Re: Re: Question about power chairs

[Guest guest]

Dyane, I'll tell you why they say that... they DON'T GET IT.. I have used the power chairs to shop since my fibromialgia days. When I go shopping and they have those wonderful carts I go up and down every isle.. don't wanna miss anything. IfI were using a cart I would make it inside the door.. Cart for me. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Joyce,I wonder why they would say that? I'm assuming because they want you to stay physically active as long as possible, strong muscels help you breath better but I don't have a choice. I need over 5lpm to stay above 90 and keep my hr below 150. I can't get the o2 people to give me more than a 5 pulse regulator and I drain the tanks too fast at that rate. So I use the carts and then I can turn the tanks down. I've never been to rehab because the damn insurance won't pay although I think I have a way to get it done. Gonna wait to see what NJH says. I'd much rather use a cart and have a life than not and stay home because its too much. Dyane Phoenix ipf 02>> I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

Dyane- I am at 4 lpm and when walking my o2 goes to 91-92 but NJH said my blood 02 is 5 points lower then what shows on the oxymeter. My heart rate is always high and I don't understand it. It is high even when my 02 is registering 96! I just don't understand that! But I understand how y ou would prefer the cart. I actually prefer the cart too but because my doc's say not to I don't. I am very tired when I come home! Joyce Rudy AZ Birds

Re: Question about power chairs

Joyce,I wonder why they would say that? I'm assuming because they want you to stay physically active as long as possible, strong muscels help you breath better but I don't have a choice. I need over 5lpm to stay above 90 and keep my hr below 150. I can't get the o2 people to give me more than a 5 pulse regulator and I drain the tanks too fast at that rate. So I use the carts and then I can turn the tanks down. I've never been to rehab because the damn insurance won't pay although I think I have a way to get it done. Gonna wait to see what NJH says. I'd much rather use a cart and have a life than not and stay home because its too much. Dyane Phoenix ipf 02>> I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

I see your point, Bruce! I'll try that. Usually I go at my own pace and shop but there are times when I just need some tomato's and they are way back in costco and I have so little time. I'll tell you though, when I get home I am exhausted! The cart is so tempting but so far I have refused to use it but for things like you describe I can certainly see how it would be useful. Joyce Rudy AZ birds

Re: Question about power chairs

Joyce RudyI don't generally use the chairs but there are circumstances. Anexample: I need to quickly get something thats in the far back corner ofWalmart...in a big hurry for whatever reason. Then I might. Or I need toget several items at very different areas and am in a hurry. However,he's right I think in not getting too much of a habit using a chair whenyou can walk it. Just know your limits. But if you have time to go atyour own pace and to put your portable in the basket, then do so andenjoy.Sort of reminds me of NYC and all the people coming to the athleticclubs in taxis. I always laughed. They're headed in to work out butdidn't walk the twelve blocks there. However, I use a treadmillregularly but have still used a chair. I also use one somewhere I wantto explore and know its beyond my limit, such as a path that runs formiles or the shoreline of a riverwalk area.Your doctors just don't want you giving up mobility that you don't haveto.>> I have a question about power chairs. Those of you who use them- howlow does your O2 go with oxygen when you move? Do you need more litersper minute? I ask these questions because I asked both my physician andmy pulmodude and the pulmodude at Jewish about using the electric chairsat places like Costco and super walmarts and the grocery store and theyall said NO without hesitation. They told me to lean on the cart butdon't use the electric cart. It seems like none of my doctors wanted meor wants me to use any kind of device that would make life easierbecause they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

HO HO HO Mama's getting mail!I used the scooters during our moving time and still do if my legs continue to hurt.  I'm so so grateful that scooter is there! Otherwise I'd be sitting in the car.   I don't need any o2 when I use the scooter. I thought I "never could" use a scooter but I found I didn't care one frog's leap about what others thought. In fact, I raised some hell at two super-stores: Fred Meyers and Target.....all their electric carts were discharged and couldn't be used.I told mgrs. in both stores what possible good was a discharged cart to a disabled person...someone on each shift needs to check the carts regularly.  I didn't know that when I'm finished with a cart I need to plug it into the battery for the next person. Apparently others don't know this either.Still can't find where to add signature.....different from Windows....   I see your point, Bruce! I'll try that. Usually I go at my own pace and shop but there are times when I just need some tomato's and they are way back in costco and I have so little time. I'll tell you though, when I get home I am exhausted! The cart is so tempting but so far I have refused to use it but for things like you describe I can certainly see how it would be useful. Joyce Rudy AZ birds Re: Question about power chairs  Joyce RudyI don't generally use the chairs but there are circumstances. Anexample: I need to quickly get something thats in the far back corner ofWalmart...in a big hurry for whatever reason. Then I might. Or I need toget several items at very different areas and am in a hurry. However,he's right I think in not getting too much of a habit using a chair whenyou can walk it. Just know your limits. But if you have time to go atyour own pace and to put your portable in the basket, then do so andenjoy.Sort of reminds me of NYC and all the people coming to the athleticclubs in taxis. I always laughed. They're headed in to work out butdidn't walk the twelve blocks there. However, I use a treadmillregularly but have still used a chair. I also use one somewhere I wantto explore and know its beyond my limit, such as a path that runs formiles or the shoreline of a riverwalk area.Your doctors just don't want you giving up mobility that you don't haveto.>> I have a question about power chairs. Those of you who use them- howlow does your O2 go with oxygen when you move? Do you need more litersper minute? I ask these questions because I asked both my physician andmy pulmodude and the pulmodude at Jewish about using the electric chairsat places like Costco and super walmarts and the grocery store and theyall said NO without hesitation. They told me to lean on the cart butdon't use the electric cart. It seems like none of my doctors wanted meor wants me to use any kind of device that would make life easierbecause they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

Dyane,

Your understanding is the same as mine. We have absolutely no reserve O2 in our bodies so our heart rate does not necessarily react the same way to exercise and rest. My heart rate like yours, bounds up into the 120's and 130's if I try to do anything without oxygen or without enough oxygen. My heart is trying to compensate for my lungs.

It's like a healthy person trying to exert themselves while holding their breath. Their heart rate would go up too!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Tuesday, September 1, 2009 3:56:33 PMSubject: Re: Question about power chairs

Joyce,From what I understand our heart rate shoots up because we have no reserve of 02 in our tissues and then stays up trying to get the most out of what we are getting through our lungs. I don't take carts everywhere, I walk to and from my doctors offices, etc, but if I continue to walk my sats drop below 90. I will be very interested to see what happens in November during my first (after 7 years you think I would have had one of these) 6 minute walk. I walked up and down the hallway today at the doctors office while waiting for them to open using an e tank on 5lpm pulse and by the time I sat down (maybe 100 yds or so) I had dropped to 87 and my hr was up to 124. Everything stabalized but I could feel it. Get your excercise but if your body is telling you to sit then sit and ride. Just because a doctor tells me something doesn't mean its gospel. Only you can tell them how you

feel. Its like the difference between a balance sheet and an income statement. A balance sheet is a snapshot in time, just like your test results..at that second they were so and so. But you are like an income statement which shows a whole month or year of data and many many times I tell my clients that the year to date stuff is more important than any one minute or month can be. You are going back to NJH this month right?Dyane Phoenix Ipf 02> >> > I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

>>

[Guest guest]

rudy joyce

sometimes when i come home, i rest before unloading the car -- except for stuff that needs to go in the refrigerator or freezer -- everything else can wait

sometimes i even wheel the baby stroller out to the car to unload the stuff and bring it to the entrance of the house

i thought i got that idea from you regarding a wagon

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Question about power chairsTo: Breathe-Support Date: Tuesday, September 1, 2009, 2:05 PM

Dyane- I am at 4 lpm and when walking my o2 goes to 91-92 but NJH said my blood 02 is 5 points lower then what shows on the oxymeter. My heart rate is always high and I don't understand it. It is high even when my 02 is registering 96! I just don't understand that! But I understand how y ou would prefer the cart. I actually prefer the cart too but because my doc's say not to I don't. I am very tired when I come home! Joyce Rudy AZ Birds

Re: Question about power chairs

Joyce,I wonder why they would say that? I'm assuming because they want you to stay physically active as long as possible, strong muscels help you breath better but I don't have a choice. I need over 5lpm to stay above 90 and keep my hr below 150. I can't get the o2 people to give me more than a 5 pulse regulator and I drain the tanks too fast at that rate. So I use the carts and then I can turn the tanks down. I've never been to rehab because the damn insurance won't pay although I think I have a way to get it done. Gonna wait to see what NJH says. I'd much rather use a cart and have a life than not and stay home because its too much. Dyane Phoenix ipf 02>> I have a question about power chairs. Those of you who use them- how low does your O2

go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

Welcome back Sher.Beverley Joy,71, UIP,NSIP 1-09,Diabetes,Sjogren's,Fibromyalgia Idaho I see your point, Bruce! I'll try that. Usually I go at my own pace and shop but there are times when I just need some tomato's and they are way back in costco and I have so little time. I'll tell you though, when I get home I am exhausted! The cart is so tempting but so far I have refused to use it but for things like you describe I can certainly see how it would be useful. Joyce Rudy AZ birds Re: Question about power chairs Joyce RudyI don't generally use the chairs but there are circumstances. Anexample: I need to quickly get something thats in the far back

corner ofWalmart...in a big hurry for whatever reason. Then I might. Or I need toget several items at very different areas and am in a hurry. However,he's right I think in not getting too much of a habit using a chair whenyou can walk it. Just know your limits. But if you have time to go atyour own pace and to put your portable in the basket, then do so andenjoy.Sort of reminds me of NYC and all the people coming to the athleticclubs in taxis. I always laughed. They're headed in to work out butdidn't walk the twelve blocks there. However, I use a treadmillregularly but have still used a chair. I also use one somewhere I wantto explore and know its beyond my limit, such as a path that runs formiles or the shoreline of a riverwalk area.Your doctors just don't want you giving up mobility that you don't haveto.>> I have a question about power chairs. Those of you who use them- howlow does your O2 go with oxygen when you move? Do you need more litersper minute? I ask these questions because I asked both my physician andmy pulmodude and the pulmodude at Jewish about using the electric chairsat places like Costco and super walmarts and the grocery store and theyall said NO without hesitation. They told me to lean on the cart butdon't use the electric cart. It seems like none of my doctors wanted meor wants me to use any kind of device that would make life easierbecause they say it is bad for the lungs. Joyce Rudy AZ

birds>

[Guest guest]

Yes, Pink, I use a wagon. If it weren't for my wagon I don't think I would get anything into the house. Joyce Rudy AZ birds

Re: Question about power chairs

Joyce,I wonder why they would say that? I'm assuming because they want you to stay physically active as long as possible, strong muscels help you breath better but I don't have a choice. I need over 5lpm to stay above 90 and keep my hr below 150. I can't get the o2 people to give me more than a 5 pulse regulator and I drain the tanks too fast at that rate. So I use the carts and then I can turn the tanks down. I've never been to rehab because the damn insurance won't pay although I think I have a way to get it done. Gonna wait to see what NJH says. I'd much rather use a cart and have a life than not and stay home because its too much. Dyane Phoenix ipf 02>> I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

dyanne

insurance paid most of the original rehab (there was a copay at the time)

i pay for maintenance even though i call it rehab

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Question about power chairsTo: Breathe-Support Date: Monday, August 31, 2009, 2:56 PM

Joyce,I wonder why they would say that? I'm assuming because they want you to stay physically active as long as possible, strong muscels help you breath better but I don't have a choice. I need over 5lpm to stay above 90 and keep my hr below 150. I can't get the o2 people to give me more than a 5 pulse regulator and I drain the tanks too fast at that rate. So I use the carts and then I can turn the tanks down. I've never been to rehab because the damn insurance won't pay although I think I have a way to get it done. Gonna wait to see what NJH says. I'd much rather use a cart and have a life than not and stay home because its too much. Dyane Phoenix ipf 02>> I have a question about power chairs. Those of you who use them- how low does your O2

go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds>

[Guest guest]

you can probably find them on line too

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Question about power chairsTo: Breathe-Support Date: Tuesday, September 1, 2009, 11:16 PM

Joyce,I am not Nan, but Big Lots has laundry hampers with wheels. If you have a Big Lots near you.Miranda> > >> > > I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for

the lungs. Joyce Rudy AZ birds> > >> >>

[Guest guest]

Hi Pink, I just have to tell you I get so tickled when I see you post to Joyce Rudy.. you always say Rudy Joyce. Oh wellIt doesn't matter.. Also want to tell you I LOVE the Cake show.. is such a cutie. I would like to see him cooking though.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. rudy joyce the heart rate is also dependent on your level of activity on the treadmill, by SAT might be 98 and the heart rate might be 115 -120 the heart rate comes back down when i rest Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- From: JOYCE RUDY <greycharlie@q.com>Subject: Re: Re: Question about power chairsTo: Breathe-Support Date: Tuesday, September 1, 2009, 10:41 PM Beth, I just don't understand! If our 02 is over 90 shouldn't we have enough oxygen? Why would our heart rate be up if our 02 was at 92-93? Joyce Rudy AZ birds Re: Question about power chairs Joyce,From what I understand our heart rate shoots up because we have no reserve of 02 in our tissues and then stays up trying to get the most out of what we are getting through our lungs. I don't take carts everywhere, I walk to and from my doctors offices, etc, but if I continue to walk my sats drop below 90. I will be very interested to see what happens in November during my first (after 7 years you think I would have had one of these) 6 minute walk. I walked up and down the hallway today at the doctors office while waiting for them to open using an e tank on 5lpm pulse and by the time I sat down (maybe 100 yds or so) I had dropped to 87 and my hr was up to 124. Everything stabalized but I could feel it. Get your excercise but if your body is telling you to sit then sit and ride. Just because a doctor tells me something doesn't mean its gospel. Only you can tell them how you feel. Its like the difference between a balance sheet and an income statement. A balance sheet is a snapshot in time, just like your test results..at that second they were so and so. But you are like an income statement which shows a whole month or year of data and many many times I tell my clients that the year to date stuff is more important than any one minute or month can be. You are going back to NJH this month right?Dyane Phoenix Ipf 02> >> > I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds> >>

[Guest guest]

thanks about Rudy Joyce

Jerry affectionately refers to Rocky, our 13 year old puppy, as Rudy, so that's why i do it like that

besides, there is only one Rudy, but 2 Joyce's

glad you like the "ultimate cake off"

i don't like the show, but i am the proud mother in law of the host

yes i too would much rather watch doing the cooking -- sometimes he teaches as he cooks

if you go into the show's website, there is a nice article about

the thing i liked the best about this week's show was the "loser" -- it was great for problem solving and not giving up -- when he came out riding on the cake -- that was the best -- good sense of humor

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: Question about power chairsTo: Breathe-Support Date: Wednesday, September 2, 2009, 5:45 PM

Hi Pink, I just have to tell you I get so tickled when I see you post to Joyce Rudy.. you always say Rudy Joyce. Oh well

It doesn't matter.. Also want to tell you I LOVE the Cake show.. is such a cutie. I would like to see him cooking though..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

rudy joyce

the heart rate is also dependent on your level of activity

on the treadmill, by SAT might be 98 and the heart rate might be 115 -120

the heart rate comes back down when i rest

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund. org

From: JOYCE RUDY <greycharlie@ q.com>Subject: Re: Re: Question about power chairsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 1, 2009, 10:41 PM

Beth, I just don't understand! If our 02 is over 90 shouldn't we have enough oxygen? Why would our heart rate be up if our 02 was at 92-93? Joyce Rudy AZ birds

Re: Question about power chairs

Joyce,From what I understand our heart rate shoots up because we have no reserve of 02 in our tissues and then stays up trying to get the most out of what we are getting through our lungs. I don't take carts everywhere, I walk to and from my doctors offices, etc, but if I continue to walk my sats drop below 90. I will be very interested to see what happens in November during my first (after 7 years you think I would have had one of these) 6 minute walk. I walked up and down the hallway today at the doctors office while waiting for them to open using an e tank on 5lpm pulse and by the time I sat down (maybe 100 yds or so) I had dropped to 87 and my hr was up to 124. Everything stabalized but I could feel it. Get your excercise but if your body is telling you to sit then sit and ride. Just because a doctor tells me something doesn't mean its gospel. Only you can tell them how you

feel. Its like the difference between a balance sheet and an income statement. A balance sheet is a snapshot in time, just like your test results..at that second they were so and so. But you are like an income statement which shows a whole month or year of data and many many times I tell my clients that the year to date stuff is more important than any one minute or month can be. You are going back to NJH this month right?Dyane Phoenix Ipf 02> >> > I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but

don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds> >>

[Guest guest]

That was funny when he came out in the cake. I knew that was gonna fall from the start when it was stackedall crooked.. LOL i don't know where he came from. he did give it a try though.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. thanks about Rudy Joyce Jerry affectionately refers to Rocky, our 13 year old puppy, as Rudy, so that's why i do it like that besides, there is only one Rudy, but 2 Joyce's glad you like the "ultimate cake off" i don't like the show, but i am the proud mother in law of the host yes i too would much rather watch doing the cooking -- sometimes he teaches as he cooks if you go into the show's website, there is a nice article about the thing i liked the best about this week's show was the "loser" -- it was great for problem solving and not giving up -- when he came out riding on the cake -- that was the best -- good sense of humor Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund.org--- On Wed, 9/2/09, Peggy <pac1773 (AT) cfl (DOT) rr.com> wrote: From: Peggy <pac1773 (AT) cfl (DOT) rr.com>Subject: Re: Re: Question about power chairsTo: Breathe-Support Date: Wednesday, September 2, 2009, 5:45 PM Hi Pink, I just have to tell you I get so tickled when I see you post to Joyce Rudy.. you always say Rudy Joyce. Oh well It doesn't matter.. Also want to tell you I LOVE the Cake show.. is such a cutie. I would like to see him cooking though.. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. rudy joyce the heart rate is also dependent on your level of activity on the treadmill, by SAT might be 98 and the heart rate might be 115 -120 the heart rate comes back down when i rest Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania Donate Life Listed 1/09 Inactive 4/09 www.transplantfund. org From: JOYCE RUDY <greycharlie@ q.com>Subject: Re: Re: Question about power chairsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 1, 2009, 10:41 PM Beth, I just don't understand! If our 02 is over 90 shouldn't we have enough oxygen? Why would our heart rate be up if our 02 was at 92-93? Joyce Rudy AZ birds Re: Question about power chairs Joyce,From what I understand our heart rate shoots up because we have no reserve of 02 in our tissues and then stays up trying to get the most out of what we are getting through our lungs. I don't take carts everywhere, I walk to and from my doctors offices, etc, but if I continue to walk my sats drop below 90. I will be very interested to see what happens in November during my first (after 7 years you think I would have had one of these) 6 minute walk. I walked up and down the hallway today at the doctors office while waiting for them to open using an e tank on 5lpm pulse and by the time I sat down (maybe 100 yds or so) I had dropped to 87 and my hr was up to 124. Everything stabalized but I could feel it. Get your excercise but if your body is telling you to sit then sit and ride. Just because a doctor tells me something doesn't mean its gospel. Only you can tell them how you feel. Its like the difference between a balance sheet and an income statement. A balance sheet is a snapshot in time, just like your test results..at that second they were so and so. But you are like an income statement which shows a whole month or year of data and many many times I tell my clients that the year to date stuff is more important than any one minute or month can be. You are going back to NJH this month right?Dyane Phoenix Ipf 02> >> > I have a question about power chairs. Those of you who use them- how low does your O2 go with oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds> >>

[Guest guest]

When I went to the pharmacy today they sell the foldway carts for laundry, shopping etcc. So you maight want to check out your durstore.

A

From: tazluvzraz <tazluvzraz (AT) yahoo (DOT) com>Subject: Re: Question about power chairsTo: Breathe-Support@ yahoogroups. comDate: Tuesday, September 1, 2009, 11:16 PM

Joyce,I am not Nan, but Big Lots has laundry hampers with wheels. If you have a Big Lots near you.Miranda> > >> > > I have a question about power chairs. Those of you who use them- how low does your O2 go with

oxygen when you move? Do you need more liters per minute? I ask these questions because I asked both my physician and my pulmodude and the pulmodude at Jewish about using the electric chairs at places like Costco and super walmarts and the grocery store and they all said NO without hesitation. They told me to lean on the cart but don't use the electric cart. It seems like none of my doctors wanted me or wants me to use any kind of device that would make life easier because they say it is bad for the lungs. Joyce Rudy AZ birds> > >> >>

[Guest guest]

thanks

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Question about power chairsTo: Breathe-Support Date: Wednesday, September 2, 2009, 6:06 PM

Joyce,My daughter and her sister-in-law are learning how to decorate cakes andtrying to start a side business baking cakes. She watches the show andsaid she really likes .Dyane Phoenix ipf 02> > >> > > I have a question about power chairs. Those of you who use them-how low does your O2 go with oxygen when you move? Do you need moreliters per minute? I ask these questions because I asked both myphysician and my pulmodude and the pulmodude at Jewish about using theelectric chairs at places like Costco and super walmarts and the grocerystore and they all said NO without hesitation. They told me to lean onthe cart but don't use the electric cart. It seems like none of mydoctors wanted me or wants me to use any kind of device that would makelife easier because they say it is bad

for the lungs. Joyce Rudy AZbirds> > >> >>

[Guest guest]

Mine is Fred also.. my girls named it Winifred, Fred for short! Later,IPF/NSIP 08 NCSubject: Re: Question about power chairsTo: Breathe-Support Date: Monday, August 31, 2009, 5:14 PM

Thanks Peggy, Your right, they don't get it! Don't they realize I would like to have my old stamina back and be able to shop and play like I used to! Do they think I'm just being lazy! I'll hit them over the head...with Fred (my portable..don' t ask me why, it just looks like a Fred) LOL ThanksDyane Phoenix IPF 02> >> > I have a question about power chairs. Those of you who use them- > how low does your O2 go with oxygen when you move? Do you need more > liters per minute? I ask these questions because I asked both my > physician and my pulmodude and the pulmodude at Jewish about using > the electric chairs at places like Costco and super walmarts and the > grocery store and they all said NO without hesitation. They told me > to lean on the cart but don't use the electric cart. It seems like > none of my doctors wanted me or wants me to use any kind of device > that would make life easier because they say it is bad for the lungs. > Joyce Rudy AZ birds> >>