Re: In need of prayers please :(

[Guest guest]

Oh, Deb, sorry to hear about Dani. Praying for her, you, Joe, Mom and everyone

in your family. Hang in there!

~Deb from KS

deb vamdembos wrote:

Ok yall , my daughter is in need of prayers again , we just got the MRI

results back and they said her syrinx in spinal canal has grown , and the doc

just called and said he wants to see her on the 6th of Jan , because it looks

like the Chiari is back

What does this mean more surgery??? no idea will let you know more when we

find out

In the meantime could you say a prayer for her, she is in daily pain , poor

baby , says she hasnt felt " well " in over 7months.

I just want her pain to go away dang it

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

---------------------------------

Yahoo! for Good - Make a difference this year.

[Guest guest]

Oh Deb! the poor girl, I hope she doesn't have to go through this again.

My heart goes out to you and Dan as well. I know the pain a parent feels

when a child is ill and you feel helpless to help her.. Certainly will

remember you all in my prayer. Hugs Jolene

[Guest guest]

In a message dated 12/22/2005 5:28:18 PM Eastern Standard Time,

debbied31@... writes:

Ok yall , my daughter is in need of prayers again , we just got the MRI

results back and they said her syrinx in spinal canal has grown , and the doc

just called and said he wants to see her on the 6th of Jan , because it looks

like the Chiari is back

What does this mean more surgery??? no idea will let you know more when we

find out

In the meantime could you say a prayer for her, she is in daily pain , poor

baby , says she hasnt felt " well " in over 7months.

I just want her pain to go away dang it

Deb

Hi Deb...

I feel so badly for Dani...she's been through so much already and still

having daily pain...that's not fair!! When I see what daily pain over the last

18 months has done to Glenn...and realize how it must be affecting Dani's

quality of life at such a young age, it makes me sooo sad. And when I think of

any of the little aches and pains that I might have once in a while and

complain about, I'm so ashamed of myself...a beautiful child should not have to

endure such....and I know it's breaking your hearts as well....will be lifting

Dani, you and Joe in my prayers daily.

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Deb

Prayers coming across the miles on my part. It just hurts to see your child

in pain - your own sweet baby who you gave birth to - you must want to just take

it away from her. Stay strong,

Pat

deb vamdembos wrote:

Ok yall , my daughter is in need of prayers again , we just got the MRI

results back and they said her syrinx in spinal canal has grown , and the doc

just called and said he wants to see her on the 6th of Jan , because it looks

like the Chiari is back

What does this mean more surgery??? no idea will let you know more when we

find out

In the meantime could you say a prayer for her, she is in daily pain , poor

baby , says she hasnt felt " well " in over 7months.

I just want her pain to go away dang it

Deb

33yrold husband Joe, was diagnosed with CC in Sept,

resection on Sept 27th 2004

found mets to the abdominal wall lining 3 lymph nodes involved

open wound from infection until Jan 2005

Ileostomy reversal Dec 7th 2004

Chemo regiment begun Jan 2005

5fu/levorican/Oxaplatin/ Avastin added Feb 14 2005 (Happy Valentines

Calcium Magnesium added for the Tingles Feb 28 2005

Ct Scan done March 23rd 2005 , 16 millimeter cyst like object on liver found

April 1 2005 PET scan done awaiting results

April 11 PET SCAN SHOWS

NED!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

May 9 Plateletts are low 75,000

---------------------------------

Yahoo! for Good - Make a difference this year.

[Guest guest]

Deb,

I was wondering if you could explain what a syrinx is and also what is

Chiari. I hope I'm not imposing but I just don't know what it is and I'm kinda

new

to the group.

I hope your daughter starts feeling better very soon.

Thanks