Re: Medically supervised exercise

July 31, 2009

Joyce,

I don't know what you are able to do now and I have no idea what a realistic goal is for you but I can tell you that I and many others have been able to increase their ability to do physical activity as a result of pulmonary rehab or a medically supervised exercise program like the one you are in.

Don't give up, just keep plugging away. It will get better and you will be able to do more.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support <Breathe-Support >Sent: Friday, July 31, 2009 2:47:09 PMSubject: Medically supervised exercise

I just had my first visit to the Pendelton Center which has medically supervised exercises. It is NOT pulmonary rehab but they take your O2 and blood pressure and your blood sugar many times while you are there. They have all sorts of machines...some resistance and some not. They had to stop me on the Treadmill because my oxygen went too low and my heart rate jumped too high. Odd that I had that reaction just to the treadmill. Anyway they wanted some goals for me and I said to "Maintain" what I have and I saw that depressed them so I said "To be able to walk a mile in 6 months." I don't think I will ever reach this goal and didn't know how to explain to them that just maintaining where I am is the realistic goal and that even with exercise it is possible I will get worse...they didn't seem to understand what my problem is. And, I was wondering if people with COPD actually were able to do this...increase their ability to do things

as a result of exercises? Unless my fibrosis goes away I probably will never be able to walk a mile again. So, in a way the encounter depressed me when maintaining what I have was seen as a failure attitude. Joyce Rudy AZ Birds

July 31, 2009

rudy joyce

when i started rehab, the rt had a goaal for me of 20 minutes on the treadmill

i thought she was nuts,

but eventually i got there

at that time the o2 was c 2 lpm

my speed at this time is 2.2

for 24 minutes

o2 is continuous 4l pm

do it gradually, both time and speed

there used to be a lady on the treadmil who did the slowest speed, took 2 steps and stop2 more steps and stop

i have been using 3 pound weights for a long time

some things i use 5 pound weights

my new card said to use 6 pound weights

i will determine what is comfortable for

my personal goal is to maintain and keep my muscles from requiring lots of extra o2

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Medically supervised exerciseTo: Breathe-Support Date: Friday, July 31, 2009, 4:20 PM

Joyce,

First of all, don't be discouraged by what others may say or appear to think. Take that goal of 1 mile in 6 months and break it down more. Maybe you can do 1/2 mile in 3 months or 4 months. Use step goals that are reasonable, then build on these easier goals. Four years ago I couldn't stand at the sink to brush my teeth following my biopsy. Talk little steps and then look back in 6 months, and you may see some surprising progress.

Also, working out on the treadmill lets you exercise with the least strss on your heart of any other exercise, and it will build your stamina faster, and in a more measurable way than other exercises. Your legs actually help your heart pumb blood throughout your body. Other forms of exertion such as lifting weights may in time build unneeded muscles; I say that because for us with IPF, we need as little extra body mass for our lungs to have to oxygenate. Just to look at the extreme, those big wrestlers and football players are really not healthy for the long haul. Sure they can lift and toss much more than we could ever do, but they have increased their chances of an unhealthy enlarged heart in time. If you do decide to work out using resistance weights or other body-building exercises, make it very minimal. We are like a moon rocket; We don't need that extra weight to have to fuel up for. Use your leg muscles as much as you can in a good

comfortable walk which allows your O2 level to stay above 90% or higher. Start very gradually and don't set goals that push you too much. And don't tire yourself to the point that it keeps you from the usual every-day routine you are used to. Add just a little more to your walk week by week and start slow.

As you walk, occasionally breathe in deeply and then breathe out pursing your lips. Do you at first 4 years when I began walking, I used 5 liters per minute to maintain a good O2 level at 2.5 MPH. I was very discouraged, but stayed with it. And don't even try to spend your life like I do as a gerble, walking 6 miles a day.

Exercise, even if all you do is 1/2 mile daily, helps you mentally as well as physically. Exercise is said to help our brains release indorphins, which helps us feel happier and less worried. And over time as you continue to exercise, your heart will become more efficient, and thus itself requiring less oxygen to do the same job, and that in turn takes the load off your lungs. By choosing to exercise as you have, you will have one more tool to help you stay healthy, inasmuchas it is possible with IPF. Be realistic, and set small achievable goals. Take good care.

Jerry/Mississippi/ 54/IPF/dx April 05Who believes that hard times help us appreciate the good times even more.

From: JOYCE RUDY <greycharlie@ q.com>Subject: Medically supervised exerciseTo: "Breathe-Support" <Breathe-Support@ yahoogroups. com>Date: Friday, July 31, 2009, 6:47 PM

I just had my first visit to the Pendelton Center which has medically supervised exercises. It is NOT pulmonary rehab but they take your O2 and blood pressure and your blood sugar many times while you are there. They have all sorts of machines...some resistance and some not. They had to stop me on the Treadmill because my oxygen went too low and my heart rate jumped too high. Odd that I had that reaction just to the treadmill. Anyway they wanted some goals for me and I said to "Maintain" what I have and I saw that depressed them so I said "To be able to walk a mile in 6 months." I don't think I will ever reach this goal and didn't know how to explain to them that just maintaining where I am is the realistic goal and that even with exercise it is possible I will get worse...they didn't seem to understand what my problem is. And, I was wondering if people with COPD actually were able to do this...increase their ability to do things

as a result of exercises? Unless my fibrosis goes away I probably will never be able to walk a mile again. So, in a way the encounter depressed me when maintaining what I have was seen as a failure attitude. Joyce Rudy AZ Birds

July 31, 2009

Joyce

You'll do better than maintaining in terms of how much you can walk. Now

your overall health, maintain is good. But you'll be amazed with the

exercise how your ability to exercise and exert will increase. Your

muscles will be stronger, your breathing deeper. It doesn't mean a 4

minute mile, but you'll find yourself building a little each week.

>

> I just had my first visit to the Pendelton Center which has medically

supervised exercises. It is NOT pulmonary rehab but they take your O2

and blood pressure and your blood sugar many times while you are there.

They have all sorts of machines...some resistance and some not. They had

to stop me on the Treadmill because my oxygen went too low and my heart

rate jumped too high. Odd that I had that reaction just to the

treadmill. Anyway they wanted some goals for me and I said to " Maintain "

what I have and I saw that depressed them so I said " To be able to walk

a mile in 6 months. " I don't think I will ever reach this goal and

didn't know how to explain to them that just maintaining where I am is

the realistic goal and that even with exercise it is possible I will get

worse...they didn't seem to understand what my problem is. And, I was

wondering if people with COPD actually were able to do this...increase

their ability to do things as a result of exercises? Unless my fibrosis

goes away I probably will never be able to walk a mile again. So, in a

way the encounter depressed me when maintaining what I have was seen as

a failure attitude. Joyce Rudy AZ Birds

>

July 31, 2009

To each of you who answered my post about Medically supervised exercise, I thank you!I guess it isn't unreasonable to think I migh twalk my dogs again! You have given me Hope and lifted my spirits high! Thank You, Joyce Rudy AZ birds

Re: Medically supervised exercise

JoyceYou'll do better than maintaining in terms of how much you can walk. Nowyour overall health, maintain is good. But you'll be amazed with theexercise how your ability to exercise and exert will increase. Yourmuscles will be stronger, your breathing deeper. It doesn't mean a 4minute mile, but you'll find yourself building a little each week.>> I just had my first visit to the Pendelton Center which has medicallysupervised exercises. It is NOT pulmonary rehab but they take your O2and blood pressure and your blood sugar many times while you are there.They have all sorts of machines...some resistance and some not. They hadto stop me on the Treadmill because my oxygen went too low and my heartrate jumped too high. Odd that I had that reaction just to thetreadmill. Anyway they wanted some goals for me and I said to "Maintain"what I have and I saw that depressed them so I said "To be able to walka mile in 6 months." I don't think I will ever reach this goal anddidn't know how to explain to them that just maintaining where I am isthe realistic goal and that even with exercise it is possible I will getworse...they didn't seem to understand what my problem is. And, I waswondering if people with COPD actually were able to do this...increasetheir ability to do things as a result of exercises? Unless my fibrosisgoes away I probably will never be able to walk a mile again. So, in away the encounter depressed me when maintaining what I have was seen asa failure attitude. Joyce Rudy AZ Birds>

July 31, 2009

Joyce Rudy, You can do anything

you want...just slower and in small increases

in distance at a time. It may seem silly...but I increase my amount of

time on the treadmill

every other day by just one minute longer each time! I started over

again after a time of inactivity

due to bronchitis again for the "umpteenth"time today

at just 4 minutes at 1.5 mph! Before this disease hit...I was a "gym

rat"..I used to do 30-40 minutes

at 3.5 mph!!! 3 X weekly in addition to all the weight machines!!! No

more gym rat...but I do walk on the

stupid treadmill! So, just be easy on yourself..do what you can

,,moving is good for all of us!

Tomorrow I will walk 5 minutes! Sunday it will be 6! I'm aiming for a

regular 15 minutes every other day

as my first new goal.

Set your goals reasonably..you'll be OK!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

JOYCE RUDY wrote:

To each of you who answered my post about Medically supervised

exercise, I thank you!I guess it isn't unreasonable to think I migh

twalk my dogs again! You have given me Hope and lifted my spirits high!

Thank You, Joyce Rudy AZ birds

-----

Original Message -----

From:

Bruce Moreland

To:

Breathe-Support

Sent:

Friday, July 31, 2009 6:59 PM

Subject:

Re: Medically supervised exercise

Joyce

You'll do better than maintaining in terms of how much you can walk. Now

your overall health, maintain is good. But you'll be amazed with the

exercise how your ability to exercise and exert will increase. Your

muscles will be stronger, your breathing deeper. It doesn't mean a 4

minute mile, but you'll find yourself building a little each week.

>

> I just had my first visit to the Pendelton Center which has

medically

supervised exercises. It is NOT pulmonary rehab but they take your O2

and blood pressure and your blood sugar many times while you are there.

They have all sorts of machines...some resistance and some not. They had

to stop me on the Treadmill because my oxygen went too low and my heart

rate jumped too high. Odd that I had that reaction just to the

treadmill. Anyway they wanted some goals for me and I said to "Maintain"

what I have and I saw that depressed them so I said "To be able to walk

a mile in 6 months." I don't think I will ever reach this goal and

didn't know how to explain to them that just maintaining where I am is

the realistic goal and that even with exercise it is possible I will get

worse...they didn't seem to understand what my problem is. And, I was

wondering if people with COPD actually were able to do this...increase

their ability to do things as a result of exercises? Unless my fibrosis

goes away I probably will never be able to walk a mile again. So, in a

way the encounter depressed me when maintaining what I have was seen as

a failure attitude. Joyce Rudy AZ Birds

>

August 1, 2009

Joyce

Ok, I'm laughing right now but not at you, with you. I've followed you

since the day you joined us. You get frustrated, express it, but you

listen and fight and go forward and you make me so happy when you do.

You were so lost at first like most of us but now you give good advice

to others and you're a great example to others coming along. You did

what it took to get to the best doctors. We yelled about rehab and you

found the best and closest thing you could in your area. Now, I know

you'll take it seriously and benefit from it. We don't make our lungs

suddenly well or even better in some senses. But what we do in rehab is

improve our ability to get everything out of them they have. Sometimes I

find myself walking and feeling more exhausted than on the treadmill and

I realize its because I'm not breathing the same. Few people use all

their lungs have. Thats what aerobic and breathing exercises help us to

do. Furthermore, they help us strengthen the rest of our body. Muscles

store oxygen and use it. If we strengthen them then they don't pull as

dramatically from our lungs as we walk or do simple tasks. Also, sitting

around we tend to let all the rest of our body weaken. Exercise keeps

that from happening. I never thought I'd miss exercise but a couple of

times when my rheumatologist has banned me for five days to do tests,

I've really felt the difference and wanted to get back to it.

> >

> > I just had my first visit to the Pendelton Center which has

medically

> supervised exercises. It is NOT pulmonary rehab but they take your

O2

> and blood pressure and your blood sugar many times while you are

there.

> They have all sorts of machines...some resistance and some not. They

had

> to stop me on the Treadmill because my oxygen went too low and my

heart

> rate jumped too high. Odd that I had that reaction just to the

> treadmill. Anyway they wanted some goals for me and I said to

" Maintain "

> what I have and I saw that depressed them so I said " To be able to

walk

> a mile in 6 months. " I don't think I will ever reach this goal and

> didn't know how to explain to them that just maintaining where I am

is

> the realistic goal and that even with exercise it is possible I will

get

> worse...they didn't seem to understand what my problem is. And, I

was

> wondering if people with COPD actually were able to do

this...increase

> their ability to do things as a result of exercises? Unless my

fibrosis

> goes away I probably will never be able to walk a mile again. So, in

a

> way the encounter depressed me when maintaining what I have was seen

as

> a failure attitude. Joyce Rudy AZ Birds

> >

>

August 1, 2009

Oh great for you. It's amazing how most wouldn't think of what you're

describing as much. But 5 minutes versus 4 is a 25% increase. We so

often do set unreasonable goals for ourselves instead of just doing what

we can or very slight improvement. My mental health counselor use to

push a concept of 1%. Are you 1% better this week than last? Seems so

little but adds up so fast. I was never a gym rat. Hated the treadmill

and the concept of walking a mile or two and getting nowhere. But now, I

enjoy it. Whatever I'm able to do on it, I get pleasure from knowing I'm

helping myself and just proving I still can. I'm not comparing myself to

anyone else, just doing what I can. My treadmill isn't hidden off in a

corner somewhere. It's right here in the family room/dining area behind

the sectional, facing the tv.

For those who can't do the treadmill there's still walking. I remember

Gwynne doing laps in her house with her rehab therapist. I remember her

being so proud she did 12 laps. Well, look at what keeping her body up

the best as she could did for her. So, if you do need to choose to walk

outside or walk around the house even, do it in some accountable way so

that you can both make sure you do it and be proud because you did. It

could be I'm going to the mall and park at one end, walk to the other

and back, three times per week. If thats it, just make sure you do it.

> > >

> > > I just had my first visit to the Pendelton Center which has

> > medically

> > supervised exercises. It is NOT pulmonary rehab but they take

your O2

> > and blood pressure and your blood sugar many times while you are

> > there.

> > They have all sorts of machines...some resistance and some not.

> > They had

> > to stop me on the Treadmill because my oxygen went too low and

my

> > heart

> > rate jumped too high. Odd that I had that reaction just to the

> > treadmill. Anyway they wanted some goals for me and I said to

> > " Maintain "

> > what I have and I saw that depressed them so I said " To be able

to

> > walk

> > a mile in 6 months. " I don't think I will ever reach this goal

and

> > didn't know how to explain to them that just maintaining where I

am is

> > the realistic goal and that even with exercise it is possible I

> > will get

> > worse...they didn't seem to understand what my problem is. And,

I was

> > wondering if people with COPD actually were able to do

this...increase

> > their ability to do things as a result of exercises? Unless my

> > fibrosis

> > goes away I probably will never be able to walk a mile again.

So, in a

> > way the encounter depressed me when maintaining what I have was

> > seen as

> > a failure attitude. Joyce Rudy AZ Birds

> > >

> >

>

August 1, 2009

Bruce, My treadmill is in the den

right next to my recliner!

That's an example of opposites isn't it! But it's in my face all the

time!

When I really can't do the walking it's there to remind me to get

better enough

to start over!

The "gym rat" title was given to me by my daughter . As a much

younger person I really was inactive

except for running after 3 kids, taking care of Mike and the house!

When I got to about 50, I began

being plagued by a bad back.(Sacroiliac) At first the thoughts

were.rest,..sit still, take pain meds,heating pad, and the pain will

be less. Then when that really

didn't work I was sent to my PC's chiropractor who had me start walking

slowly around my dining room

table in one minute increments. After about two weeks of doing that

daily he said.." Ten minutes is all you need to loosen up your joints

but any more will really help your health in general..I joined the

local "Y". I've been walking ever since..except for the NSIP and all

the other medical

stuff that's come down the pike in the past 15 years!!!

I had to stop going to the "Y" because I kept getting sick from there

after the DX in 2005.

I use my own stuff at home when ever I can!

I do daily stretches from a book I found, I use 1 pound weights and I

keep trying every day.

That is when my body feels it can.

At times it seems as if I'm losing the battle but the treadmill sits

in the den and stares at me!!!

The one minute at a time is still from the original chiropractor!

Z fibriotic NSIP/05

Z 65, fibriotic NSIP/05/PA

And

“mild” PH/10/07 and Reynaud’s too!!

No,

NSIP was not self-inflicted…I never smoked!

Potter,

reader,carousel lover and MomMom to Darah and Sara

“I’m

gonna be iron like a lion in Zion” Bob Marley

Vinca

Minor-periwinkle is my flower

Bruce Moreland wrote: