Re: Vitamin/supplement/Diets

[Guest guest]

In a message dated 4/27/03 6:53:33 PM Eastern Daylight Time,

jbsmom@... writes:

> What types of vitamins/supplements/diets are your children on and have you

> found that these things have helped your children? I have been reading and

> reading and there is just so many different things to try that I don't know

> where to start, what to try etc.

Cod liver oil, Vitamin C, Magnesium and Zinc and Selenium (only twice a week)

I've also taken off milk.

Just try to write down when you start trying something new and make notes to

yourself on comments people make (ST OT etc) don't tell anyone what you're

doing unless you think there might be a reason for them to know.

[Guest guest]

> I am not sure if this topic is appropriate for this list and I am NOT

trying to start a debate. I have found this group so support and fun so if

these questions are inappropriate, someone please tell me

>

Nope, not inappropriate! No one around here will DARE tell you what is

" best " , so there's no problem! LOL.

> What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.

>

I tried SuperNuThera from Kirkman's Lab, a blend of B-something and

something else...I have no idea how it affected because I could never

get it into him!!!

We used DMG (dimethylglicene, available at any health food store) and that

really sped up his speech progress, then after a year lost its effect. This

was the BEST supplement we used with him; while it was effective it seemed

to perform miracles on the kid.

We used TMG (trimethylglycine, from Kirkman's), and it made him very hyper,

so we didn'd use it for very long.

We don't use any supplements now, just clonidine (now called Dixoret here in

ONtario or maybe Canada) for his hyperactivity. It's better because it's

FREE under our drug plan <grin>. It has a slight effect on his ability to

sit still and attend, but not as much as I'd like.

So that's our history of supplements! If I was to endorse one, it would

definitely be the DMG.

Jacquie

[Guest guest]

Oh - I forgot diet!

We went gfcf. It's a long story, but the last chapter reads that casein is

absolute poison to 's brain (and mine as well), but gluten seems to have

no adverse effect.

Short version: within days of no casein, begain talking in sentences!

Whenever casein enters his system (like when his idiot home therapist gave

him cheetos, or his idiot father took him out for ice cream), he seems to

vanish behind a wall of stims and off-the-wall behaviour. When the casein

leaves his system, so do the stims.

So we are a strict casein-free household that still eats grains, and that

works for us!

Jacquie

[Guest guest]

Thanks Jacquie!

I keep reading about DMG so now I will definitely have to try it!! Is it a

liquid? I think has an addiction (lack of a better word) to milk. When

upset he drinks it and settles down. I have read about the GFCF diet and also

the enzymes. I was already to go Casein free and chickened out with him starting

school 2 weeks ago.

Thanks for sharing and I look forward to hearing from others

Warm Regards

& ASD 11/25/00 in Maine

Re: Vitamin/supplement/Diets

> I am not sure if this topic is appropriate for this list and I am NOT

trying to start a debate. I have found this group so support and fun so if

these questions are inappropriate, someone please tell me

>

Nope, not inappropriate! No one around here will DARE tell you what is

" best " , so there's no problem! LOL.

> What types of vitamins/supplements/diets are your children on and have you

found that these things have helped your children? I have been reading and

reading and there is just so many different things to try that I don't know

where to start, what to try etc.

>

I tried SuperNuThera from Kirkman's Lab, a blend of B-something and

something else...I have no idea how it affected because I could never

get it into him!!!

We used DMG (dimethylglicene, available at any health food store) and that

really sped up his speech progress, then after a year lost its effect. This

was the BEST supplement we used with him; while it was effective it seemed

to perform miracles on the kid.

We used TMG (trimethylglycine, from Kirkman's), and it made him very hyper,

so we didn'd use it for very long.

We don't use any supplements now, just clonidine (now called Dixoret here in

ONtario or maybe Canada) for his hyperactivity. It's better because it's

FREE under our drug plan <grin>. It has a slight effect on his ability to

sit still and attend, but not as much as I'd like.

So that's our history of supplements! If I was to endorse one, it would

definitely be the DMG.

Jacquie

[Guest guest]

Hi ,

I have no problem answering the question and I'm curious to see what

other people answer. If you want to ask me more questions about

anything I'm doing, please contact me offlist or in IM, I'm more than

happy to discuss it further.

Jordan is Gluten-Free, Casein-Free. I haven't bothered to eliminate all

the other stuff that you hear from other people (corn, soy, yadda

yadda). He doesn't seem to have huge reactions to those things. Though

I do try to limit the amount of soy he gets just because of health

concerns with soy. Can't say I'm totally successful right now at

limiting soy because he's not eating anything but crackers (soy meal

ones right now, waiting for others to be in stock) and soy protein

supplement in his rice milk.

He gets Kirkman's ProBio Gold, a probiotic (the good gut flora) because

he has intermittent problems with yeasty diarrhea. I had discontinued

it but his DAN! Doctor told me to start it back up. His DAN! Doctor

also just added cod liver oil (lemon flavored, imagine that) and I

haven't been so good about making sure he gets that yet. Gotta really

buckle down on it. I'm supposed to add a multivitamin called " Sea

Silver " but I haven't found it in a healthfood store yet. The ultimate

goal is to get him taking Super NuThera but he's unable to tolerate a

lot of B-vitamins yet. I have enzymes to supplement his meals but he

hasn't eaten table foods in over a month so he's not taking those right

now.

It sounds like a lot but really it's hardly anything compared to a lot

of people I know. My ultimate goal is to get his gut healed so he

doesn't *have* to take anything but a good multivitamin and maybe some

enzymes with gluten or casein foods he eats occasionally.

Debbie with twins

- Jordan (ASD) 2.5yo

- (NT) 2.5yo