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Vicky,

Welcome to the list! The jejernal-illeal bypass (JIB) is indeed an

old procedure. It is no longer performed. JIB is an INTESTINAL

bypass, not a GASTRIC bypass. In this case it is good news, because

it will be much easier to revise then the Roux-En-Y gastric bypass.

The changes for you will be that a larger portion of you intestine

will be working to absorb protien and simple carbs, but not fat and

startch. As a result the DS procedure has much better long term

nutritional outcomes the the JIB. In addition, your stomach size

will be reduced which will provide some degree of restriction, though

not as drastic as the Roux-En-Y procedure. This sould help you with

further weight loss.

Hull

> Hi Everyone.....

> My name is Vicky , I live in Liberty NC and I have scheduled a

> consult with Dr. For the DS. My appointment is October 24,

> 2001. He recommended this site also another one that is here in NC.

>

> I will tell you a little about my self, I weigh 255 ponds my BMI 13

> 39.9. I had the old gastric bypass 20 years ago. I lost about 100

> pounds then I had a baby, then another baby lol. Both were healthy.

> Then I had to have a hysterectomy and then the weight came flying

> back. The gastric bypass I had was (I can't spell this) Jujuno

illeo

> bypass.

>

> I was told about the DS threw a friend, when I called Dr.

> office and I told them of my previous surgery she said they could

go

> in and fix that one to work again but that my insurace would not

pay

> for it but that my insurance would pay for the DS (maybe) I have BC

> BS PPO.

>

> So I am sitting here waiting nervously. My daughter also has a

> consult with Dr. for the same day. We want to try to go

> threw this together. But I would like to here from you all and

learn

> all I can.

>

> Thank You

> Vicky

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Hi Vicky!

Welcome to the group!

I lurk here all the time but post rarely (I just absorb all the great

info.)

I have surgery (DS - of course) scheduled for Sept. 13 with Dr.

! I grew up in Lexington, NC and now am in graduate school

at Penn State. I am going to stay with my parents for several weeks

after surgery.

I am 26 - weigh 270 height 5.1 or 5.2 with a BMI around 49 - 51. I

am getting so excited and nervous! The possibility of actually being

able to loose 100+ pounds and keep it off is just so hard to digest!

Now Questions for the group.

I am doing my vitamin/ supplement research and feel confident about

the protien stuff but as to actually which vitamins to take I am

still confused!

I know I will need 1,800 - 2,000 of calcium citrate -- not a problem.

But what multi-vitamin does everyone use? (I currently use GNC Ultra

Mega but it is timed released)

Also, do DSers supplement with B-12 Sublinguial or shots? Or is that

just for the RNY? What about a b-complex vitamin?

What about Iron? What form is most easy to absorb? Causes the least

stomach problems?

OK -- Enough questions for now!

Thanks everyone and Welcome Vicky!

Jen in PA

Surgery Scheduled - 9/13/01

Dr. - Winston-Salem, NC

Starting Weight - 270

> Hi Everyone.....

> My name is Vicky , I live in Liberty NC and I have scheduled a

> consult with Dr. For the DS. My appointment is October 24,

> 2001. He recommended this site also another one that is here in NC.

>

>

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  • 2 years later...

In a message dated 9/16/2003 1:46:30 PM Central Daylight Time,

kristine.patrick@... writes:

> e

You pick the right group for support there are lots of great people on her

and some with husbands in the military too. I have three daughters and two of

them have CF. You are not alone!! But I do remember how hard our first year was

getting use to all of the routines there are with having kids with CF and

doing it alone has got to be even harder. The group will help you with any

questions you may have or just a shoulder to lean on. Deb A

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In a message dated 9/16/2003 1:59:00 PM Central Daylight Time,

kristine.patrick@... writes:

> e

I have an 11 year old and she has been developing normal in fact I was more

shock because I was thinking it wouldn't happen until she was at least 12!! Deb

A

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Welcome to our group e & .

Tina W, mother of , 17yoa wcf

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name is

e, and our 10 year old daughter was diagnosed 9 months ago. To

say the least, this year has been full of " ups and downs " . We live in San

Diego and my husband is in the Navy. Any other military people out there?

I started looking around for online support when my husband had gone out of

town and I was left alone with my thoughts ( pms did not help much either).

To make a long story short, even the strongest person needs a little help

once in awhile. So here I am, posting my first message, and looking forward

to getting to know some of you who share the same " ups and downs " . So,

thank you for welcoming me into your community!

e

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HI tina,

thanks for the welcome. I have a question for you, since you have a teenage

daughter. My daughter has been asking those dreaded puberty questions.

Regularly, in non-affected children, puberty can begin as early as ten, and it

also depends on the mother's history as to when she started. Now children with

CF are delayed when it comes to puberty and was wondering what you had noticed

with your daughter.

Thanks for your comments,

e

" Woosley, Tina " wrote:

Welcome to our group e & .

Tina W, mother of , 17yoa wcf

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name is

e, and our 10 year old daughter was diagnosed 9 months ago. To

say the least, this year has been full of " ups and downs " . We live in San

Diego and my husband is in the Navy. Any other military people out there?

I started looking around for online support when my husband had gone out of

town and I was left alone with my thoughts ( pms did not help much either).

To make a long story short, even the strongest person needs a little help

once in awhile. So here I am, posting my first message, and looking forward

to getting to know some of you who share the same " ups and downs " . So,

thank you for welcoming me into your community!

e

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Well gal, we sure welcome you to the lists . I remember the days when

my husband was in the Navy & left aboard ships to do the 90 day 7 the 3

month & the 6 month tours. They weren't fun. I had 5 children. So yes,

you will get many answers from others .Some might even be out there near

you. I am in Orlando, FL . But welcome.

LOVE & HUGS, grandmomBEV

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name

is e, and our 10 year old daughter was diagnosed 9 months

ago. To say the least, this year has been full of " ups and downs " . We

live in San Diego and my husband is in the Navy. Any other military

people out there? I started looking around for online support when my

husband had gone out of town and I was left alone with my thoughts ( pms

did not help much either). To make a long story short, even the

strongest person needs a little help once in awhile. So here I am,

posting my first message, and looking forward to getting to know some of

you who share the same " ups and downs " . So, thank you for welcoming me

into your community!

e

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Hi e,

Some of these things also depend on the general health of the child.

started her period when she was 12. She also developed pretty

normal. Her periods sometimes are delayed due to mucas plugs but are

generally regular. I also started at age 12. I remember asking the same

question when we went to clinic. They just looked at me funny and said that

every child is different! is pretty healthy and active and has

developed pretty much as any other teenager. She likes to think she is a

normal teenager. She is except she takes more medication than some and less

than others and she also has to do daily therapies that are also more than

some and less than others. As you will see in this group, that pretty much

holds true to everybody. Take a deep breath and relax. Take each day as

they come. You will do just fine.

Tina W., mom of , 17yoa wcf

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name is

e, and our 10 year old daughter was diagnosed 9 months ago. To

say the least, this year has been full of " ups and downs " . We live in San

Diego and my husband is in the Navy. Any other military people out there?

I started looking around for online support when my husband had gone out of

town and I was left alone with my thoughts ( pms did not help much either).

To make a long story short, even the strongest person needs a little help

once in awhile. So here I am, posting my first message, and looking forward

to getting to know some of you who share the same " ups and downs " . So,

thank you for welcoming me into your community!

e

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e--I just moved from San Diego to Wichita (grandparents help a

lot so we moved back). Do you see Pian or use a Navy CF Doc? The CF

Foundation in San Diego is FANTASTIC!! A woman named Jacquie is one

of the special events coordinators and she is one of my best

friends. So supportive. I would encourage you to call them to see

what you can help out with. I always felt better when I could do

something--volunteer for an event, fold letters, etc. They can put

you to work!! I know they can also connect you with other parents

out there who are struggling with the same issues. Enjoy the weather

out there! I miss San Diego soooo much!

mom to Ashton 2 1/2 wcf

> Hi there,

> I thought I would take this opportunity to introduce myself....My

name is e, and our 10 year old daughter was diagnosed 9

months ago. To say the least, this year has been full of " ups and

downs " . We live in San Diego and my husband is in the Navy. Any

other military people out there? I started looking around for online

support when my husband had gone out of town and I was left alone

with my thoughts ( pms did not help much either). To make a long

story short, even the strongest person needs a little help once in

awhile. So here I am, posting my first message, and looking forward

to getting to know some of you who share the same " ups and downs " .

So, thank you for welcoming me into your community!

>

> e

>

>

>

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Hi Tina,

My daughter who will be 20 in 1 month started at or around the time her sister

who does not have CF started. She does tend to have a lot of gas and stomach

aches before and during but everything else is normal as regular as clock work.

She was most likely around 11 or 12. She has devleoped nicely (wish I had

some) and even though she is normal with her cycle she still has no desire to

have children. Maybe when she is older, not that she doesn't like children just

doesn't like the process. She's a funny gal. Just answer your daughters

questions just as if she didn't have CF. Everything will work out.

Good luck,

judy mom to almost 20

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Welcome e and ! I am sorry to hear of another family going through

this stuff but you have found one of the best places for support and answers to

questions. We have had a lot of ups and downs ourselves. Check out our story

at http://groups.msn.com/TeamJane

Mom of , almost 5 with CF, AKA: The Queen of The Universe

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name is

e, and our 10 year old daughter was diagnosed 9 months ago. To say

the least, this year has been full of " ups and downs " . We live in San Diego and

my husband is in the Navy. Any other military people out there? I started

looking around for online support when my husband had gone out of town and I was

left alone with my thoughts ( pms did not help much either). To make a long

story short, even the strongest person needs a little help once in awhile. So

here I am, posting my first message, and looking forward to getting to know some

of you who share the same " ups and downs " . So, thank you for welcoming me into

your community!

e

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Welcome e!

Wow not diagnosed until almost 10 years old! I bet there's a story behind that.

I'd love to hear it. My dwcf was diagnosed at 8 months due to dehydration,

coughing, losing weight and electrolyte imbalances. Now she is 19 and we just

found out her mutations, one of them is very rare and one common. It took

forever to find the rare one. She is doing well and about a year or two ago

stopped needing enzymes. She was recently in the hospital for a tune-up and they

did a stool sample test and found no fat in her stool so I guess she was right.

I'm glad you have joined us and would love to hear more about . Where are

you from? we are from Orange County CA.

love,

mom of Nick age 21 nocf and age 19 wcf

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e,

Hello how are you doing tonight? I hope well now that you have joined

this group of moms and dads and even some CFERS. I love coming here

every day to end my sometimes difficult days. It is a relief to at

times see the humor, love, hate, and joys that we all share with

eachother.

My husband is in the Airforce and is in Iraq right now. He will be

gone for about 5 more months I hope not longer. I know that it is hard

to be alone and I imagine that you have to do it often.

How is your little doing? I hope better now that she has been

diagnosed with the problem and now you all can work to get her to where

she needs to be. I wish you the best of luck. I have 2 sons Maxwel who

is almost 5 we are doing genetic testing on him to see if CF and Colgan

who is 8 months and has CF. They are both quite a hoot. Gotta love

every minuet of them ya know? :)

Well you are really going to like this group I hope and you will

learn a ton too. Hope to talk to ya soon

Love always

Ashauna

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e,

Welcome to this group. You'll meet a lot of lovely people with great

advise and humorous stories.

(Australia)

newbie

Hi there,

I thought I would take this opportunity to introduce myself....My name

is e, and our 10 year old daughter was diagnosed 9 months

ago. To say the least, this year has been full of " ups and downs " . We

live in San Diego and my husband is in the Navy. Any other military

people out there? I started looking around for online support when my

husband had gone out of town and I was left alone with my thoughts ( pms

did not help much either). To make a long story short, even the

strongest person needs a little help once in awhile. So here I am,

posting my first message, and looking forward to getting to know some of

you who share the same " ups and downs " . So, thank you for welcoming me

into your community!

e

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e,

Welcome to the group. I hope that you and your daughter are doing

well. Do you have other children?

I have a 21 month old grand daughter with cf. Her name is Abigail.

We call her Abby. You are right, it is very sad at night when you

have time to think about the diagnosis. It really does get easier

with time. My grand daughter is doing well right now. Knock on wood.

Gale

> Hi there,

> I thought I would take this opportunity to introduce myself....My

name is e, and our 10 year old daughter was diagnosed 9

months ago. To say the least, this year has been full of " ups and

downs " . We live in San Diego and my husband is in the Navy. Any

other military people out there? I started looking around for online

support when my husband had gone out of town and I was left alone

with my thoughts ( pms did not help much either). To make a long

story short, even the strongest person needs a little help once in

awhile. So here I am, posting my first message, and looking forward

to getting to know some of you who share the same " ups and downs " .

So, thank you for welcoming me into your community!

>

> e

>

>

>

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Ashauna,

How long has your husband been in Iraq?

Gale

> e,

> Hello how are you doing tonight? I hope well now that you have

joined

> this group of moms and dads and even some CFERS. I love coming here

> every day to end my sometimes difficult days. It is a relief to at

> times see the humor, love, hate, and joys that we all share with

> eachother.

> My husband is in the Airforce and is in Iraq right now. He

will be

> gone for about 5 more months I hope not longer. I know that it is

hard

> to be alone and I imagine that you have to do it often.

> How is your little doing? I hope better now that she has

been

> diagnosed with the problem and now you all can work to get her to

where

> she needs to be. I wish you the best of luck. I have 2 sons

Maxwel who

> is almost 5 we are doing genetic testing on him to see if CF and

Colgan

> who is 8 months and has CF. They are both quite a hoot. Gotta love

> every minuet of them ya know? :)

> Well you are really going to like this group I hope and you will

> learn a ton too. Hope to talk to ya soon

>

> Love always

> Ashauna

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Welcome...don't think of it as a sign of weakness needing support - thinking

of it as a sign of strength. Only the strong know when they " need " something.

Welcome.....

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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My 13 year old daughter got her period last month and is devopling normally!

Its like having Sybil in the house. One minute she is nice the next she is

possessed........I am afraid to say how was your day...sometimes it illicits a

response of happiness othertimes tears and sometimes she bites my head

off!!!!! Its like playing russian roulette only with an emotional teen!

Rosemary in NY with 3 children (13, 10.6 and 6.6)

with CF. I have a dog named TOBI and have

coined the phrase " BREATHE DAMMIT "

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Rosemary,

That's the smartest thing I've heard anyone say in a long time!

Gale

> Welcome...don't think of it as a sign of weakness needing support -

thinking

> of it as a sign of strength. Only the strong know when they " need "

something.

>

>

> Welcome.....

>

>

> Rosemary in NY with 3 children (13, 10.6 and 6.6)

> with CF. I have a dog named TOBI and have

> coined the phrase " BREATHE DAMMIT "

>

>

>

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It really is that millions of years of breading that tells you when the hair

on the back of your neck stands up that there is something wrong. Sometimes

we just choose not to listen. Keep us posted! We are thinking about you

and yours.

Tina W.

Re: newbie

Just concurring with Rosemary; it takes emotional fortitude to KNOW

when you need some answers!

Keep us posted!

n Rojas

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Gale,

Two months now and possibly 7 more after this ughhhhh things are

really ugly right now and he is fire fighter EMT so he sees all of it.

I am so scared all of the time.

Love to you

Ashauna

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Ashauna,

Everytime I see another news clip on the situation in Iraq, I think

about you. I sure wish that this would end and all of our friends

and loved ones could come home.

Gale

> Gale,

> Two months now and possibly 7 more after this ughhhhh things are

> really ugly right now and he is fire fighter EMT so he sees all of

it.

> I am so scared all of the time.

> Love to you

> Ashauna

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