Re: Re: PF Awareness- Grass Root Campaign!

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dorothy

you can probably find all of the details about the bill on the Coalition for Pulmonary Fibrosis website

they usually have a form letter written, with a place for you to personalize it if you want to, they also have all of the congresspeople's addresses

they make it relatively easy

Pink Joyce R (IPF 3/06) IFA 5/09 Pennsylvania

Donate Life Listed 1/09 Inactive 4/09

www.transplantfund.org---

Subject: Re: Re: PF Awareness- Grass Root Campaign!To: Breathe-Support Date: Friday, July 24, 2009, 10:27 AM

Do you know the bill # so we can reference it to our congressman?Dorothy-fayettevill e GAUIP-7/05

Sent via BlackBerry by AT & T

From: Jack Marshall Date: Fri, 24 Jul 2009 06:39:09 -0700 (PDT)To: <Breathe-Support@ yahoogroups. com>Subject: Re: Re: PF Awareness- Grass Root Campaign!

The T-shirts are a great idea, but I want to remind board members to write their Congressmen to support

current legislation to appropriate funds to bring more awareness of our disease and to increase research.

To my knowledge, this is a first effort to get Congress to do something on this scale. A flood of support from those of us who live with this disease would help make it a reality. My Congressman has assured me that

he will support the bill and urge all Congressman to do the same. BUT THEY NEED TO HEAR FROM US!

Don't miss the chance to make your voice heard. Jack79/IPF - UIP/dx06/05 Maine

From: dyanebillings <dyane.billings@ ball-mcgraw. com>To: Breathe-Support@ yahoogroups. comSent: Thursday, July 23, 2009 7:08:17 PMSubject: Re: PF Awareness- Grass Root Campaign!

I want mine NOW.. I have 3 daughters and 3 sons-in-law and 8grandchildren so I need to order 16 in all the sizes you have LOL GREAT IDEA!Dyane Phoenix IPF 02>> Leanne S. and I have talked off and on about raising awareness invarious ways and some of us in Texas wanted to see, if the rest of thecountry wanted to join in on wearing Blue T-shirts on Fridays? With allthe other better known disease groups using pink and red and every othercolor, we settled on Blue because of the color our lungs become withoutoxygen.>> If enough people are interested we can even design our own shirt orjust keep it simple and put a "slogan" on it...like

'PulmonaryFibrosis...it takes your breath away'. We are totally open and wouldlike your suggestions on this grass roots project....I think it issomething everyone can do, and sooner or later, when people startnoticing others in Blue T-Shirts they will start asking us what is PF? When we see a pink ribbon on a shirt we just know it is for BreastCancer Awareness... .if we all band together we can make Blue for PF aswell known too:)>> We would love to hear your thoughts...What do you think?!>> {Leanne, thank you for your support and permission in sharing thisidea with everyone online! Between the Pulmonary Fibrosis Foundation inChicago, the Coalition for Pulmonary Fibrosis in California and thePulmonary Fibrosis Association in Texas, we can all make a difference inhelping to raise awareness of a disease that no one still hears about.>>

Jan>