Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 In a message dated 4/30/03 9:26:50 PM Eastern Daylight Time, shanley_n_teresa@... writes: > It's like this ALLLLLL DAYYYYYYY LONGGGGGGGGG. > He said EAT last night for the first time, and today, he said HOT. > > I can't take this anymore!! > > > > > (((( & Zack)))) The Grammas & Keion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 he still on the diet? ~~~ Imagine all the people, living life in peace - Lennon ~~~ ------------------------- gina, 31, ny single mom to - kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI trevor, 3, multiple developmental delays, no " official " dx yet parker jade, due 7-25-03 :-D Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 Hang in there . It is possible to cook with a child clinging to your leg or shirt, but it does require extra care. It's also annoying, but you get used to it and then they stop. This too is a phase and this too will pass - eventually. Just hang in there. ((hugs)) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 YES! -- In parenting_autism , " muollo3 " <MUOLLO3@p...> wrote: > he still on the diet? > > > ~~~ Imagine all the people, living life in peace - Lennon ~~~ > ------------------------- > gina, 31, ny > single mom to - > kailey, 8, autism, hyperlexia, depression, anxiety, OCD, DSI > trevor, 3, multiple developmental delays, no " official " dx yet > parker jade, due 7-25-03 :-D > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 30, 2003 Report Share Posted April 30, 2003 HUGS, Mmmm some days we are sorry we got up! Hope you have a really extra special day today! Louisa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 jacquie's bang on here! happens with rowan all of the time. one step forward in one area always means two steps back in another. that being said, rowan has never " lost " a skill permanently in this process - just misplaced them for a bit ;o) M.G.mum to Sebastian, 11 kinda quirky(NT) Rowan, 6 extra quirky (ASD) married to and living in Northern Ontario Re: Going crazzzzzy > It's like this ALLLLLL DAYYYYYYY LONGGGGGGGGG. > He said EAT last night for the first time, and today, he said HOT. That's why, babe - that's WHY. I see this in all the time. When he's making great strides in one area, in all other areas of life he acts like he's possessed. My theory is that when they're making a huge breakthrough, like new words, their brains are working so hard on THAT one thing that they can't modulate anything else, and that they stim to comfort themselves about all this new stuff. (((hugs))) This DOES even out. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 > It's like this ALLLLLL DAYYYYYYY LONGGGGGGGGG. > He said EAT last night for the first time, and today, he said HOT. That's why, babe - that's WHY. I see this in all the time. When he's making great strides in one area, in all other areas of life he acts like he's possessed. My theory is that when they're making a huge breakthrough, like new words, their brains are working so hard on THAT one thing that they can't modulate anything else, and that they stim to comfort themselves about all this new stuff. (((hugs))) This DOES even out. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Thanks (and everyone else for the encouragement) I do this too, put him in his room. After awhile, I hear him jumping off his bed. Thing is, once I take him out of his room it's the same thing. I've again begun to correct him. Only because I feel he can understand " no' now. He shows willful disobedience..something he hadn't done in the past. Meaning when I say no, he puts his hand near the object, and looks at me and slowly proceeds until I say no again. Then he does it anyway and holds his hands over his eyes when it's done. He seems to be understanding me better too. He's following directions better as in " get the shoe " . Oddly enough, he will only do it about 75% of the time. If it's something he likes, like OUTSIDE, he seems to understand 100% of the time. This isn't the same for his anxiety of course. I don't correct him for that. Nor do I try to get too upset with his apparent hypersensitive sensory issues. I talked to my husband last night. How I just don't feel like I can handle this anymore. If I allow myself to think about the fact that he's only two, and that we have indefinate amount of years to do this, it's overwhelming. So today is a new day, and I'll survive it yet again. > > Oh boy have I had days (weeks, months) like this. And I had been at a real > loss for a long time on what to do about it. But I have finally found > something that is working for us. Essentially, when n begins to push > me to my limit by being Obnoxious Boy, or being physically aggressive, or > just generally driving me insane ... he gets a 10 minute time-out in his > room. > > See I've been struggling because I realize that most autie behavior, while > intolerable, is largely innocent, and I can place him in his room without > feeling like I've unjustly punished him. Perhaps he will learn what > behaviors are unacceptable, but for now I am happy just to diffuse the > tension. n frequently spends the time jumping on his bed, which I > think helps him calm down, and more often than not, emerges from time-out a > happier person (a temporary affect). Also *I* get a break so that I don't > explode, and this makes my day manageable, cuz once I am pushed beyond my > limit, it ain't pretty, and I do not parent effectively, sometimes for days. > > Also, as we all know, when our kids get worked up, it is useful to remove > the object of distress. I have come to accept that in most situations *I* > am that object. If I cannot decipher or fix what he needs then I become the > antagonist. As such, sometimes I think he needs those 10 minutes away from > me as much as I need the 10 minutes away from him. > > Hang in there! {{{{Theresa}}}} > > (SAHM in GA) > MSN elizabethloht@h... > n 33, mo, no formal dx > Phoebe, 11 wks > > > > ----- Original Message ----- > From: " shanley_n_teresa " <shanley_n_teresa@y...> > > > Zach's in his room again. Screaming. For the last week his behavior > > has been unbelievably awful. Today I got up, right away he goes to > > the back door stomping. We go outside. He stands by the door to > > come inside. We come inside. He starts screaming and stomping, > > grabbing on me. We eat. We go to the park. He plays in the sand > > and slides all by himself for a whole 7 minutes. Then he's running > > for the car and won't come back. Get home, he wants to go outside. > > Hanging on me, poking at my boobs, dumping the food on the floor then > > screaming when I take it away, anything on my desk he's grabbing. > > Playing with the dials on the phone, screams when I take it away. > > When I play with him on the floor he is throwing his whole body on me > > and stomping on me and it hurts! I cook dinner, he's standing under > > my at my feet, grabbing ahold of my shirt stomping screaming. I know > > one of these days he's going to trip me holding a hot pan. > > > > It's like this ALLLLLL DAYYYYYYY LONGGGGGGGGG. > > He said EAT last night for the first time, and today, he said HOT. > > > > I can't take this anymore!! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 > HA! This is why the kitchen is *off-limits* to n. After numerous, and > I mean numerous, attempts to make the kitchen safe enough for n, I just > gave up. > > Also I can hide in there from him : ) My house isn't designed so that I can block off my kitchen. But I've seriously considered putting up new walls. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Oh, oh, oh, he's two! Argh, *difficult* time for little auties (and their mommies). At two years old, I was convinced nothing I was doing was making a bit of difference. Now closer to 3, I can see that the seeds I planted then are coming to fruition, but you couldn't have told me that then ... > I've again begun to correct him. Only because I feel he can > understand " no' now. He shows willful disobedience..something he > hadn't done in the past. Meaning when I say no, he puts his hand > near the object, and looks at me and slowly proceeds until I say no > again. Then he does it anyway and holds his hands over his eyes when > it's done. Oh, yes, still battling this one. " no " is still a very funny game for n. Can be quite annoying. > He seems to be understanding me better too. He's following > directions better as in " get the shoe " . Oddly enough, he will only > do it about 75% of the time. If it's something he likes, like > OUTSIDE, he seems to understand 100% of the time. Selective listening, always my favorite (not!) > I talked to my husband last night. How I just don't feel like I can > handle this anymore. If I allow myself to think about the fact that > he's only two, and that we have indefinate amount of years to do > this, it's overwhelming. > > So today is a new day, and I'll survive it yet again. Yes, I've had this conversation with the dh many times. Sometimes I feel like I've been in " survival mode " forever. But I can see now where things are improving some, but I think many here will tell you that, seriously, 18 mo - 3 is really really tough (ha ha next year I'll be saying that 4 is tough). Hang tight, (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 11 wks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 In a message dated 5/1/03 1:27:43 PM Eastern Daylight Time, shanley_n_teresa@... writes: > . If I allow myself to think about the fact that > he's only two, and that we have indefinate amount of years to do > this, it's overwhelming. > > Oh heavens yes-we do that too.We cry then we laugh then we sigh and keep on keepin' on. Hugz all around. The Grammas & Keion Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 Sue Yes we're still on the diet, and I thought we were done with the withdrawl symptoms. He did go through that horrible period and then just seemed to be so much better. But now is back to horrible. He's really bad about shutting doors and pushing buttons right now. Here is what his diet is consisting of right now Gluten free bread, I make it, I know it's completely gluten free. Rodeo Jumbo Beef hot dogs, was told they're gluten free and the package seems to jive with that Mayer white turkey breast...this has been verified Dwight Yokam Lanky link sausages...verified today as GFCF Eggs Kellogg's corn pops fritos dinty moore beef stew kids kitchen beanie weenies Chef Boyardee chicken rice with vegetables *verified all canned fruit types 100 % pure meats that I buy at the grocery store and cook at home. Since I've just started, I haven't really branched out much. I'm pretty much sticking to what I know is GFCF -- In parenting_autism , " smgaska " <smgaska@a...> wrote: > ((((())))), > How long have you had him on the diet now? Have you pulled anything else > from him that maybe he was getting gluten in still from before? Sometimes > the kids go through a period of getting worse soon after starting the diet, > before they get better. It's described as being like withdrawal since the > reaction some kids get from eating some of these foods creates something > similar to opiates in their systems. > Hang in there!! > Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2003 Report Share Posted May 1, 2003 RoOllErCoaSTer. Penny:/ >>>>>>>>>>>>>>>>> It's like this ALLLLLL DAYYYYYYY LONGGGGGGGGG. He said EAT last night for the first time, and today, he said HOT. I can't take this anymore!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 , Kellogg's corn pops are a no-no on the GFCF diet. I'm trying to dig up my list of store-bought safe foods for you, hopefully can forward it to you this weekend. -BJ in polis, MD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 In a message dated 5/1/03 7:48:34 PM Eastern Daylight Time, shanley_n_teresa@... writes: > 100 % pure meats If you are doing hamburger sometimes after they ground it up they use wheat flour to clean the machines. Call and check on this????? Hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 Kelloggs corn pops were verified as GFCF in the GFCF Recipes Group, but was mentioned that there was a possibility of cross contamination. The way I figure it, almost anything has that possibility though. But if you have any more suggestions I'd love to hear it. And I'd still like that list, and I'm compiling my own too. > , > > Kellogg's corn pops are a no-no on the GFCF diet. I'm trying to dig up my > list of store-bought safe foods for you, hopefully can forward it to you this > weekend. > > -BJ in polis, MD > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 > Kelloggs corn pops were verified as GFCF in the GFCF Recipes Group, > but was mentioned that there was a possibility of cross > contamination. The way I figure it, almost anything has that > possibility though. > > But if you have any more suggestions I'd love to hear it. And I'd > still like that list, and I'm compiling my own too. > > > , it could be the corn that he is reacting to aswell. Just a thought. Ali mum to Lyndsey,7,(NT) and Andy,5,(ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 There are many things he could be reacting to, I get overwhelmed when I start thinking about salysilics, nitrites, preservatives, corn, soy, etc etc.... I want to have him established on the GFCF part before I begin to try eliminating anything else. And yes, at some point I will begin testing those things as well. I will start watching closely to see if he reacts when I feed him corn products. By the way, he's been a little better the last couple of days too. New word again, SILLY! > , it could be the corn that he is reacting to aswell. > Just a thought. > > Ali > mum to Lyndsey,7,(NT) > and Andy,5,(ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2003 Report Share Posted May 2, 2003 > > By the way, he's been a little better the last couple of days too. > New word again, SILLY! > > > > > That's great !! Andy has a new phrase these days, (his speech is really coming on..) He says all the time now...*emmm excuse me pleaaaaseee* He sounds so cute when he says it too..LOL Ali mum to Lyndsey,7,(NT) and Andy,5,(ASD) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 Oh, dear, , I don't have a lot of help to offer but I can offer a lot of sympathy. Good about those new words though. Hang in there! Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 > > See I've been struggling because I realize that most autie behavior, while > intolerable, is largely innocent, and I can place him in his room without > feeling like I've unjustly punished him. Just be sure he doesn't find this rewarding...some auties do, you know. " Time alone? Yippee! " thinks small autistic boy. Perhaps he will learn what > behaviors are unacceptable, but for now I am happy just to diffuse the > tension. Well, it may be totally worth it just for this reason alone. n frequently spends the time jumping on his bed, which I > think helps him calm down, and more often than not, emerges from time-out a > happier person (a temporary affect). Yes, perhaps the behaviors stem from sensory needs? Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2003 Report Share Posted May 3, 2003 You know, now that I think back, before we even had any suspicions about , I can remembering thinking it was funny that he'd sleep on his blanket (as a pillow) and use his pillow as a blanket. He was probably about 14 -15 months old. ellen Re: Going crazzzzzy ----- Original Message ----- > n frequently spends the time jumping on his bed, which I > > think helps him calm down, and more often than not, emerges from time-out > a > > happier person (a temporary affect). > > Yes, perhaps the behaviors stem from sensory needs? Yes, I think you may be right. Strangely, it seems like in the last month or two n has decided to become fully autistic. I mean for last 18 months I've thought, well maybe he is and maybe he isn't, then I figured, well he probablly is, etc. But in the last few months he is suddenly lining up everything under the sun (all the vcr tapes face down, then face up, then stand them on end, etc with every object he gets his hand on), when I tuck him in at night I find he is falling asleep with his pillow firmly placed over his body (sensory stuff I imagine), there are others. But he never did any of these classically autie things before. As I've said before, it seems strange to me that it is like he is growing into autism ... (SAHM in GA) MSN elizabethloht@... n 33, mo, no formal dx Phoebe, 11 wks Quote Link to comment Share on other sites More sharing options...
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