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Hi Beth,

Venting is wonderful - everyone needs a small dose daily to be able to keep smiling. At least it was the machine that wasn't having problems and not you :-)

Sorry about your day, but everything always seems to happen for a reason. I am looking forward to hopefully getting to meet you on Thursday, 8/20 when I am at Duke. I will be at the Millenium Hotel Wednesday night, 8/19, then at Duke starting at 8:00 AM - hope to be finished by 12.

My cell phone number is:

Dorothy Reinecke, Fayetteville, GA

VATS 7/05

UIP 7/05

To: Breathe-Support Sent: Friday, August 14, 2009 4:59:34 PMSubject: Frustration

Ugh! Today was a bit aggravating. Had an appointment this morning to do "exercise testing" at Duke. It was to consist of portions of a pft, 10 minutes of high flow oxygen wearing a venti-mask while at rest, ABG's then 10-20 minutes on an exercise bicycle, while hooked up to cardiac and respiratory monitors and an oxymeter. Then repeat ABG's when I was finished with the exercise.

Plan--A Execution--F We got about halfway through the entire process and the computer that all the different monitors were hooked up to had a hissy fit. It was giving off the wall readings that made no sense and no one and I mean no one could get it fixed. I sat there patiently waiting for over an hour while half a dozen people worked on it, some were on the phone with the machines manufacturer. The verdict? Stuck solenoid somewhere along the way and that's what caused all the readings to be nuts.

I will have to go back sometime next week to repeat the entire process. I was frustrated but there's really no one to get angry at. Things break...stuff happens. It just wore me out.

Thanks for letting me vent, I just needed to get it out of my system.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Dorothy,

I've got it and if I haven't given you mine yet, it's . Would you rather have supper on Wednesday or something when you get finished on Thursday? Whatever works for you is fine with me. Think about it. Either will be fine with me. Let me know next week. I'm really looking forward to meeting you!

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Friday, August 14, 2009 5:26:23 PMSubject: Re: Frustration

Hi Beth,

Venting is wonderful - everyone needs a small dose daily to be able to keep smiling. At least it was the machine that wasn't having problems and not you :-)

Sorry about your day, but everything always seems to happen for a reason. I am looking forward to hopefully getting to meet you on Thursday, 8/20 when I am at Duke. I will be at the Millenium Hotel Wednesday night, 8/19, then at Duke starting at 8:00 AM - hope to be finished by 12.

My cell phone number is:

Dorothy Reinecke, Fayetteville, GA

VATS 7/05

UIP 7/05

From: Beth <mbmurtha (AT) yahoo (DOT) com>To: Breathe-Support@ yahoogroups. comSent: Friday, August 14, 2009 4:59:34 PMSubject: Frustration

Ugh! Today was a bit aggravating. Had an appointment this morning to do "exercise testing" at Duke. It was to consist of portions of a pft, 10 minutes of high flow oxygen wearing a venti-mask while at rest, ABG's then 10-20 minutes on an exercise bicycle, while hooked up to cardiac and respiratory monitors and an oxymeter. Then repeat ABG's when I was finished with the exercise.

Plan--A Execution--F We got about halfway through the entire process and the computer that all the different monitors were hooked up to had a hissy fit. It was giving off the wall readings that made no sense and no one and I mean no one could get it fixed. I sat there patiently waiting for over an hour while half a dozen people worked on it, some were on the phone with the machines manufacturer. The verdict? Stuck solenoid somewhere along the way and that's what caused all the readings to be nuts.

I will have to go back sometime next week to repeat the entire process. I was frustrated but there's really no one to get angry at. Things break...stuff happens. It just wore me out.

Thanks for letting me vent, I just needed to get it out of my system.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Oh my, your frustratio reminded me of what happened to me. I was in the MRI tube and without oxygen and I sat there and sat there and sat there and finally someone came in and said they were having "problems" I got some 02 but I was in a head thing a ma jig and they told me to not move a muscle and so a I sat more and more and finally I yelled for someone and tole them I couldn't do it any more I had to leave...and, the machine broke. That is all they knew and I had to go back for another one after it was fixed. That is so frustrating. Yes, Beth! Vent On!!! LOL Joyce Rudy AZ birds

Frustration

Ugh! Today was a bit aggravating. Had an appointment this morning to do "exercise testing" at Duke. It was to consist of portions of a pft, 10 minutes of high flow oxygen wearing a venti-mask while at rest, ABG's then 10-20 minutes on an exercise bicycle, while hooked up to cardiac and respiratory monitors and an oxymeter. Then repeat ABG's when I was finished with the exercise.

Plan--A Execution--F We got about halfway through the entire process and the computer that all the different monitors were hooked up to had a hissy fit. It was giving off the wall readings that made no sense and no one and I mean no one could get it fixed. I sat there patiently waiting for over an hour while half a dozen people worked on it, some were on the phone with the machines manufacturer. The verdict? Stuck solenoid somewhere along the way and that's what caused all the readings to be nuts.

I will have to go back sometime next week to repeat the entire process. I was frustrated but there's really no one to get angry at. Things break...stuff happens. It just wore me out.

Thanks for letting me vent, I just needed to get it out of my system.

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

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Beth/Joyce,

You've reminded me of one of those days down at Tulane a couple of years ago. I

was teking those dreaded before-exam PFTs, and had hardly got into them well.

" Okay, " said Jay. " Get ready, because when I say Blow Blow Blow Blow Blow Blow,

I want you to give it all you got, and then when I tell you to suck in, I want

you to give it all you got and hold it until I say stop. Got it? " ..... " Okay now

Blow Blow Blow Blow Blow Blow, keep going, keep going keep going. NOW SUCK IN

HARD! " I knew I couldn't suck Lake Ponchatrain dry, but I'd die trying. Suddenly

there was a wicked sound very similar to that part in Last Kiss, just before the

busting glass thing. I thought I'd sucked myself inside out. Jay sat back with

hands resting on Knees. " I don't know what you did, but try not to do it again, "

he said letting out a worried sigh. " Now follow my instructions exactly

now. " ..... " Okay now Blow Blow Blow Blow Blow, all the way, all the way, all the

way. NOW SUCK IN! " Thinking that Lake Ponchatrain thing again, I sucked in for

all I was worth. Jay has a gray mustache, so I know he heard the Last Kiss

cryinig tires thing. I was coughing my fool head off and my face must have

turned as red as concntrated beet juice tainted with Red #5. Jay's hands found

his knees. " I don't know what you are doing wrong, but we'll have to work

through it and get it right. " Then Jayy turned towards the corner where my

guardian angel was pointing. " Let me see if that oxygen tank is open. No it's

closed. " Jay opened it and sat back down at the console. " Now then, let's start

from the top. " I had lost it, and after a few more failed tries, Jay printed out

the results. Shortly Dr. Lasky asks, " Your heart is beating rather rapidly. Did

you happen to tank up on coffee? " I was done in and done for, and they still

dunned Medicare.

>

> Oh my, your frustratio reminded me of what happened to me. I was in the MRI

tube and without oxygen and I sat there and sat there and sat there and finally

someone came in and said they were having " problems " I got some 02 but I was in

a head thing a ma jig and they told me to not move a muscle and so a I sat more

and more and finally I yelled for someone and tole them I couldn't do it any

more I had to leave...and, the machine broke. That is all they knew and I had to

go back for another one after it was fixed. That is so frustrating. Yes,

Beth! Vent On!!! LOL Joyce Rudy AZ birds

> Frustration

>

>

>

> Ugh! Today was a bit aggravating. Had an appointment this morning to do

" exercise testing " at Duke. It was to consist of portions of a pft, 10 minutes

of high flow oxygen wearing a venti-mask while at rest, ABG's then 10-20 minutes

on an exercise bicycle, while hooked up to cardiac and respiratory monitors and

an oxymeter. Then repeat ABG's when I was finished with the exercise.

>

> Plan--A Execution--F We got about halfway through the entire process and the

computer that all the different monitors were hooked up to had a hissy fit. It

was giving off the wall readings that made no sense and no one and I mean no one

could get it fixed. I sat there patiently waiting for over an hour while half a

dozen people worked on it, some were on the phone with the machines

manufacturer. The verdict? Stuck solenoid somewhere along the way and that's

what caused all the readings to be nuts.

>

> I will have to go back sometime next week to repeat the entire process. I

was frustrated but there's really no one to get angry at. Things break...stuff

happens. It just wore me out.

>

> Thanks for letting me vent, I just needed to get it out of my system.

>

> Beth

>

> Moderator

>

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

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