Re: Paper added to files regarding GERD

[Guest guest]

Hi- I have been taking Omeprazole for years and have had no problems with it. Don't even know it is there. Hope this helps. Joyce Rudy AZ IPF

Paper added to files regarding GERD

Hi Everyone,I am what you would consider a lurker and although I read theforum every day and laugh and cry with you all I do not seemto participate.I was diagnosed last year with UIP although the diagnosis on theCT scan said unusual instead if usual (is there a difference)My question is in regards to the paper because I seem to fit itto a tee, no heartburn except very occasional in the middle ofthe night.Has anyone used Omeprazole or the over the counter Prilosec.I am going to take the paper to my family doctor to see if heknows of any side effects to taking the "stuff"Seems to me something is better than nothing and the only medI am on is NA.My last Ct in April showed minimal change from the year before.Thank you God!!Hugs to allCharleenLondon Ont.

[Guest guest]

Charleen,

Because of cost I use the OTC Omeprazole from Wal-Mart and it works for me. And my IPF was definitely caused by reflux according to pulmo dude and GI dude so I think it's a good bet.

Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

From: Charleen

Sent: Friday, June 19, 2009 5:56 AM

To: Breathe-Support

Subject: Paper added to files regarding GERD

Hi Everyone,I am what you would consider a lurker and although I read theforum every day and laugh and cry with you all I do not seemto participate.I was diagnosed last year with UIP although the diagnosis on theCT scan said unusual instead if usual (is there a difference)My question is in regards to the paper because I seem to fit itto a tee, no heartburn except very occasional in the middle ofthe night.Has anyone used Omeprazole or the over the counter Prilosec.I am going to take the paper to my family doctor to see if heknows of any side effects to taking the "stuff"Seems to me something is better than nothing and the only medI am on is NA.My last Ct in April showed minimal change from the year before.Thank you God!!Hugs to allCharleenLondon Ont.

[Guest guest]

Thank you Sunny and Joyce for your reply

I am off to WalMart for the generic until my appointment with my GP July 8

Hugs

Charleen

>

> Charleen,

>

> Because of cost I use the OTC Omeprazole from Wal-Mart and it works for me.

And my IPF was definitely caused by reflux according to pulmo dude and GI dude

so I think it's a good bet.

>

> Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's

Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

>

>

> From: Charleen

> Sent: Friday, June 19, 2009 5:56 AM

> To: Breathe-Support

> Subject: Paper added to files regarding GERD

>

>

>

>

>

> Hi Everyone,

> I am what you would consider a lurker and although I read the

> forum every day and laugh and cry with you all I do not seem

> to participate.

> I was diagnosed last year with UIP although the diagnosis on the

> CT scan said unusual instead if usual (is there a difference)

> My question is in regards to the paper because I seem to fit it

> to a tee, no heartburn except very occasional in the middle of

> the night.

> Has anyone used Omeprazole or the over the counter Prilosec.

> I am going to take the paper to my family doctor to see if he

> knows of any side effects to taking the " stuff "

> Seems to me something is better than nothing and the only med

> I am on is NA.

> My last Ct in April showed minimal change from the year before.

> Thank you God!!

> Hugs to all

> Charleen

> London Ont.

>

[Guest guest]

Hi, just to state that I use Omeprazole - and seems to work just fine for me.

Joy

> >

> > Charleen,

> >

> > Because of cost I use the OTC Omeprazole from Wal-Mart and it works for me.

And my IPF was definitely caused by reflux according to pulmo dude and GI dude

so I think it's a good bet.

> >

> > Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's

Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

> >

> >

> > From: Charleen

> > Sent: Friday, June 19, 2009 5:56 AM

> > To: Breathe-Support

> > Subject: Paper added to files regarding GERD

> >

> >

> >

> >

> >

> > Hi Everyone,

> > I am what you would consider a lurker and although I read the

> > forum every day and laugh and cry with you all I do not seem

> > to participate.

> > I was diagnosed last year with UIP although the diagnosis on the

> > CT scan said unusual instead if usual (is there a difference)

> > My question is in regards to the paper because I seem to fit it

> > to a tee, no heartburn except very occasional in the middle of

> > the night.

> > Has anyone used Omeprazole or the over the counter Prilosec.

> > I am going to take the paper to my family doctor to see if he

> > knows of any side effects to taking the " stuff "

> > Seems to me something is better than nothing and the only med

> > I am on is NA.

> > My last Ct in April showed minimal change from the year before.

> > Thank you God!!

> > Hugs to all

> > Charleen

> > London Ont.

> >

>

[Guest guest]

Thanks for the information, Joy

Hugs

Charleen

> > >

> > > Charleen,

> > >

> > > Because of cost I use the OTC Omeprazole from Wal-Mart and it works for

me. And my IPF was definitely caused by reflux according to pulmo dude and GI

dude so I think it's a good bet.

> > >

> > > Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's

Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho

> > >

> > >

> > > From: Charleen

> > > Sent: Friday, June 19, 2009 5:56 AM

> > > To: Breathe-Support

> > > Subject: Paper added to files regarding GERD

> > >

> > >

> > >

> > >

> > >

> > > Hi Everyone,

> > > I am what you would consider a lurker and although I read the

> > > forum every day and laugh and cry with you all I do not seem

> > > to participate.

> > > I was diagnosed last year with UIP although the diagnosis on the

> > > CT scan said unusual instead if usual (is there a difference)

> > > My question is in regards to the paper because I seem to fit it

> > > to a tee, no heartburn except very occasional in the middle of

> > > the night.

> > > Has anyone used Omeprazole or the over the counter Prilosec.

> > > I am going to take the paper to my family doctor to see if he

> > > knows of any side effects to taking the " stuff "

> > > Seems to me something is better than nothing and the only med

> > > I am on is NA.

> > > My last Ct in April showed minimal change from the year before.

> > > Thank you God!!

> > > Hugs to all

> > > Charleen

> > > London Ont.

> > >

> >

>

[Guest guest]

Hi Charleen,I was talking to (one of Dr. Raghu's nurses) yesterday and she told me that all over the pulmonary research community there is research being conducted on the reflux and IPF. There are papers due out soon from Michigan and California and others. I'll try to get those as they are available and post them on the site. My CT has changed for the first time since I was started to be tracked in 2007 and this last time did not include any 'new areas of infection' and every previous CT did show 'new areas of infection'. The only difference is that I am on omraprazole 20 mg. I am hoping that it isn't just a coincidence but I am not going off this drug to find out. Each time an area heals, scar tissue is left in it's wake so stopping the 'new areas' is critical to stopping the disease

progression. I am really new to this disease myself but I just feel like there was a 'reason' why we moved here and I through a personal friend was referred to Dr. Raghu who was a real pioneer in the GERD, ILD relationship. Evidently in 1997 when he first published a paper on this he was criticized by a lot of the pulmonologists in the world as being far fetched but it is being accepted and others are doing their own tests so it'll be interesting to see what each different study shows. Are you being followed by a pulmonologist? I sure hope you are working with someone good and have at least been worked up at a premier site. We all deserve to work with experts in the field.Good luck and let us know how it goes for you.Peggy E. (hopefully arresting any further progression right now)Subject: Paper added to files regarding GERDTo: Breathe-Support Date: Friday, June 19, 2009, 5:56 AM

Hi Everyone,

I am what you would consider a lurker and although I read the

forum every day and laugh and cry with you all I do not seem

to participate.

I was diagnosed last year with UIP although the diagnosis on the

CT scan said unusual instead if usual (is there a difference)

My question is in regards to the paper because I seem to fit it

to a tee, no heartburn except very occasional in the middle of

the night.

Has anyone used Omeprazole or the over the counter Prilosec.

I am going to take the paper to my family doctor to see if he

knows of any side effects to taking the "stuff"

Seems to me something is better than nothing and the only med

I am on is NA.

My last Ct in April showed minimal change from the year before.

Thank you God!!

Hugs to all

Charleen

London Ont.