Re: Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not results

[Guest guest]

OMG and I mean it reverently. The stuff we have to endure verges on the inhumane sometimes.

All this testing and when we get to the bottom line there's not much to be done anyway.

I'm dreading my trip to UWMC in Oct...what sort of 'tests' are they going to want to do.......

MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there!

24 Hour Manometric Examination of theEsophagus - Test itself - not results> >> >> >> > Hi Everyone. I thought I'd do this in 2 stages. First tell about thetest (my experience and of course we all know everyone is different) andlater I'll post the results. So yesterday around 11am they inserted atube about the size of a normal spaghetti noodle up my nose, down mythroat and into my esophagus down to where the stomach starts. They hadto do this to measure the length of my esophagus to know what lengthwire to put in. I don't know if anything else was learned from this butmy experience was gaging, coughing, eyes watering but not nausea. Afterhe removed this and I recovered from it (say 3-5 minutes) he inserted athinner tube with wires in it to the same location (just above thestomach sphincter muscle). This wasn't as bad as the first thing but theworst part was that it stayed in for 24 hours. It was taped to my face,ran around my ear and under my blouse and hooked to a small computertype device. I had to push buttons on this> > computer device for when I had various symptoms (i.e. heart burn,reflux, coughing or when eating or when lying down). Of course Icouldn't turn my head to the left without triggering gage and coughingreflexes so driving home was interesting to say the least. I coughed alot but couldn't manage to push the buttons without driving off the 520bridge so I just made a note on the sheet once I got home. I wouldencourage anyone that needs this test to get someone to drive you. Iwould also suggest you have some very smooth, easy to swallow items toeat at home. I couldn't manage even chicken soup. So for lunch anddinner I had ice cream (no sticky stuff in there either as it tugs onthe tube as it goes down which feels very strange indeed), Ensure,chocolate milk. Needless to say I mostly stayed quiet watching tv toavoid turning my head and causing me undo problems. I did learn onething that might help someone - if swallowing saliva is hurting morethan> > normal - blow your nose - it probably has mucus in it which tugs. Icouldn't believe how wiped out the test made me as I napped and sleptmost of the night. I woke up around 4am with a decent (not nice) levelof pain in my throat and even though I was supposed to not drinkanything after midnight for the barium test (which was scheduled fortoday) I drank anyway as it soothed the throat to keep it moist. Iwouldn't suggest you do another 'no food or drink after midnight' testthe day after getting this tube inserted. I was very happy indeed to getit pulled out. It isn't really that painful but it isn't a lot of funeither. If you do get this test I would suggest having a good book or agood movie and some soft food and kick back and let people wait on you!They say they want you to have as normal a day as possible and I justtold them it was about as far from a 'normal' day for me as you can getbut I got through it. I'll post the results of the test> > as I learn them.> >> > Peggy Ellis (24 hour test survivor LOL, very tired lady)> >>

[Guest guest]

Joyce,My primary is Blue Cross Blue Shield.PJ 24 Hour Manometric Examination of the Esophagus - Testitself - not results> > > > Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that it stayed in for 24 hours. It was taped to my face, ran around my ear and undermy blouse and hooked to a small computer type device. I had to push buttons on this> computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed quiet watching tv to avoid turning my head andcausing me undo problems. I did learn one thing that might help someone - if swallowing saliva is hurting more than> normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as normal a day aspossible and I just told them it was about as far from a 'normal' day for me as you can get but I got through it. I'll post the results of the test> as I learn them. > > Peggy Ellis (24 hour test survivor LOL, very tired lady)>

[Guest guest]

PJ

then i guess it depends on which plan you have with deductibles and co-pays, etc

Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not resultsTo: Breathe-Support Date: Thursday, June 25, 2009, 10:41 PM

Joyce,My primary is Blue Cross Blue Shield.PJ 24 Hour Manometric Examination of the Esophagus - Testitself - not results> > > > Hi Everyone.

I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that it stayed in for 24 hours. It was taped to my face, ran around my ear and undermy blouse and hooked to a small computer type device. I had to push buttons on

this> computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed quiet watching tv to avoid turning my head andcausing me undo problems. I did learn one thing that might help someone - if

swallowing saliva is hurting more than> normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as normal a day aspossible and I just told them it was about as far from a 'normal' day for me

as you can get but I got through it. I'll post the results of the test> as I learn them. > > Peggy Ellis (24 hour test survivor LOL, very tired lady)>

[Guest guest]

Hi Steve,Next time I'll ask for this test - sounds like you could have normal eating too which I could not.I hope it gave you the information they needed to help you.PeggySubject: Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not resultsTo: Breathe-Support Date: Thursday, June 25, 2009, 10:43 AM

Ok...I know I am way behind on this, just getting caught up on things now, but... I was supposed to have the same test done, but after an hour of trying to get the tube all the way down my esophagaus with absolutely no success, it was decided that they would do the 48 hour version, which involves doing an endoscopy and attaching a wireless transmitter capsule to the esaophagaus. The transmitter monitors acid levels and sends them to a receiver which was either clipped to my belt, or placed within 4 feet of me when sitting, sleeping, or showering. After the 48 hours, the receiver is turned in at the hospital. The capsule is eventually shed and...expelled with other "waste". This usually happens within a week to 10 days. I was also told that I couldn't have any MRI's for 30 days after it was put in place. After the terrible experience when they tried to get the tube down, this was a breeze.

Steve aka Knip IPF 9/07 VATS 12/07

57 New Hampshire

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> From: Beth <mbmurtha@.. .>

> Subject: Re: 24 Hour Manometric Examination of the Esophagus - Test itself - not results

> To: Breathe-Support@ yahoogroups. com

> Date: Friday, June 12, 2009, 5:47 PM

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> Thanks Peggy. That was extremely helpful. I haven't had this test...it may at some point be in my future and I will be better prepared after reading this description. I'm glad you got through it. Doesn't really sound like alot of fun.

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> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

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> From: artquilterpeg <artquilterpeg@ yahoo.com>

> To: Breathe-Support@ yahoogroups. com

> Sent: Friday, June 12, 2009 7:37:03 PM

> Subject: 24 Hour Manometric Examination of the Esophagus - Test itself - not results

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> Hi Everyone. I thought I'd do this in 2 stages. First tell about the test (my experience and of course we all know everyone is different) and later I'll post the results. So yesterday around 11am they inserted a tube about the size of a normal spaghetti noodle up my nose, down my throat and into my esophagus down to where the stomach starts. They had to do this to measure the length of my esophagus to know what length wire to put in. I don't know if anything else was learned from this but my experience was gaging, coughing, eyes watering but not nausea. After he removed this and I recovered from it (say 3-5 minutes) he inserted a thinner tube with wires in it to the same location (just above the stomach sphincter muscle). This wasn't as bad as the first thing but the worst part was that it stayed in for 24 hours. It was taped to my face, ran around my ear and under my blouse and hooked to a small computer type device. I had to push buttons on

this

> computer device for when I had various symptoms (i.e. heart burn, reflux, coughing or when eating or when lying down). Of course I couldn't turn my head to the left without triggering gage and coughing reflexes so driving home was interesting to say the least. I coughed a lot but couldn't manage to push the buttons without driving off the 520 bridge so I just made a note on the sheet once I got home. I would encourage anyone that needs this test to get someone to drive you. I would also suggest you have some very smooth, easy to swallow items to eat at home. I couldn't manage even chicken soup. So for lunch and dinner I had ice cream (no sticky stuff in there either as it tugs on the tube as it goes down which feels very strange indeed), Ensure, chocolate milk. Needless to say I mostly stayed quiet watching tv to avoid turning my head and causing me undo problems. I did learn one thing that might help someone - if swallowing saliva is hurting more

than

> normal - blow your nose - it probably has mucus in it which tugs. I couldn't believe how wiped out the test made me as I napped and slept most of the night. I woke up around 4am with a decent (not nice) level of pain in my throat and even though I was supposed to not drink anything after midnight for the barium test (which was scheduled for today) I drank anyway as it soothed the throat to keep it moist. I wouldn't suggest you do another 'no food or drink after midnight' test the day after getting this tube inserted. I was very happy indeed to get it pulled out. It isn't really that painful but it isn't a lot of fun either. If you do get this test I would suggest having a good book or a good movie and some soft food and kick back and let people wait on you! They say they want you to have as normal a day as possible and I just told them it was about as far from a 'normal' day for me as you can get but I got through it. I'll post the results of the

test

> as I learn them.

>

> Peggy Ellis (24 hour test survivor LOL, very tired lady)

>