Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Hi Nita, I was in a trial of erbitux. For the trial you did not have to be EGFR positive, and I was negative. The erbitux worked for me as long as I took it. My liver mets disappeared. Unfortunately, they have started growing again. It also may have helped my duodenal tumor. It is a difficult chemo as you have to contend with the rash. But if I had to do it over again I would in a minute as the erbitux did some good. jane > > Hi All - > > I'm a new member, but a long time reader. It's been difficult for me > to see Narice lose Phil. I posted once, and Joe Savage answered my > questions. It was hard to see him go, as well. > > I started reading this board back in the summer of 2003. At that > time, my dad was diagnosed with metasized colon cancer. He was > originally diagnosed with colon cancer in May 1996. He had surgery > and a few chemo treatments after that. Then he was cancer free for > seven years until they found it in his lung. > > Since then, he's had radiation and all of the chemos. He's run out of > options, now. The oncologist wanted him to start Erbitux 6 months > ago, but his tumor was negative (or not reactive), something that > prevented Medicare from covering it. So, he just took Campostar alone. > > That chemo did not work and we tried to get him into a clinical trial > at the Hillman Cancer Center here in Pittsburgh. Unfortunately, they > did not except him - something to do with him taking Xeloda. > > Now they want him to try Erbitux, saying that Medicare may now cover > it, because other trials were done. And if not, the drug company will > pay for it. > > Has anyone heard of this? I find it amazing that would be the case. > > I'm not very hopefull that Erbitux will do much good, though, at this > point. The one good thing, he still remains asymptomatic. The way > they discovered this in 2003, was due to a rise in his CEA level. > > Any advice on Erbitux will be appreciated. > Nita > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 14, 2005 Report Share Posted December 14, 2005 Jane - So glad to hear positive news about Erbitux. Thanks! -- In colon_cancer_support , " Jane " <joshua1v9@y...> wrote: > > Hi Nita, > > I was in a trial of erbitux. For the trial you did not have to be > EGFR positive, and I was negative. The erbitux worked for me as long > as I took it. My liver mets disappeared. Unfortunately, they have > started growing again. It also may have helped my duodenal tumor. > It is a difficult chemo as you have to contend with the rash. But if > I had to do it over again I would in a minute as the erbitux did some > good. > > jane > > > > > > > > > > Hi All - > > > > I'm a new member, but a long time reader. It's been difficult for > me > > to see Narice lose Phil. I posted once, and Joe Savage answered my > > questions. It was hard to see him go, as well. > > > > I started reading this board back in the summer of 2003. At that > > time, my dad was diagnosed with metasized colon cancer. He was > > originally diagnosed with colon cancer in May 1996. He had surgery > > and a few chemo treatments after that. Then he was cancer free for > > seven years until they found it in his lung. > > > > Since then, he's had radiation and all of the chemos. He's run out > of > > options, now. The oncologist wanted him to start Erbitux 6 months > > ago, but his tumor was negative (or not reactive), something that > > prevented Medicare from covering it. So, he just took Campostar > alone. > > > > That chemo did not work and we tried to get him into a clinical > trial > > at the Hillman Cancer Center here in Pittsburgh. Unfortunately, > they > > did not except him - something to do with him taking Xeloda. > > > > Now they want him to try Erbitux, saying that Medicare may now > cover > > it, because other trials were done. And if not, the drug company > will > > pay for it. > > > > Has anyone heard of this? I find it amazing that would be the case. > > > > I'm not very hopefull that Erbitux will do much good, though, at > this > > point. The one good thing, he still remains asymptomatic. The way > > they discovered this in 2003, was due to a rise in his CEA level. > > > > Any advice on Erbitux will be appreciated. > > Nita > > > Quote Link to comment Share on other sites More sharing options...
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