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Re: No colonoscopy

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Beth

Thats great. Prime example of us needing to evaluate risk versus rewards

and those may be far different than they would be with others. I have

similar with my gastroenterologist that doing anything to check for or

measure my acid reflux or any form of endoscopy in his opinion would do

more damage to my already damaged esophagus than we'd benefit. Reality

is not much we'd do different anyway. I also went through similar on

swollen lymph nodes where oncologist suggested watching rather than

biopsy, saying at their stage he might well not treat even if it was

lymphoma. We watched. They didn't grow so supported his belief of no

lymphoma.

I'm sure it relieved a lot of anxiety for you.

>

> Just got home from an app't at Duke with a gastroenterologist to

discuss how best to accomplish a screening colonoscopy. We sat and

discussed my history for about 30 minutes. He had already consulted Dr.

on and had the records of my previous experience with sedation and

anesthesia in NY. We reached a joint decision not to proceed with a

colonoscopy at this time.

> He felt strongly that with my history, my level of lung disease that

the risks far outweigh the benefits especially in the absence of

symptoms or any family history of colon disease.

> In the future should it become necessary for transplant evaluation or

I develop some type of symptom he gave me a list of options for that

contingency.

>

> I feel so much better about this. I thought maybe I was being a bit of

a baby with all the anxiety I had about sedation but he confirmed my gut

instinct that this was a real risk and it wasn't all in my head.

>

>

> Beth

> Moderator

> Fibrotic NSIP 06/06 Dermatomyositis 11/08

>

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