Re: Still available to help-Len

[Guest guest]

Hi ,

Nice to talk to you again. My drugs are the same as

yours except I take xeloda pills instead of the 5fu

pump. I wonder what the difference is. The are

reducing my xeloda slightly to help the hands and feet

from exploding from swelling.

Take care.

Len

--- brencolinmom@... wrote:

---------------------------------

In a message dated 11/28/2005 8:40:54 A.M. Pacific

Standard Time,

hlen@... writes:

Len:

I am with you on the infusion tomorrow. I will be at

the oncologist's all

day for infusions of premeds, Avastin, and

Oxaliplatin/Leucovorin. I then get

to leave with my 48 hour infusion of 5FU. Looking

forward to another 8 days

of sickness but it is treatment number 9.

Take care, Len.

Narice

Thank you for sharing that Phil's avastin shrank his

13 cm tumor. I had lost hope on that one. I don't

have liver problems so far but was wondering why the

liver could not be saved. Do you have some insight

to

share on that one.

I know this is hard and I won't blame you if you

ignore it. I leave in a minute to see the onc and I

have infusion tomorrow. Gangs and gangs of fun.

Len

--- flipper759@... wrote:

---------------------------------

The board was very quiet this weekend. I just want to

say that while Phil IS

my first priority please don't be afraid to ask

questions. There are lots of

people here that still need help fighting this

monster. It DOES help me cope

when I can help all of you. We have a lot of new

people and I just want to

tell them that there is a lot of hope.

Please don't let Phil's situation scare you away. On

initial diagnosis he

was given only a few months and he got 2 and1/2 years

and they were GOOD years.

Erbitux and Avastin are wonderful powerful weapons

in

this battle Avastin

actually dissolved Phil's 13 cm primary colon tumor!

Who knows what it can do

for someone new to the battle.

We are in this together. Let's continue to help each

other no matter where

we are in this journey.

Narice

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/

---------------------------------

YAHOO! GROUPS LINKS

Visit your group " colon_cancer_support " on the

web.

To unsubscribe from this group, send an email to:

colon_cancer_support-unsubscribe

[Guest guest]

I think they'll do three more and then change the mix

a bit and keep on with chemo until the cancer is gone

(my hope) or I can't take it any more. They haven't

told me the plan. Must be led by Busch.

Len

--- Jolene Ehret wrote:

---------------------------------

Hope you day goes well Len, counting down, what 3 more

to go?

Cheers Jolene

[Guest guest]

LOL Len, I think I will say no comment to that last remark.. But what I

could say. LOL.

Whatever works my friend, whatever works. Hugs and Prayers Jolene

RE: Still available to help-Len

I think they'll do three more and then change the mix

a bit and keep on with chemo until the cancer is gone

(my hope) or I can't take it any more. They haven't

told me the plan. Must be led by Busch.

Len

--- Jolene Ehret wrote:

---------------------------------

Hope you day goes well Len, counting down, what 3 more

to go?

Cheers Jolene

[Guest guest]

,

Xeloda is the pill form of 5FU. It supposedly has fewer side effects. I'm

getting such megadoses of it right now, that's what caused my hair loss, almost

total. I still don't have the nerve to just shave it off, even though I won't

look at it the way it is right now either. My first round of chemo two years

ago was 5FU/CPT11/leucovorin. Now I'm getting Xeloda pills for a week with an

infusion of CPT11, off a week, then an infusion of oxaliplatin and pills for

another week. I have a problem with nausea and fatigue occasionally while

taking the pills, but it's not really debilitating. Thank goodness I work at

home on my own time, I can work whenever I feel good enough to sit here for a

while and take breaks when I don't.

My last onc visit they had CT results in and the recurrent tumor is measurably

smaller than it was two months before. I was poking around on it last night and

actually had a little difficulty finding it at all, even knowing where it was.

I'm optimistic this will either get rid of it completely or at least reduce it

to the point they feel they can do surgery on it.

So far there's nothing in my liver or lungs, but I know they're watching for

those very carefully. My cancer blessing, if there is such a thing, is that the

last scan also detected a blood clot in my right lung and they got me on

treatment right away, self-injections of Lovenox twice a day.

Such a roller coaster ride with this disease, I wish I'd never found this

amusement park. However, the other cancer blessing is this board and the people

here.

brencolinmom@... wrote:

Hi Len:

I am eating lots of candy and drinking cold drinks tonight since tomorrow I

will be unable to eat or drink anything cold or sweet (taste is bad). I

don't know the difference between 5FU and Xeloda or why they choose one over the

other. I would be interested in knowing. No one has yet mentioned Xeloda to

me. I HATE my chemo sessions because I know how sick and exhausted I

will be for the next 8 days. But, we have to get through it. I too have 4 to

go, including tomorrow, but what happens after that will depend on my next

scan (after 2 more treatments). Best of luck tomorrow.

Hi ,

Nice to talk to you again. My drugs are the same as

yours except I take xeloda pills instead of the 5fu

pump. I wonder what the difference is. The are

reducing my xeloda slightly to help the hands and feet

from exploding from swelling.

Take care.

Len

--- brencolinmom@... wrote:

---------------------------------

In a message dated 11/28/2005 8:40:54 A.M. Pacific

Standard Time,

hlen@... writes:

Len:

I am with you on the infusion tomorrow. I will be at

the oncologist's all

day for infusions of premeds, Avastin, and

Oxaliplatin/Leucovorin. I then get

to leave with my 48 hour infusion of 5FU. Looking

forward to another 8 days

of sickness but it is treatment number 9.

Take care, Len.

Narice

Thank you for sharing that Phil's avastin shrank his

13 cm tumor. I had lost hope on that one. I don't

have liver problems so far but was wondering why the

liver could not be saved. Do you have some insight

to

share on that one.

I know this is hard and I won't blame you if you

ignore it. I leave in a minute to see the onc and I

have infusion tomorrow. Gangs and gangs of fun.

Len

--- flipper759@... wrote:

---------------------------------

[Guest guest]

Hi Len,

Sorry I am lost in trying to catch up in hours worth of posts today

so cannot find you original. Regarding pain in the arm though Matt

was recommended to wrap it in a warm compress or heat of some kind

for 20mins four times a day. In fact he sometimes just rests his arm

on a hot water bottle. Hope this is helpful.

Love and prayers,

Fran

>

> Len

>

> Sorry that your arm is so sore. As you said it will be okay in a

few

> days..You take care.

>

> Hugs and Prayers Jolene

>

>

>

>

>

>

>

>

[Guest guest]

>>>Regarding pain in the arm though Matt

was recommended to wrap it in a warm compress or heat of some kind

for 20mins four times a day. In fact he sometimes just rests his arm

on a hot water bottle. Hope this is helpful.

>>>>

That just reminded me of something the nurses taught me. It is really hard to

find a vein when your arm is cold. They would lay warm blankets on my arm before

trying to get a vein for blooddraws, etc....when my port was 'busy' otherwise.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.362 / Virus Database: 267.13.8/183 - Release Date: 11/25/2005

[Guest guest]

Thank you Ingrid,

It must have helped because I feel much better now.

Len

>

>

> ---------------------------------

>

>

> The board was very quiet this weekend. I just want

to

> say that while Phil IS

> my first priority please don't be afraid to ask

> questions. There are lots of

> people here that still need help fighting this

> monster. It DOES help me cope

> when I can help all of you. We have a lot of new

> people and I just want to

> tell them that there is a lot of hope.

>

> Please don't let Phil's situation scare you away.

On

> initial diagnosis he

> was given only a few months and he got 2 and1/2

years

> and they were GOOD years.

> Erbitux and Avastin are wonderful powerful weapons

> in

> this battle Avastin

> actually dissolved Phil's 13 cm primary colon

tumor!

> Who knows what it can do

> for someone new to the battle.

>

> We are in this together. Let's continue to help

each

> other no matter where

> we are in this journey.

> Narice

>

>

>

>

> [Non-text portions of this message have been

removed]

>

>

>

> For an an extensive collection of colon cancer

> related

> links go to

>

http://groups.yahoo.com/group/colon_cancer_support/links

> or

> http://ourworld.compuserve.com/homepages/suthercon/

>

> yahoo.com/group/colon_cancer_support/links or

> http://ourworld.compuserve.com/homepages/suthercon/

>

>

>

>

>

> ---------------------------------

> YAHOO! GROUPS LINKS

>

>

> Visit your group " colon_cancer_support " on the

> web.

>

> To unsubscribe from this group, send an email to:

> colon_cancer_support-unsubscribe

>

>

[Guest guest]

Hi ,

Yes it is oaliplatin that is doing the damage. They

suggested that if I don't get port the could dilut it

next time. I'm leaning toward a port but must talk to

the doctor.

Take care.

Len

--- Dawson wrote:

---------------------------------

Len,

Are you getting oxaliplatin through a regular IV?

I've heard that's extremely painful and when they told

me I would be getting it this time, the first thing

they did was implant a port. I didn't know what kind

of " painful " they were talking about, but if that's

what's happening to you, I guess now I know. Hang in

there, I'm praying for you.

Len Henell wrote:

Lydia,

Thank you very much for your kind thoughts. I had an

infusion today and now my left arm is nearly

paralyzed. My hand works fine but it is hard to move

the arm and if you touch it the pain is like an

electrical shock. It will be ok in a few days though.

The left arm is the one they put the IV needle in.

Take care.

Len

--- mily wrote:

---------------------------------

To Len and ,

Have been thinking of you today. Hope all went well.

Hope you are not too sick.

Praying for you.

love,

Lydia

Len Henell wrote:

Hi ,

Nice to talk to you again. My drugs are the same as

yours except I take xeloda pills instead of the 5fu

pump. I wonder what the difference is. The are

reducing my xeloda slightly to help the hands and feet

from exploding from swelling.

Take care.

Len

--- brencolinmom@... wrote:

---------------------------------

In a message dated 11/28/2005 8:40:54 A.M. Pacific

Standard Time,

hlen@... writes:

Len:

I am with you on the infusion tomorrow. I will be at

the oncologist's all

day for infusions of premeds, Avastin, and

Oxaliplatin/Leucovorin. I then get

to leave with my 48 hour infusion of 5FU. Looking

forward to another 8 days

of sickness but it is treatment number 9.

Take care, Len.

Narice

Thank you for sharing that Phil's avastin shrank his

13 cm tumor. I had lost hope on that one. I don't

have liver problems so far but was wondering why the

liver could not be saved. Do you have some insight

to

share on that one.

I know this is hard and I won't blame you if you

ignore it. I leave in a minute to see the onc and I

have infusion tomorrow. Gangs and gangs of fun.

Len

--- flipper759@... wrote:

---------------------------------

The board was very quiet this weekend. I just want to

say that while Phil IS

my first priority please don't be afraid to ask

questions. There are lots of

people here that still need help fighting this

monster. It DOES help me cope

when I can help all of you. We have a lot of new

people and I just want to

tell them that there is a lot of hope.

Please don't let Phil's situation scare you away. On

initial diagnosis he

was given only a few months and he got 2 and1/2 years

and they were GOOD years.

Erbitux and Avastin are wonderful powerful weapons

in

this battle Avastin

actually dissolved Phil's 13 cm primary colon tumor!

Who knows what it can do

for someone new to the battle.

We are in this together. Let's continue to help each

other no matter where

we are in this journey.

Narice

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/

---------------------------------

YAHOO! GROUPS LINKS

Visit your group " colon_cancer_support " on the

web.

To unsubscribe from this group, send an email to:

colon_cancer_support-unsubscribe

[Guest guest]

Len,

I just wouldn't do it without the port. They can draw flood from the port and

do IVs, all kinds of wondrous things if you have nurses who know what they're

doing, which chemo nurses do. When they access my port it's a slightly bigger

stick than in the arm, but I think part of it is the non-coring needle they use

and the way it goes straight in rather than angled like a regular IV. I have

absolutely no problem with the infusion itself, just the side effects, but the

arm pain is not one of them.

Give it serious consideration, it's worth the effort to have it implanted.

Len Henell wrote:

Hi ,

Yes it is oaliplatin that is doing the damage. They

suggested that if I don't get port the could dilut it

next time. I'm leaning toward a port but must talk to

the doctor.

Take care.

Len

--- Dawson wrote:

---------------------------------

Len,

Are you getting oxaliplatin through a regular IV?

I've heard that's extremely painful and when they told

me I would be getting it this time, the first thing

they did was implant a port. I didn't know what kind

of " painful " they were talking about, but if that's

what's happening to you, I guess now I know. Hang in

there, I'm praying for you.

Len Henell wrote:

Lydia,

Thank you very much for your kind thoughts. I had an

infusion today and now my left arm is nearly

paralyzed. My hand works fine but it is hard to move

the arm and if you touch it the pain is like an

electrical shock. It will be ok in a few days though.

The left arm is the one they put the IV needle in.

Take care.

Len

--- mily wrote:

---------------------------------

To Len and ,

Have been thinking of you today. Hope all went well.

Hope you are not too sick.

Praying for you.

love,

Lydia

Len Henell wrote:

Hi ,

Nice to talk to you again. My drugs are the same as

yours except I take xeloda pills instead of the 5fu

pump. I wonder what the difference is. The are

reducing my xeloda slightly to help the hands and feet

from exploding from swelling.

Take care.

Len

--- brencolinmom@... wrote:

---------------------------------

In a message dated 11/28/2005 8:40:54 A.M. Pacific

Standard Time,

hlen@... writes:

Len:

I am with you on the infusion tomorrow. I will be at

the oncologist's all

day for infusions of premeds, Avastin, and

Oxaliplatin/Leucovorin. I then get

to leave with my 48 hour infusion of 5FU. Looking

forward to another 8 days

of sickness but it is treatment number 9.

Take care, Len.

Narice

Thank you for sharing that Phil's avastin shrank his

13 cm tumor. I had lost hope on that one. I don't

have liver problems so far but was wondering why the

liver could not be saved. Do you have some insight

to

share on that one.

I know this is hard and I won't blame you if you

ignore it. I leave in a minute to see the onc and I

have infusion tomorrow. Gangs and gangs of fun.

Len

--- flipper759@... wrote:

---------------------------------

The board was very quiet this weekend. I just want to

say that while Phil IS

my first priority please don't be afraid to ask

questions. There are lots of

people here that still need help fighting this

monster. It DOES help me cope

when I can help all of you. We have a lot of new

people and I just want to

tell them that there is a lot of hope.

Please don't let Phil's situation scare you away. On

initial diagnosis he

was given only a few months and he got 2 and1/2 years

and they were GOOD years.

Erbitux and Avastin are wonderful powerful weapons

in

this battle Avastin

actually dissolved Phil's 13 cm primary colon tumor!

Who knows what it can do

for someone new to the battle.

We are in this together. Let's continue to help each

other no matter where

we are in this journey.

Narice

[Non-text portions of this message have been removed]

For an an extensive collection of colon cancer

related

links go to

http://groups.yahoo.com/group/colon_cancer_support/links

or

http://ourworld.compuserve.com/homepages/suthercon/

yahoo.com/group/colon_cancer_support/links or

http://ourworld.compuserve.com/homepages/suthercon/

---------------------------------

YAHOO! GROUPS LINKS

Visit your group " colon_cancer_support " on the

web.

To unsubscribe from this group, send an email to:

colon_cancer_support-unsubscribe

[Guest guest]

Thanks ,

They use a hot pad on my arm to make the veins

accessable. That part works a little bit.

Len

--- wrote:

---------------------------------

>>>Regarding pain in the arm though Matt

was recommended to wrap it in a warm compress or heat

of some kind

for 20mins four times a day. In fact he sometimes just

rests his arm

on a hot water bottle. Hope this is helpful.

>>>>

That just reminded me of something the nurses taught

me. It is really hard to find a vein when your arm is

cold. They would lay warm blankets on my arm before

trying to get a vein for blooddraws, etc....when my

port was 'busy' otherwise.

nancy j

----------

No virus found in this outgoing message.

Checked by AVG Free Edition.

Version: 7.1.362 / Virus Database: 267.13.8/183 -

Release Date: 11/25/2005

[Guest guest]

Len, I so much agree with . The port is well worth it. Saves a

lot of grief.

Also when I was in hospital for the last two surgeries they gave me

potasium)(sp?) which blew all my viens. Only then did they finally

decide to find a nurse who could access the port for IV's. Was so

much easier on me. Love, Ingrid

>

>

> ---------------------------------

>

>

> The board was very quiet this weekend. I just want to

> say that while Phil IS

> my first priority please don't be afraid to ask

> questions. There are lots of

> people here that still need help fighting this

> monster. It DOES help me cope

> when I can help all of you. We have a lot of new

> people and I just want to

> tell them that there is a lot of hope.

>

> Please don't let Phil's situation scare you away. On

> initial diagnosis he

> was given only a few months and he got 2 and1/2 years

> and they were GOOD years.

> Erbitux and Avastin are wonderful powerful weapons

> in

> this battle Avastin

> actually dissolved Phil's 13 cm primary colon tumor!

> Who knows what it can do

> for someone new to the battle.

>

> We are in this together. Let's continue to help each

> other no matter where

> we are in this journey.

> Narice

>

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

> For an an extensive collection of colon cancer

> related

> links go to

> http://groups.yahoo.com/group/colon_cancer_support/links

> or

> http://ourworld.compuserve.com/homepages/suthercon/

>

> yahoo.com/group/colon_cancer_support/links or

> http://ourworld.compuserve.com/homepages/suthercon/

>

>

>

>

>

> ---------------------------------

> YAHOO! GROUPS LINKS

>

>

> Visit your group " colon_cancer_support " on the

> web.

>

> To unsubscribe from this group, send an email to:

> colon_cancer_support-unsubscribe

>

>

[Guest guest]

Please Len, get a port. It is nothing compared to what you are going

through. I am going back to bed now. This chemo session knocked me out. I am

so

sick to my stomach and I have done nothing but sleep for 2 days.

[Guest guest]

In a message dated 12/2/2005 9:54:42 PM Eastern Standard Time,

mystc1celt@... writes:

Len,

I just wouldn't do it without the port. They can draw flood from the port

and do IVs, all kinds of wondrous things if you have nurses who know what

they're doing, which chemo nurses do. When they access my port it's a slightly

bigger stick than in the arm, but I think part of it is the non-coring needle

they use and the way it goes straight in rather than angled like a regular

IV. I have absolutely no problem with the infusion itself, just the side

effects, but the arm pain is not one of them.

Give it serious consideration, it's worth the effort to have it implanted.

Hi Len... I think Glenn would agree with without any hesitation. As

many chemo treatments, IV's, blood draws, blood transfusions, etc. as he's

had in the last 2 yrs. he would have no veins left at all if it weren't for the

port. Never any problems with the infusions and never any arm pain. Worth

considering, Len!!

Lots of hugs and prayers, Donelle

Caregiver to Glenn

[Guest guest]

Thank you . I haven't been awake for more

than two hours in the last 3 days.

Len

--- brencolinmom@... wrote:

---------------------------------

Please Len, get a port. It is nothing compared to

what you are going

through. I am going back to bed now. This chemo

session knocked me out. I am so

sick to my stomach and I have done nothing but sleep

for 2 days.