Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 Hey Sunny - I am right there with you. Maybe not as long, but I am with you. I just went in for tooth implant surgery this morning. I am thinking about doing VATS in the next year (still haven't made up my mind) and want to get this done and be well healed for future decisions. I have chosen to do liquid diet to avoid complications for the next week. Lots of water, slim fast or ensure and staying away from everything else!! I also have pain medication... will see if I need it. I have a pretty high tolerance of pain, but when you need something to help, you take it. I have never been much of a soda drinker so I guess I wouldn't miss Dr. Pepper. We will count the weeks with you to the good old solid food. Keep us posted... Stefani 60 Utah NSIP 6/2009, Diabetes II 2/2006, Sleep Apnea 4/2009 > > Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. > > Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 Sunny I hope your pain is under control. I missed out on what is causing the pain.If your up to it could you let me know.Thanks !Take carePJ Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009 I had a hiatal hernia repair and a Nissen fundoplication. Luckily they were able to do a lapro so I only have a few little new holes in my tummy. And yes until last night my pain was very well contolled. I toast you with my liquid pain med. Yummy. But of course being the moron that I am and feeling no pain I did too much and now I feel it. I have/had terrible aspiration that was eating away my lungs. This procedure will hopefully stop the reflux and I'll level out at 40% lung capacity. Talk about gross - they found bowel material in my lungs! Gross, gross, gross! My bowels were backing up in to my stomach then that was backing up in to my lungs. While in the hospital coming out of antithesis I started having Grand Mal seizures and didn't completely stop for hours. Actually I never completely stopped seizing and am still having little episodes. The surgeon thinks it's cause by pain but I am calling my GP today because I want it looked in to. Then I got something called C-Dif in the hospital and that makes your (delicately now Sunny) poo very watery and stinky. Then I got a UTI that moved in to my kidney. That didn't surprise them since I was just getting over one. Today I am still very fluffy and my throat is really sore. I think the sore throat is probably from the tube but then I'm not a doctor but I could play one on TV. I wish someone could explain why when I'm extremely puffy I also perspire (southern women do not sweat) like someone dumped a bucket of water over me. Whoa, maybe I have rabies? Have a wonderful day. Wave if you see me float past. I am going to tie a string to my ankle just so I don't get to puffy and float away. Then I'd be in a real pickle. Get it? Pickel? I crack me up! Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Embarq Customer Sent: Wednesday, June 17, 2009 7:29 AM To: Breathe-Support Subject: Re: Food, please Sunny I hope your pain is under control. I missed out on what is causing the pain.If your up to it could you let me know.Thanks !Take carePJ Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2009 Report Share Posted June 17, 2009  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 what are PPI's Pink Joyce (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- Subject: Re: Food, pleaseTo: Breathe-Support Date: Wednesday, June 17, 2009, 11:03 PM Thanks for posting Sunny. You are an absolute hoot (to me that means youare very funny!) My goodness you are going through a lot. This whole lung-stomach thing is very interesting to me.You know what's not funny is my insurance is dropping coverage on PPI"s, isn'tthat an interesting drug to drop coverage on in this day and age.Anyway if you float on by my house in Ohio I will be sure to wave!Take care.I will say a prayer for you.PJ Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Joyce Protein Pump Inhibitors such as Prilosec and Nexium. Many insurers drop Prilosec and tell you to get it over the counter. Many others have a step program on Nexium that requires you to try Prilosec first. This is sort of a touchy area with some insurers since there is OTC (over the counter), generic and brand to deal with. > > > From: Embarq Customer pattijo05@... > Subject: Re: Food, please > To: Breathe-Support > Date: Wednesday, June 17, 2009, 11:03 PM > > > > > > > > > Thanks for posting Sunny. You are an absolute hoot (to me that means you > are very funny!) My goodness you are going through a lot. This whole > lung-stomach thing is very interesting to me. > You know what's not funny is my insurance is dropping coverage on PPI " s, isn't > that an interesting drug to drop coverage on in this day and age. > Anyway if you float on by my house in Ohio I will be sure to wave! > Take care. > I will say a prayer for you. > PJ > > Food, > > please > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Okay Air Family, no more food talk for 4 weeks. > > > > That's how long until I get to eat solid food and > > > > NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 > > weeks. Maybe > > theirs Dr. Pepper in Heaven. I sure hope > > so. I am not in much > > pain but then liquid morphine kicks > > pain's butt. I just have to be careful > > not to do too much just > > because I can't feel the horrible pain. > > > > > > > > > > Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma > > '04, GERD > > '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, > > Hiatal Hernia > > '09, Idaho > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Sunny, Wow, it's hard to keep up with all of the problems you have. You said that your PF won't progress. That is a good thing and it sounds like they are figuring out your other problems. I hope to see you soon.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, IdahoSubject: Re: Food, pleaseTo: Breathe-Support Date: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 I hope so too but right now traveling in a car hurts my kidneys badly. Our northwest roads are never smooth are they? I do feel like all of my doctors are on the right track and we are all headed in the right direction. The one thing I am sooooooooooooooo tired of is when I tell people that I walk the way I do because of illness then they want an explanation, you tell them you are terminal and they immediately get an attitude. "You don't know that. Anything could happen. You could get hit by a bus tomorrow." What exactly does that mean? If I can deal with the FACT that I don't have a prolonged life span then why can't they? I miss you Bev and your radiant smile. Since my surgery it's been very lonely around here. No one wants to come over because of the contagious C-Dif. I understand but I think some of them think you can get it over the phone! A wonderful woman from church has been coming over almost every day to do my dishes, bring me yogurt and visit. I MISS MY DR. PEPPER! I have shocked myself and followed the surgeon's instructions to the letter. Very unusual for me. I am having to wear my O2 all the time that I am at home because my levels keep dropping in to the low 80s. My problem is that whenever I move around my heart beats like crazy so my stats go back up to 90-91 so pulmo dude doesn't think I need O2 during the day and God Forbid I should tell him my opinion. I can't wait until I've recovered from this surgery and go to my new pulmo dude in CDA. He comes very highly recommended by someone who has had the same experience with SATs as me. I pray you are having a happy day and find a big smile around the next corner. Careful, smiles can be sharp little boogers. Oh, and Rich wanted you to know that just because I can't come up, if you need something he could still come up and Bob could supervise. Your friend always, Sunny Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Beverley Joy Sent: Thursday, June 18, 2009 9:46 AM To: Breathe-Support Subject: Re: Food, please Sunny, Wow, it's hard to keep up with all of the problems you have. You said that your PF won't progress. That is a good thing and it sounds like they are figuring out your other problems. I hope to see you soon.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support Date: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Beth, I have an extraordinary husband who will do anything I ask. I don't do much manual labor just a lot of pointing and advising. Maybe I should get a laser pointer and make his job easier. Hee Hee!!! Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Beth Sent: Thursday, June 18, 2009 4:09 AM To: Breathe-Support Subject: Re: Food, please Sunny, You amaze and baffle me. I've never seen such a collection of problems in one person before. Are they doing anything at all to control the seizures? It seems very strange to me that they are ok with you being at home on your own with a heart rate of 186. That's extremely rapid. Do they feel the swelling is related to your kidney infection?....obviously as you know your kidneys move excess fluid out of your body. If one or both isn't working well that could be part of the problem possibly. And now add your liver problems to the list. Wow I'm sorry you are going through all this. It just makes me shake my head. How did you ever find the strength to create that hilarious garden of yours? Hope you feel better soon. Beth Moderator Fibrotic NSIP 06/06 Dermatomyositis 11/08 From: "rpickel1 (AT) msn (DOT) com" <rpickel1 (AT) msn (DOT) com>To: Breathe-Support Sent: Thursday, June 18, 2009 6:31:39 AMSubject: Re: Food, please Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Hi Sunny,After reading that e-mail I think you are a cross between an oak tree and a willow tree - strong and flexible. You're an inspiration and so brave. Glad you went in and talked to them about the edema. I'll keep you in my prayers as well. Can never have too many prayers.I'm very happy today because my Mother-in-Law (whom I love so much) made it through her aortic valve replacement surgery and is now in ICU. Her next hurtle is getting off the ventilator so I've got her in my prayers as well but she is a healthy farm girl from Nebraska and in spite of severe scoliosis and osteoporosis she just can't be kept down. I imagine she'll pass all the younger patients on her road to recovery. There are so many strong and brave people in my life - maybe I can be stronger and braver myself as I live my life.I hope you are having a beautiful day in Idaho - it's pretty here - high clouds and sun filtering through - just the kind of day I love (of course I love all weather - there is no such thing as bad weather except hail when you are outside - LOL)Peggy ESubject: Re: Food, pleaseTo: Breathe-Support Date: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009  Sunny....how about a picture of you and ? I'm glad you have the security of a dependable husband. I have one too. We are very lucky. You just keep on keepin' on girl! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Sher, There WAS a picture of Peggy E and her Rich but it isn't there now. She is a very pretty lady. Peggy where did you go??? We hope your not lost in Italy.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up.  Sunny....how about a picture of you and ? I'm glad you have the security of a dependable husband. I have one too. We are very lucky. You just keep on keepin' on girl! MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 I think he got it all fixed up for you but this illness has kept us housebound or at the ER. It would NOT be a good idea for either you or Bob to be exposed to me until I have kicked the C-Dif. Google it and you will see why. It can be very dangerous and I have a severe case. I could not live with myself if you or Bob got sick with it. If you need to come get the weed whacker call and I will have Rich put it in the yard and we can yell at one another from a distance. I sure do miss your smile. HUGS! Sunny 51 PF '09, Lupus/Sjogrens/Arthritis/Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Beverley Joy Sent: Thursday, June 18, 2009 5:33 PM To: Breathe-Support Subject: Re: Food, please Sunny, I can't say that northwest roads are bad. It's more like north Idaho roads.People don't want to believe that we are really terminal so they say foolish things.I was thinking about going to see you tomorrow if I was feeling up to it but you said a bad word, contagious. I can't take a chance on that one. I'm happy that you have someone who is willing to help you.I think that Rich has enough on his plate without coming to help me. If he has my weedeater running though I might be able to find someone to use it. Maybe Bob and i could come get it.I'm sending a big smile your way. Your friend, BevBeverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2009 Report Share Posted June 18, 2009 Sunny, I think that I can wait until you are well. With both of our lungs the way that we are we had better not take chances. I didn't hear about my house again today so it looks like they found another one. Maybe next time. I'm sending smiles your way. I hope that they help you get well, BevBeverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Sunny, A fellow IPF er gave this advice when someone says that "anyone could be hit by a bus any minute." He said to explain that the difference is that someone with a terminal illness, looks over their shoulder and can see the bus bearing down on him. Maybe that will give them a slightly different perspective. Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 I try not to use the bus expression any more. Several years ago, I was talking to a co worker about the need to cross train other people and said, " you never know if you might get hit by a bus " . He looked straight at me with a sad face and said, " my brother got hit by a bus last year and he died " . OOPS! Tom AOSD2004 NSIP2008 Asthma 2006 Sjogrens2008 foot in mouth2000 > > Sunny, A fellow IPF er gave this advice when someone says that " anyone could be hit by a bus any minute. " He said to explain that the difference is that someone with a terminal illness, looks over their shoulder and can see the bus bearing down on him. Maybe that will give them a slightly different perspective. Marcia > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Amen to that!PJ Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 19, 2009 Report Share Posted June 19, 2009 Sunny, I'm sorry that you are feeling so bad today. I've felt better myself but mostly just a stomach ache. It'll go away after while.Beverley Joy, 71, IPF 1-09, Sjogren's, Fibromyalgia, diabetes, Idaho From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2009 Report Share Posted June 28, 2009 Hi Sunny,I have prayed every night for you and your grandson and the rest of your family too. Fortunately for you I don't fall right asleep when my head hits the pillow like my husband - LOL :)I haven't been on-line in awhile so probably won't read a lot of the 300 messages posted but thought I'd at least read the ones that might have been posted after my last time on-line. I have been on a quilting shop hop the last few days. We also are getting some windows replaced and I have been trying to get my bathroom finished. I'm glad to hear you are doing better. I was also glad to see you posting about GERD and ILD as I am HOPING beyond HOPE that is what caused my 30% decline and that I can ARREST it in it's tracks right now and live a lot longer. I'll read a few posts from today just to see how you are doing now.Cheerio,Peggy From: rpickel1 (AT) msn (DOT) com <rpickel1 (AT) msn (DOT) com>Subject: Re: Food, pleaseTo: Breathe-Support@ yahoogroups. comDate: Thursday, June 18, 2009, 3:31 AM Mama Sher, I am sorry if it sounds overwhelming but God has given me son many gifts to help me cope. First there is my deep faith and close relationship with my Father in heaven. The I am truly blessed to have the sweetest, most caring, honest, unselfish, loving , sexy hubby who makes me feel good about myself and never leaves me any doubt that he is in it for the long haul and will never leave me. It helps that he's a patient man and a cold stone fox. Then there is my wonderful church family that helps me around the house and makes sure the loneliness of being housebound doesn't keep me down.. My children and grandchildren keep my spirits soaring. Better is one day with the love that God has surrounded me with than a thousand without. I have had the fundofication surgery and they put a one way valve in my stomach so nothing can reflux plus I will never burp or vomit again. I am following the doctor's instructions to the letter for a change. I feel like I am starving but it's only temporary and it will stop the progression of my PF. My seizures, they believe are pain seizures caused from an overload of pain my body just cant' handle so they will go away. Of course now I have a documented Gran Mal so the clock starts all over for the twelve months without a seizure before I can drive. Many of my problems should improve with this latest surgery. We just got back from another ER run. I was way swollen plus I had a seizure at the hospital so my 12 months without a seizure before I can get a driving license starts all over. Tonight the discovered that I have a severe infection in my urinary tract that has moved into my right kidney and that was why my back was hurting so badly. Antibiotics will take care of that. I had a nasty seizure yesterday and fell against the coffee table right on one of by incisions. That is causing me pain as well. The gave me some liquid Oxycodone so that helps with the pain. I have an appointment with my cardiologist next week to see why 1. I have such sever edema, 2. why a I am so diaphoretic all the time and to do a general work up on my heart. My pulse is running at 186 as my body tries to get enough oxygen as my body struggles to get enough oxygen to my extremities. My peripheral neurophothy hasn't worsened so the it's a good thing. We found out tonight that my liver enzymes are out of control so I have to see someone about that next week too. Sometimes I feel like a wind up doll that pieces just keep breaking on. Through the help of you and others on this site I have taken a firm stance with all the doctors. They have all been a little shocked at the change in me but most I believe are glad because it shows that I care about what is happening and am getting educations. It sounds strange to say but I have grown up a lot in the past few months. I just worry about taking the best care of myself I can, making Rich happy and squeezing every bit of joy I can out of life. Coming up in the next 6 to 18 months I have to have carpal tunnel surgery on both hands, my right knee repaired, my foot probation repaired so I will be in the hospital a lot But, like a tree in a strong wind I will bend and not break plus I have a husband that I KNOW will always be there for me. Despite my health I am very happy and I pray that it shows. I spend the majority of my time either laughing of finding ways to make others laugh. I am learning to prioritize my time and spend what I have on what's important and makes me happy. AND I AM! I also going to see a doctor that specializes in interpreting blood work results so that should be interesting. Sorry this is such a screwed up e-mail but the hospital doped me up pretty good and I think It is time I went and snuggled my wonderful. Sher, no matter how much I may snivel and whine I do have a wonderful life and I wouldn't trade it even if it meant freedom from pain. Most of all I try to find humor in everything, help others and keep in mind that I have a new body waiting in a mansion over the hill. No matter what I pray that when all is said and done everyone that knew me will say that I was the a happiest clown they ever knew. I do my share of crying but I no longer ask why. I do know that because of my air family's support I am being more assertive and aggressive with all my doctors and they are seeing a new me; one that they can't shunt aside. I am important and they are going to treat me that way. Boy am I rambling. Those were some good drugs. Thank you for thinking of me. My best time of day before Rich comes home is my Air Family emails. I don't have any family except for my kids so I really enjoy chatting with you all. Have a good=morning! Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho From: Sher Bauman Sent: Wednesday, June 17, 2009 11:25 AM To: Breathe-Support@ yahoogroups. com Subject: Re: Food, please  Sunny... when I read your posts I am left shaking my head to clear the overload. I'm sorry you cope with so much. You write about so many problems but what are the solutions for you? What will be done to stop fecal matter from backing up? Swelling to the degree you describe is dangerous, what are you doing about it? Wish I had some answers but I don't.... MamaSher; 70, IPF 3-06, OR. NasturtiumsDon't fret about tomorrow, God is already there! Food, please Okay Air Family, no more food talk for 4 weeks. That's how long until I get to eat solid food and NOOOOOOOOOOOOOOOOOO OOOOOOOOOOOOOOOO OOOOODr. Pepper for 8 weeks. Maybe theirs Dr. Pepper in Heaven. I sure hope so. I am not in much pain but then liquid morphine kicks pain's butt. I just have to be careful not to do too much just because I can't feel the horrible pain. Sunny 51 PF '09, Lupus/Sjogrens/ Arthritis/ Asthma '04, GERD '04, Barrett's Disease '08, Hyperthyroid '08, CAN '09, Hiatal Hernia '09, Idaho Quote Link to comment Share on other sites More sharing options...
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