We just made our reservations

[Guest guest]

Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc..........

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

YEAH Jane, I am glad you are going to stay at the hotel.... more gab time.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc.......... Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

I am feeling the need for some gab time with my "air family". How are you feeling tonight Peggy?

Beth

Moderator

Fibrotic NSIP 06/06 Dermatomyositis 11/08

To: Breathe-Support Sent: Thursday, August 27, 2009 9:37:34 PMSubject: Re: We just made our reservations

YEAH Jane, I am glad you are going to stay at the hotel.... more gab time..

Love and Prayers, Peggy

IPF 2004, Florida

Worry looks around,

Sorry looks back,

Faith looks up.

Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc......... .

Toodles!

Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

OH YESSS, I need my Air Family comfort.. Love and Prayers, Peggy IPF 2004, FloridaWorry looks around, Sorry looks back, Faith looks up. I am feeling the need for some gab time with my "air family". How are you feeling tonight Peggy? BethModeratorFibrotic NSIP 06/06 Dermatomyositis 11/08 From: Peggy <pac1773 (AT) cfl (DOT) rr.com>To: Breathe-Support Sent: Thursday, August 27, 2009 9:37:34 PMSubject: Re: We just made our reservations YEAH Jane, I am glad you are going to stay at the hotel.... more gab time.. Love and Prayers, Peggy IPF 2004, Florida Worry looks around, Sorry looks back, Faith looks up. Eddie & I just made our reservations for the Chattanooga get-together October 30th weekend. I do hope that more people will come. We all have such a great time together! Lots of talking & gabbing & eating & etc......... . Toodles!Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

[Guest guest]

Peggy/MB

I don't think they comprehend how difficult PFT's are to many of us. I

think at some point too the discomfort and setback for a few days just

exceeds the value. I'm sure the doctors and techs will say they

understand as they've probably done them themselves. Just one huge

difference. They haven't done them in our condition. When I feel they

are more than I want to go through, I will definitely draw the line.

Each test, each procedure, each med, each treatment is a place each of

us has to place our own boundaries. They may not be right for others. If

you're going to put me through it at this point, then tell me what you

hope to gain to make it worthwhile.

I ran into a very good recent example where actually it was the doctor

showing a conservative approach versus the nurse. After 's mothers

open heart surgery she was doing very poorly at first. The nurse in ICU

was pumping us full of her opinion a CT needed to be done to make sure

she didn't have a stroke during the procedure. The doctor first felt

strongly she didn't but more importantly didn't want to subject her

already suffering body to the added trauma involved in giving her a CT.

Furthermore, and this is a greater point, it wasn't going to lead to

anything additional to be done at that time, even if she had suffered

one. Getting her to breathe on her own was the priority. Now she is and

we know there was no stroke. Who knows what seems like very little in

transporting her and moving her and administering a CT might have done.

That might have been just the thing to tax her systems further than they

could stand.

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> Eddie & I just made our reservations for the Chattanooga get-together

October 30th weekend. I do hope that more people will come. We all

have such a great time together! Lots of talking & gabbing & eating &

etc......... .

> Toodles!

> Jane UIP/IPF 12/1998 Dalton, Georgia aka pianolady_musicgirl

>