Re: I know people mean well but......Vent

[Guest guest]

I really hate that. I do. I am still dealing with it. ugh. 5 yrs living with

autism dx in my home and they still say things like that. Just think of all the

strange or odd or out of the ordinary things our kids do. Of course most kids do

some of them but not all or most of them all the time! This is what I was

begging my family (and Jeff before we got Greggory's dx) to understand. They

would tell me that the boys were fine. But they weren't. I just told them they

weren't and maybe they didn't see it but they didn't live it. And if they

thought for one minute that having the boys dx'd with autism made me in anyway

happy then they were crazy! They got the dx because they are autistic. Its that

simple(although nothing is simple). But now that Greggory is 7 and Alec is 5

things are different. When Greggory was 3 yrs old he was soooo autistic. You

could see it a mile away. Alec was about at the time. Alec's autism showed its

full glory at about 4 yrs old. Until then he was just quiet and a bit of a loner

they said. Alec has never been bothered by people touching him or had a need for

routine. So they dismissed his dx. But now he is obviously impaired. Still in

diapers at age 5. And so they have surrendered. But Greggory has gotten to a

point I never thought I would see. He is totally mainstreamed and holds great

conversations, no longer stims and has typical friends. My FIL told Jeff, " See?

I told you he was fine. " BLEECH!

Jacquie H

I know people mean well but......Vent

Good Morning everyone,

I spent way too much time over the Easter weekend at my family's house hearing

my sister and one of my friend's saying " there is nothing wrong with that boy "

" He imitates just fine " " look at how good he entertains himself " and when I

would start to explain to them...I could hear myself in my head thinking it

sounds like I am wanting him to be, that I am looking for issues. I know this is

not true but...... has changed alot in the last 2 months but still I live

with him and things are not " right " ...Believe me when I say, I would love for

him to be " fine " . I would love to go back 6 months when ABA, DT,OT, tactile

issues, Hypo sensitive and stims were all " Greek " to me....LOL

Am I being too sensitive? I think they are trying to make me feel good but it

gets old. I finally just say " you are right, he will be fine "

Example I told my sister " was stimming on his crackers at lunch at

school (lining them up then stack then line) so the teacher broke them in half "

Sis " all kids line things up " Me " but not to the point where nothing else is

going on " sis " my son used to do it all the time " (Another story for a another

vent LOL) Me " well but then does nothing else and wont eat " sis " alot of

little kids play with their food " Me " Ok you are right, he is fine, I don't know

why the teacher thought that was a problem " grrrrr Why did I do that???

Sorry this is a long rambling bitch.....I could go on with 10 other

conversations that were the same idea

Warm Regards

& ASD 11/25/00 in Maine

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[Guest guest]

ROFL Grammas. Your sense of humor is very much appreciated!

Maggie

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[Guest guest]

>>>>Am I being too sensitive? I think they are trying to make me feel

good but it

gets old. I finally just say " you are right, he will be fine " <<<<<

Hi ..nope I don't think you're not being too senstive honey ! My

mum adores Andy but she is always saying, " he'll be fine..just you

see " . I always say, *yep he will..in his own way he will be fine*

Another thing my mum always says is that I'm such a pessimist, but I

tell her no I'm not , I'm a realist. I tell her that unless she has

Andy 24/7, she will never fully know what my life is like.

Hang in there

Ali

mum to Lyndsey,7, (NT)

and Andy,5, (ASD)

[Guest guest]

.. My FIL told Jeff, " See? I told you he was fine. " BLEECH!

Oh now that just sucks!! Totally dismissing all the hard work you did to

get him where he is today!! ARGGHHHHH!

Sue