that is here for each of us through every stage and to theend.>>>> Subject: Joyce, Sher, Patti and all>> You are all sweet to be concerned about me.. I am just having trouble> again with progression. I was so upset> about not being able to do anything but I have come to realize I was> diagnosed 5 years ago this month and was told at that time I was in> advanced stages SOOO I guess I am blessed to have this day and am> making plans to go to Kentucky the end of this month with> , and Amber. Them to be in Chattanooga in October. So I> just have to realize I have to be waited on and just> do the best I can without becoming a pain in the BOOTÃ. I stillsay> this is just almost to much to ask of a woman that

wants to do it> ALL.. and has until this monster came to live here. But I am thankful> for this and every other day I am privileged to have.> I am so thankful for my Kindle I read. read, read.. It really does> take me all over the world.. In so many situations that I am> enjoying. So I do encourage you if you find yourself with time to> spare... take a trip in a book.> Mysteries are hard on ya if you forget to breathe or hold your breath> until ya shoot the bad guy.. LOL>> I still pray for this Air Family daily and do wish I could do> something, anything to make this easier on all of us.> This has just been such a really rough month or so.>>> Love and Prayers, Peggy> IPF 2004, Florida>> Worry looks around,> Sorry looks back,> Faith looks up.>>> >